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What to expect next ?
Hi , i have been diagnosed with diabetic neuropathy sensory ,motor ,axonal peripheral neuropathy im in extreme pain with burning prickling and stinging im on a fair amount of meds but dont know what to expect next or any way of making life a bit more bearable due to pain and lack of sleep .jack
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Devic`s disease
Anyone been diagnosed with this? It is also called NMO........demylination on spine and optic nerves are usual It is rare.
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Extreme constant fatigue, body pain but no cause found?
Hello, new member here. I’m a male in my twenties. I’ve been experiencing extreme fatigue and tiredness for about 8 years now. I also yawn all the time and have the desire to just close my eyes and sleep all the time but yet it doesn’t feel like I’m sleep deprived. I do have to take naps throughout the day though. The…
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Arrogant doctors. Impossible to correct misunderstandings and blunders.
I feel so defeated. I had written an email yesterday to a clinic where a GP that I've seen a few times work. I explained that there were some misunderstandings in the referral he had written for an imaging scan and that I would appreciate if it got corrected. I wrote further that I would pay for the time spent on it and…
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I have no idea XD
Been ill for a long time. Pain, mostly. Spinal, chest, joints, all difficult to deal with. It has been blamed on a lot of things, drinking (I don't drink...at all, never have), bad posture, Psychosomatic pain... Today, my blood test came back showing elevated CRP. Not high high, but borderline high. I'm not sure what this…
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Corticosteriods /'Synacthen'
Hi there, im hoping i can find others who i can relate to. Im a 37 year old male. When i was very young i suffered from acute asthma. From the ages of 4 - 6 i was medicated with weekly injections of 'Synacthen' and then inhaled steriods there after. This would cause a state of too much cortisol. I believe ive suffered all…
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Just diagnosed with FND
Hi, my name's Jason, I've just gone through a year of testing, MRI's showing some white matter brain damage, and a shed load of tests including lumbar puncture. Prior to the results of the lumbar puncture, because I've been off work on long term sick, I was diagnosed with MS by an occupational health doctor, just by…
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GBS/CIDP
I have CIDP. Is there anyone who has CIDP or GBS. Thinking of moving to wales
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Can you drive safely with Fluctuating Conditions?
Hi all, I'm wondering when it comes to fluctuating conditions what the laws are on driving? They all seem pretty black and white. If you have exactly X all the time then yes/no. What if you have a fluctuating condition? Is it all down to common sense? Thanks in advance, Jenny
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Cluster Headaches, brain tumour removal, pip going to tribunal
Is there any other members with cluster headaches been through the same and can help me with my anxiety please. 31 weeks I have been waiting
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Anyone have Hemidystonia Hemiatrophy Syndrome?
Hi! Anyone have Hemidystonia Hemiatrophy Syndrome? It’s a rare form of Dystonia and there is little information about it.
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mirror movement disorder
Hi everyone. I have always had problems with my left hand mimicking my right hand. I always thought it must be a symptom of my hydrochephalus and didn't think anymore about it. For some reason I decided to research it and found out that it was something called mirror movement disorder and was actually quite rare! Mine…
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Trisomy x syndrome
Does anyone know about this
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Cauda equina syndrome
I live with cauda equina syndrome I just wondered how many people on here do too? I have had it for 8 years now and would like to connect with others who have been through the same thing
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neuralgia
im curently have an episode of neurlaga in my face can anyone tell if if this is caused by my spinal stenosis in my neck thanks
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Rare or what ?
Has anyone heard of macrocytosis?
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Some noises drive me to anger
It's called misophonia but dont think a lot is known about it? Sounds like chewing/slurping/sucking and throat clearing, rustling like someone reading a newspaper, clicking, and other small sounds can make me angry to the point of rage if I cant get away. I dont know what to do about it, but was just wondering if I should…
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My prototype adapted weighted spoon I've made today.
I was getting so frustrated eating with my tremors, especially soup, so i made this weighted spoon today.. I got approx 30 one pence coins, taped them to the underneath of my spoon handle, covered them in polymer clay and baked the whole spoon in the oven for an hour for the clay to harden. It works an absolute treat, it…
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Choices?
It is strange to think that sometimes it can take many years to make sensible choices and to avoid making mistakes and I guess I made a very large one when my problems first surfaced in 2003. I was in a relationship at the time but although the specialists figured cervical spine surgery would cure everything during the 14…
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Rare chromosome disorder
anyone have a child with a rare chromosome disorder?