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CP and COVID-19
Hi Everyone, I am new here but not new to CP as I am living with it and have done so since birth. I am really looking forward to meeting you all and also trying to get information with regards to this awful virus COVID-19. I do hope that you are all keeping well and safe.
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Hi, my name is Pye I have have mild cerebral pasly
I have mild cerebral pasly, dyslexia, double vision, slight swallowing issue. I work as a key worker role in a professional capacity. With covid 19 I am working from home. And as far as I know healthy, I haven't received a NHS letter should I assume that while at risk this should not prevent me from essential shopping?…
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Coronavirus and cerebral palsy
I have symptoms of painful ribs and chest with sometime a cough for 4 weeks. GP examine last week after taken antibiotics for 7 days. He prescribed codeine for the pain. GP unable to confirm if I have Coronavirus or another virus. I live on my own Have anyone had painful ribs and chest?
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Looking for advice!
Hi, can someone advise me if I'm at serious risk or not of the coronavirus. I'm currently off work, due to cerebral palsy being listed on the vulnerable list. I am semi hemiplegic down my right hand side. It doesn't stop me doing much really, just weaker and have sniffness on that side and I don't tend to suffer with chest…
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Cerebral Palsy and Coronavirus (COVID-19)
Cerebral Palsy affects every individual differently that is why it is difficult to create a one size fits all guidance about the impairment and coronavirus. If you have respiratory issues, like getting chest infections quite a lot. Or are invited to have the yearly flu jab, you have swallowing difficulties normally, as…
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Hi guys Tommy here from Northern Ireland
Hello guys I have just joined. I am looking for some advice on CP, I suffer from spastic dieplegia CP and walk with a scissor gait. I am now 38 and have been in excellent health, very recently I have had minor problems with slurred speech and the over production of saliva, I have never had this before. Is this age related…
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muscle fatigue
hey my name is jo have you noticed as you get older its gets easier to suffer from muscle fatigue it seems recently i cant do as much as i used to. Usually my cerebral palsy affects my legs and arms its mild my legs get a little stiff and my arms occasionally lose grip not a big deal really.But the other day when i spent…
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Covid 19
If you suffer with Asthma epilepsy cerebal palsy do you come under risk category of covid 19
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Am I being lazy by asking for more help?
I have cerebral palsy and recently I have been asking for more help with ADL's because I get tired easier, especially since I have a full day of work (8hrs) almost everyday. I feel lazy because I know how to get dressed and brush my teeth but I get tired easier and I would rather focus my energy on college/homework/my…
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Hi, my name is jimza!
Hi everyone, I am 29y/o F, joined this forum as a sibling of a sister (19F) with special needs. She has mild cerebal palsy, so suffers from mobility issues and learning difficulties. She goes to uni, studies hard but occasionally has to use a motorised wheelchair, is not able to cope with any stress emotionally. She is…
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cerebral palsy and the corona virus
Hi, With the recent report classing those with cerebral palsy as vulnerable in relation to the Covid- 19. I’m 22, student nurse with mild cerebral palsy that affects the right side of my body. I just want to confirm that I’m not classed as vulnerable as I am mobile and healthy. What’s your opinion as I’m on placement at…
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Why are people with CP considered vulnerable?
Hi, I'm confused as to why people with CP are considered vulnerable in this Coronavirus outbreak. Any Ideas?
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Educating grandchild with CP at home
I have a nine year old grandchild with cp and she is nonverbal and wheelchair bound. Because of the Coronavirus in the USA, our schools have closed for the school year. I am going to be responsible for her education at home and am looking for ideas and suggestions. Thank you for letting me join this community.
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"It's been a weird week."
'It's been a weird week': Man with cerebral palsy on life in self-isolation A disability campaigner is keeping a video diary of his time in self-isolation during the coronavirus outbreak. Read the full story at ITV.com
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Hygiene for Hemiplegic Hand and Mobility Equipment
We all need to follow basic hygiene precautions, especially at this challenging time. We all know about not touching our faces, covering nose and mouth when coughing or sneezing with a tissue or into our elbow. However, we need to be thoughtful about not only hemiplegic hands but also equipment that we might use on a day…
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Coronavirus and my son with CP
Am worried about how Corona virus could affect my 13 year old boy who has Cerebral Palsy
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Hi I'm Caeden Thomson, I'm 6 with CP and I'm going to walk up BEN NEVIS!
Hi I am a 6 year old boy with Cerebral Palsy, My mum is typing, because she can type faster than me! :) lol! I was born 12 weeks premature and had a lot of problems. I was in and out of the hospital a lot. In my life, I have been really lucky to have had as much help and support I have had - that I now want to give back.…
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Why is CP in the list of higher vulnerability for Covid-19?
Hi, dad of girl with wobbly legs. Otherwise healthy. I'm trying to figure out why CP is in the high risk list from HMGov yesterday. Some people have suggested something to do with neuro damage or something. It doesn't immediately make sense to me. My understanding of CP is permanent brain damage from birth, a static…
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NICE Quality Standards for Adults with CP
Over the last 18 months, Scope has been working with the National Institute for Clinical Excellence (NICE) and other organisations with an interest in CP to agree on what good service should look like for Adults living with CP. Scope supports these newly agreed and published quality standards. The standards are: 1. To…
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Bulging Disc Nerve Pain
Hi Folks, Hope you doing okay. I have recently been diagnosed with a bulging disc that is impinging on my left nerve root, causing sciatica. I have been to loads of private physiotherapists as the NHS physiotherapist was very poor, i just wanted to get out of pain. All seem to give mixed advice, but i am awaiting a…
