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Hi, my name is annk! Is anyone else living with acalasia?
I am in the middle of tests for acalasia, I'm suffering a year and a half now and I have lost over 34lbs, I am waiting on a manometry test that seems to be taking forever, my symptoms aren't always the same , I've had botox in my esophagus which was great, but now after 10 weeks it seems to have worn off , and I'm drained…
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Who else has Drop foot
How many people on the forum have this condition, how do you cope with it any hints or tips would be much appreciated . THANKS
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Talking tape measure
I sew and have to measure all the time as a visually impaired person with ataxia it is quite the faff to measure accurately. I have experimented with a standard retractable steel measure and have a way to use with fabric. I am looking at one from Cobolt through RNIB. Any feedback on whether it's worth the outlay would be…
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New member. I had my stroke almost 6 years ago. Still working on recovery
Hi I'm new here but not new to stroke unfortunately. I had my stroke almost 6 years ago. Still working on recovery :)
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Would a sculpture of the face of friends/family be appreciated by members of the VI community?
I'm a new sole business, a maker, and I can do detailed face scans and produce sculptures from these scans in both 3D printing and carved wood. I was wondering if you would be able to give me your opinion on if a sculpture of the face of friends and family would be a gift that would be appreciated by members of the…
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Pulsatile tinnitus and hearing loss
Hi! I am just asking on here if anyone has any info around pulsatile tinnitus and hearing loss! For a while I can hear my heartbeat in my ear, sometimes it gets louder. Every now and then I hear ringing too. I struggle to hear people if there is background noise and it sounds like people are mumbling! Anyways, I had my…
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Hi, my name is Octavia8! I want to learn to lip read , can you help
In the last 6 months I have gone from a fully hearing person but after 2 incidents of Covid I have lost and continue to lose my hearing. I want to learn to lip read , canyons help
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Hi, I'm johnmac! I've had no taste buds since my operations. Anyone know how this can be cured?
Hi, this is my first time on the site I’m fed via a line into the heart for my TPN bag I also have a live fistula which comes out of my stomach I have 130 cm of active bowel. I manage all of the above myself i do not have any nurses or doctors. The reason I have joined this site is to ask a question of anyone else with…
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Hello everyone!
I'm so happy to be here and I hope everyone's doing great! I hope this is the right place to ask. I'm looking for a company/companies, other than Amazon, who would be able to ship talking or tactile appliances all over the world? If anyone has any suggestions, it would be highly appreciated! I live in Africa and I'm in…
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'The Deaf community isn’t exempt from the other forms of oppression' - a chat with Socially Sound
I recently spoke to Sarah and Kirsty from Socially Sound about what it's like to be a young, Deaf person, and how intersectionality plays a role in the experiences of Deaf people. Would you like to tell us a little bit about yourselves? S: I’m Sarah, a Black Deaf Woman. I am bilaterally implanted and I have just recently…
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Do you know a BSL interpreter?
A British Sign Language (BSL) Interpreter is needed for a Q&A screening of LISTEN - a film about a Portuguese family trying to keep their deaf daughter out of social care. The screening is on Sunday 19 June at Genesis Cinema. If you or someone you know might be able to help, please email films@bohemiamedia.co.uk Thanks :)
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Support for Auditory processing Disorder (APD)
All of our family have a clinically Auditory processing Disorder (APD).. The problem has been that we have never been able to find anyone who is capable of providing any support and or understanding regarding our complex disability.
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River Cruises for sight impaired?
Hi. Has anyone been on a river cruise? We are trying to find out if any are suitable for my partner whose distance vision is limited. So we want to find one where the boats sail close to the banks (less than 100 metres) and where there is a lot to see actually on the banks rather than in the far distance.
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Could supermarkets do more to make shopping experiences easier for visually impaired people
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I'm partially sighted, but feel embarrassed and self-concscious about using my symbol cane
I have been registered partially sighted almost three years. I have Stargardts, glaucoma and thickening corneas. In recent months I have noticed myself that my sight is getting worse, I have a lot of blank patches where I just can’t see, it’s so hard to explain. i have had a symbol cane hidden away for almost three years.…
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Hi Gill Sk
Hi Gill SK. I am Partially Sighted to I have no Sight in my R eye from birth retrolental fibroplaysia. I was born Premature I only Weighed 1 1lb 13 oz when I was born and also went down to 1lb in weight. Do you have to have Specif conditions to be enabled to have a White stick I have never been offered one should I have…
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The low-down on Irlen lenses
We spoke to @Jennifer14Owen who has Irlen syndrome, to learn more
about the condition and how wearing Irlen lenses had changed her life. What is Irlen syndrome? Irlen syndrome is a visual perceptual processing disorder that can affect
people of any age. Irlen syndrome impacts around 12-15% of the UK population and this BBC…
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My wife is sight impaired, and we've moved counties. Do we need to contact the new council?
Hi everyone! Just looked at all the Blue Badge chat as we've just moved Counties. I have a question about disability registration, if I may? My wife is registered as 'severely sight impaired' with Norfolk Council, but we are now in Suffolk. Do we need to contact the local council to register with them or do we just leave…
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Changes to vision
I’m not looking for anyone to diagnose me so it’s not medical advice but I’m hoping anyone has some ideas I can put forward to my gp or optician to look into as routes to explore For last couple of years I feel my eyesight has deteriorated rapidly but optician says I’m still testing fine and no changes and don’t need…
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Finally!! My Hearing Is Getting Looked At
Sorry I've been away for a bit. I finally have an assessment on my ears tomorrow! A Doctor phoned and asked to speak with me. And... I asked him to repeat that! And this was the morning. It's going to be one of those weeks. Also I'm being referred to a Restart Work Programme separately which will be hilarious as I'll…
