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Crohn's and Colitis Awareness Week
Tomorrow is the start of Crohn's & Colitis Awareness Week. If you didn't know... * Crohn's Disease and Ulcerative Colitis are the main forms of Inflammatory Bowel Disease. * There are others such as Microscopic Colitis and Proctitis. * People will experience IBD differently. Symptoms can include pain, loss of control over…
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Tinnitus
Not sure if this is the right place to post this but here goes What would cause tinnitus to get suddenly louder does anyone know. My right ear is louder than it's ever been today, in fact its usually my left ear, which is ringing but much quiter. Had it in the left ear for some time, right one is fairly recent. Cant go to…
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Dystonia affecting vocal cords/breathing
Hi, my daughter has recently been diagnosed with dystonia which is affecting her vocal cords. She is 8 months old (4 months corrected). She is currently in hospital and has been since birth (long backstory). This issue with her vocal cords is what is keeping her in hospital. She has suffered from severe apneas causing her…
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Stomach cramps .
Due to IBD , I get quite bad stomach cramps . I do take meds but it is very uncomfortable.
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Syrinx of the spinal cord
Hi I hope someone can help me. I have had neurological symptoms for a number of years. Was referred to see consultant. They suspected I had MS, after one mri I was told I had syrinx from c7 to T3. I had second mri with contrast. I had a call from consultant a few days ago and said he doesn’t think the syrinx will cause an…
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symptoms of Dercums disease
Wanted to connect with some other people that are going through what I am going through. I’ve had symptoms of Dercums disease about six years plus and was just diagnosed last year.
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Upper motor neuron syndrome. Spasticity with High blood pressure ....
I feel let down by the NHS ... For probably over 19 years I had? A UMN injury ... And been given Heart meds .... The kicker is I been saying I got Autonomic Dysreflexia..For last 3! years and I may as well be taking to a wall .. Bit of history ... In 2005 I was in a car crash and hit in the head - cerebellum with a lump of…
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Swollen lymph nodes
have had swollen lymph nodes(glands) for approx 5 months. Seen by ENT , luckily no biopsy needed. Ultra scan showed benign lymph nodes and thyroid. Told nothing to worry about, but also that the glands won’t go down. To return if they should get bigger. Anyone else experienced this. I feel poorly some days with this, seems…
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Alexithymia
Better known as emotional blindness it's a failure to recognize or be able to describe your own or from my point of view be aware of them I think except anger and verbal aggression. Also being able to see or know them in others, again, for me. It's a tough one, even just to define!
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Misophonia
Didnt realize this was a condition till a few years back. Thought it was just some weird thing with me. Definitely a flight or fight thing with me. I get it visual as well as hearing. Wondering if its linked to autism.
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Paralysed diaphragm phrenic nerve damage
Hi all. Been diagnosed phrenic nerve damage and paralized diaphragm following surgery. Struggling with breathlessness on exertion and unable to do my job..getting me down. Would like to hear others experiences
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Anyone have any experience with POTS?
Hi, I’ve been researching pots for a couple of months and a lot of it seems to fit me. I think I naturally have quite a high heart rate anyway, my resting heart rate is about 85/90 bpm but when I stand up it consistently jumps higher. Usually to around 130 bpm, it goes back down to 95/100 bpm in about 5 minutes. I’m 23…
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Spirometry results
Hi all, I'm not sure where this would be relevant so I apologize in advance, I finally got my results from respiratory services, my sleep apnea screening showed up low oxygen levels several times, my spirometry showed that my lungs were restricted as appose to obstructed, I'm being referred to a lung specialist and for a…
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Paralysed vocal cords
Hi i'm wondering if anyone else has suffered this. I had a total thyroidectomy 6 years ago. woke up and not been able to breath properly since. was told one side is paralysed in the open position and the other side is dysfunctional. not treatments offered due to breathing problem. i have just been left like this.
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I'm new here. I have diverticulitis
Hi my name is BKos and I'm new here. I have diverticulitis and wanted to hear how others deal with it, what to eat, drink, can you drink wine etc.
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Bowel resection
How "major" is a Bowel Resection" for a 91 year old male ?My Dad has to have one in 2 weeks - he had polyps in his intestines which he tells me were removed last year..
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Assistance Dog
A big hi to everyone 😁. Does anyone have an assistance dog and has had a bad experience? I am usually shouted at NO DOGS even though I have a barnyard, the other day I got refused entry when I explained he is my assistance dog they still banned me 😪
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Struggling with being honest
Do you ever feel like you can't be honest with your friends and family about how scared/impacted you are by your health conditions/disabilities? I still don't have a diagnosis for my issues but it's finally pointing towards a rare autoimmune condition. A particular antibody I have tested positive for is highly associated…
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I don't know what's wrong
hi I am used to being part of online communities and feel supported with stuff like my mental health. My physical health declined last september and I have been very isolated in this experience. In 2020 I started to become unable to walk after a few minutes, my lower back on the right side would get tight, moving to left…
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Colitis
My colitis has started and I've not been well all day . Hardly anything to eat and feeling really low. Despite medication it still doesn't feel very nice at all .
