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Battle for CHC - Continuing Health Care
I just wanted to share this dreadfully sad article with you all. It shouldn't have to be a post code lottery. https://www.theguardian.com/commentisfree/2025/jan/28/terminal-illness-care-england-motor-neurone-disease
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Bringin̈g back an old TV Programme
I was showing my son an old hysterical episode of 'Beadles About' where this man was set up and a duplicate white van just like his was sent rolling into a lake with all his worldly goods.His high pitch screams still have me belly laughing after all these years.Does anyone else remember it? And which programme is no longer…
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Counselling/therapy
curious how as disabled people we find that counselling or therapy (or talking therapy as they call it now). I am not convinced that is is always suitable to the issues we face. I won’t prompt what I consider the flaws in the service as just wondered what others think whether you have actually experienced the NHS system or…
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Wet and windy Sunday
Hi all from a very wet and windy Bristol-whats everyone upto in their part of the world today -and is it dry whewhere you are ?
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I need some help to change my life for good and a lone make move to better life
This discussion was created from comments split from: Pip loan .
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Stressed out
I just received a call from a 'social prescriber' from my GP practice asking me how I am since I put my M.r for pip in January 2nd and have I heard any news.Not only did she sound surprised that I told her ( already) again that the text said 12 weeks to hear anything.But I told her that the talking therapist had referred…
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Help with heating
My husband as had cancer and an heart attack after chemo,I have chronic back pain,we are in our early 60s and can't get a pension,we live off his private pension which isn't a lot ,how do we get help with winter fuel as we can't afford to have it much.
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NHS app question
Just a question about the NHS app. My GP referred me to orthopedics and a request was sent to the NHS 'triage hub.' On the NHS app, under referrals, it had been showing as ' 1 pending'. But when I looked tonight, it is now showing as 0 referrals pending. It also shows as 0 for 'waiting lists'. Does this mean that the…
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Could I make a no win no fee claim for this?
Hi . I am a parent of 2 adult children with multiple disabilities . Hello 😊 my daughter was gradually overdosed with phenytoin . It was awful as we couldn’t understand why she had started to fall and stagger . We had her eyes checked (she has an eye condition and retina is weak) . All investigations have to be under…
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RE: Living with degenerative disc disease pain
Hi, My names Lee and I have degenerative disc disease, I had ACDF surgery about 3-years ago. Unfortunately it didn't heal my condition but did alleviate some of the pain. However I'm not pain free, I experience any certain degree of pain every day, whereas sometimes it spikes and I have what can only be described as…
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Mobility scooter, dog mess on the tyres
This isn't a pleasant subject, but i am really fed up spending an hour+ several days per week, scraping dog mess off the tyre(s) of my scooter. We all know we shouldn't have this problem, but we don't live in perfect world. It's no joke in winter temperatures, not when numb with cold after a 2 hour dog walk. I use a…
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Dispelling the myths about Tourette Syndrome
Today on the community, Helen from Tourettes
Action will be taking your questions and trying to dispel the myths surrounding
Tourette Syndrome. Tourette Syndrome
is a neurological condition, the key features of which are tics and
involuntary/uncontrollable sounds or movements. However, it's sometimes more
widely associated…
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What do you do?
I'm epileptic and relive the same day. Is there anyone else with epilepsy or medical condition that feel isolated? If so how do you spend your day?
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Charn
I was at hospital cake back to be told my housing officer had turned up unannounced and I've just foud a card in the door this evening affer being asleep in the day to urgent and don't know why the big letters written urgent like she is shouting ive not liked her since she first visited when she had no care over my health…
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Question of mobility
How do people with a lack of mobility and no support network, physically get to medical appointments at GP Surgeries and Hospital ?
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Donald Trump and the Village People
Now I know I am not living in the real world!.How hysterical 🤣.I must say he is actually growing on me.I had to give this title a Category..Somehow 'Everyday life' just doesn't quite fit this but hey ho
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PIP discussion on GMTv 8am
They are discussing pip at 8am approximately at 8am with one of the ministers on Good Morning Britain on ITV if anyone is interested
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Help with furniture
can I get help with wardrobes and fridge freezer as In temp accomadation and struggling atm
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Teeth
Though they're not the best set like some people have, I cleaned my teeth today. If I clean my teeth everyday I hope they get the way I want them!
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Looks
Whats it like being good looking?