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Sudden incremental reductions in brightness levels while everything else remains normal.
Hello, For many years now, I have sudden events every few months to every few years that suddenly reduce my brightness levels in both eyes at the same time by a small amount, while leaving everything else (visual acuity, colour perception, etc) working normally without any change. The pattern is that there is one distinct…
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Primary Sclerosing Cholangitis (PSC)
I have the above rare liver condition. In my case because I have Inflammatory bowel disease. Most medical professionals are unaware as it’s so rare. I was called to my GP the other week to discuss the results of a blood test I had a few days before. The doctor was pleasant and said the blood test showed certain raised…
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Goodpastures Syndrome
Hi all New here and was wondering if anyone else here had a diagnosis of of Goodpastures Syndrome? I was diagnosed a few months ago after being ill and ending up in a coma in hospital. I know very little about the syndrome and neither do the consultants I am under currently ( respiratory, neurology, hematology) Apparently…
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Health Conditions
Hello just interested in how over people talk about their health conditions . I am very comfortable and open talking about my But i do know some people are not . i dont talk about my health conditions all the time but i am very confortable answering questions when asked . when i was asked about one of my health conditions…
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Has anyone tried LDN (low dose naltrexone) for their fibromyalgia?
It seems that there is so much written on the topic of LDN as a treatment for fibromyalgia and that it has helped a lot of people. Has anyone on this forum tried it with any success? Please let me know! If you haven't heard of it, this article speaks about it and gives a lot of information Thanks everyone!
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Feels like people don't understand or just keep forgetting.
Sometimes it feels like people just don't understand what I'm going through at all. I'm thankful to have good people in my life, but often it's as though they have this constant amnesia in which they continously keep forgetting that more often than not, I'm ill and tired need to pace myself at times or even need time to…
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Chronic weakness, pains, neuropathy in hands/arms feet 5 years
Hello everyone, I hope you are all doing well and surviving. I am male, 37 now. I would like to ask for some assistance in trying to understand what I have from the forum. I went to sleep one day just like any other day from working quite vigoureslly with my hands (I created items from plaster of paris and pushed them out…
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Difficulty Finding Diagnosis/Treatment In The Chaos Of The Medical System
Hi. For too many years to count, my life has been difficult due a mysterious condition which encompasses the following symptoms: Fatigue, Weakness, Tiredness, Sleepiness, Aches, Pains, Headaches, Migraines, Nausea, Palpitations, Shortness of Breath, Sleep/Wake difficulties, Excercise Intollerance, Light Headedness,…
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Anyone with Hereditary Spastic Paraplegia?
Hi, I just wondered if anyone suffers from late onset Hereditary Spastic Paraplegia? My husband was fit and well until age 55 when he suddenly developed drop foot and other problems with walking. Our local hospital could find nothing wrong ?. So we got a second opinion at another hospital where they actually looked at his…
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Poo test - how long ?
I have been waiting 12 days for the results of a poo virus test on a sample handed to my GP on 10th April - how long should I wait for the results ?nb NOT bowel cancer screening (I've had those already)
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Diagnosis of Muscular Pain
Hi all, For the past 4-5 years I have pain in my chest, if i stretch, tie my shoe laces, or twist i get like a cramp feeling in my chest and i have to stretch my body to relieve the pain which takes a few minutes, i also get woken while im a sleep The GP sent me for an xray and it came back clear so the GP said its…
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Crohn.s
Hello just wondering if anyone with crohn.s disease when in remission still has symptoms i am just wondering if i have ibs has well has crohn.s has anyone have crohn.s and ibs and how do you manage both
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Brain Injury
Who's out there with a brain injury?
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Hi, I'm MJscheper. I have an undiagnosed condition and need support.
Hello everyone. I hope you are all safe during these weird times. My name is Myron. I’m a 27 year old (young) man living in the Netherlands. First of all, I want to apologize in advance for my English. It isn’t the best, but I hope my story is somewhat understandable. Second of all, it’s a long story, but I want to be…
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Cyclical fever everyday for 4 years
I have a large variety of symptoms, but the most notable one is that I have had a fever for 4 years. Every morning, when I wake up, my temperature is 97.5 degrees. But as the day progresses it just keeps getting higher. By 3-4 pm it is usually about 101. I also have fatigue and muscle weakness that is getting worse. Has…
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Help with complaint when Ombudsman does nothing
Complained about poor service from two hospitals and the health service overall with respect to a skin condition or parasite/thing that came from a dodgy seller of Amazon marketplace. I complained as they still haven't treated it after 9 years and didn't even do a skin biopsy to establish what it is. The report from the…
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COLD autoimmune haemolytic anaemia
Hi - I have recently been diagnosed with a condition that is relatively uncommon and I don't seem to be able to find any peer group support. I wondered is aware of any groups for people with COLD autoimmune haemolytic anaemia.
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Femoral Facial Syndrome
Hi. My name is Joel, I'm 19 and I have a rare condition called Femoral Hypoplasia-Unusual Facies Syndrome (FHUFS). It means that my femors (upper leg bones) are very short. I also have a load of other symptoms because it's a syndrome. These include club feet, fingers that don't straighten, small ears, cleft palette and…
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Achenbach Syndrome
Apologies, I didn’t realise I posted this on someone else thread. Diagnosed with Achenbach Syndrome presents on my hands and toes, starts with a burning heat that itches and feels like I’ve been stung then a bruise appears which can last from 4 hours to 3 days. Told by consultant not a lot known about it, there’s no…
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hEDS
Hi, I'm new here and I have Hypermobile Ehlers Danlos Syndrome (hEDS) amongst a multitude of other things. Does anyone have any advice regarding getting medical support from a GP? I've had a lot of medical gaslighting and accusations of being a hypochondriac in the past but I've recently moved house and hoping to start a…
