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Support for my son: developmentally immature, lacks gross motor skills and has emotional outbursts
We are looking for some advice and any tips would be great. our son is nearly 6 and is waiting to see a community paediatrician. He is developmentally immature, lacks gross motor skills has emotional outbursts, and has been at speech therapy for 3 years. We have now been told that he has no tone to his voice so his speech…
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Cleaning service
Is there a cleaning service that could help my daughter, she has cerebral paplsy and adhd.
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EHCP help
Hi everyone. I'm new on here. My son is in year 10 and he have just been refused to access for a EHCP. Iam not sure if I should go to mediation or just go to appeal. Any advice.
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Looking for a little bit of advice
Hi to everyone, not sure where to start or even why I am here,my grandson Cole will be turning 10 in august, through family issues Cole lives with me.Cole has special needs and he was being seen at cahms, seen pediatricians seen social worker's who all say that Cole as the age of a 4yr old almost 6yrs behind his peers.he…
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Free school meals - extended over the Summer holidays
In case it's of interest to anyone, it has been announced that the free school meals voucher scheme will be extended over the Summer holidays. There's been much debate about the scheme in the past and it's interesting that there has been a U-turn after some high-profile campaigning. Has anyone had any problems using the…
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Teenage son who's depressed
Has anyone got any ideas to help my teenage son who is depressed? He’s 17, finished college until September and doesn’t want to do anything, speak to friends or talk to his counseller (online)- he’s really down and just wants to sleep. He has had very little social contact except online and even that’s reduced to pretty…
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Guilt of being a disabled parent.
I have been struggling for 5 years now with degenerative disc disease. I had a second surgery in Feb but I’ll forever have chronic pain. Over the last year I had a few other medical issues which has resulted in me leaning on my teenage son more and more. I hate having to do so and have recently realised that I have become…
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Free Online Yoga for Carers
**Funded Yoga Session for Carers of all ages and abilities on Friday 12th June at 10:30am** In partnership with Cerebral Palsy Midlands, Noah’s Star have planned a funded virtual get together for unpaid carers. The session will start with a 30 minute beginners yoga session to encourage positive health and well being. This…
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Real struggle at the moment with 13 year old son
HI Im julie i have a 13 year son Joe with Apd and i'm pretty sure spd. its a really struggle at the moment he is like a pressure cooker waiting to blow at any moment. just needed to share.
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I'm angry and hurt hoping this feeling goes away
Hi have 4 month old with hie grade 2 obviously didn’t happen long ago so still feeling traumatised by my experience. I have worked in a special school for over 20 years so im not really upset at what her outcome will be just that it happened. I had preeclampsia with my first child but felt so ill with second but nobody…
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Recent diagnosis
Hi, my daughter was recently diagnosed with Dyskenetic/dystonia CP (hypoxia at term). This has come as a complete shock to the family because we were not told of any concerns at birth. I became concerned about her development when she was six months and basically visited the GP as often as I could. However, we were told…
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Carer’s credit
Hello. I wonder if anyone has experience of claiming Carer’s credit? I took early retirement 2 years ago. One of the main reasons for this was to provide more support to our adult son. He has learning difficulties and lives - with much support - independently in a council flat near to our home. I have discovered that I may…
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Life as a special person
We recently moved to london with our 3 years old daughter having a global development delay, I have couple of question would love to address here if it is ok, I am so afraid about her future and how her life is going to be: 1 Is london a good environment for kids or adults having a disability 2 what and how government…
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Looking for advise and support
Hi I'm Paige, My youngest daughter has CP that mostly just affects her left ankle - so she tip toes. Although she is almost 3 and a half developmentally I would say she is about 2 and a half, so sometimes this is difficult. Looking for advise and support I thought it would be a good idea to join. As GP etc have not been…
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Need my carers back
There is so little guidance for helping the vulnerable or disabled. I had a cleaner 1x per week and a massage 2x per week as an alternative to medicine. Up until a week or two ago, I had a friend who helped with shopping and cleaning but is now unable to. My mental health is deteriorating as I struggle to keep up with self…
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Hello from an autism Mum
Hi there, our son is 18 and has autism. During this isolation he is spending all day on his PC gaming. I have come on here hoping to hear from other parents. Any ideas on how to structure his day? Do others work? I’m juggling work and making sure he eats, showers etc. Tracy.
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Girls with CP & their periods
Hello all, My daughter hasn't actually started her periods yet but I feel like it will happen soon. She's 9 and about 2/3 years back she had two lumps come up under her nipples and had started to grow pubic hair, obviously I was concerned so we went to the GP who passed us on to the paediatrician who sent us for a blood…
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Help my son is addicted to cola!
Hi everyone, I was hoping for some tips or strategies for managing my 25 year old intellectually disabled son;t coke consumption. He is so focussed on it, when he's getting his next one, whether there'll be any at Gran and Pop's house, etc. He's only just opened a bottle when he asks 'more shopping?' He's an adult now with…
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How do I get a helper during lockdown?
I would like to know how do I get help during lockdown and social distancing? I have a disability that affects my balance and need support getting around.
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Disabled adult children - what now?
My husband and I are in our mid/late 50’s. We have 2 children, a daughter aged 27 and a son aged 23. They both have disabilities. My daughter has digeorge syndrome (Inc heart defect, arthritis and thyroid problems) and my son has Asperger’s syndrome. We are all very happy considering the difficult circumstances we are…
