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EUPD / BPD

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letitbe
letitbe Community member Posts: 469 Pioneering

is anyone diagnosed with this ? I’ve read and been told that it gets better with age but mine has got worse . It’s a really tiring horrible MH condition because of all the instability it causes . Be good to hear any stories of anyone that has this .

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  • Meg24
    Meg24 Community member Posts: 222 Pioneering
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    Have you looked into the features of CPTSD? It gets misdiagnosed as BPD a lot because CPTSD is a fairly new diagnosis borne out of the trauma informed/attachment theory side of things.

    CPTSD can worsen with age or without treatment is probably more accurate.

  • letitbe
    letitbe Community member Posts: 469 Pioneering
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    hi , no never really looked into that but I’ll def have a read . TBH they have given me quite a few diagnosis and I’m actually thinking of paying for a private psychiatric session to go through it all .

  • Jimm_Scope
    Jimm_Scope Posts: 3,700 Disability Gamechanger
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    My partner was very worried she may have had BPD, but after finally get an actual psychiatrists appointment she's been diagnosed with Emotional Dis-regulation Disorder. Apparently the symptoms can be quite similar but there are distinct differences which escape me just now as it was several months ago now that we went into it.

    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
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  • letitbe
    letitbe Community member Posts: 469 Pioneering
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    hi Jimm

    Emotional dis regulation disorder and BPD ( borderline personality disorder ) are the same thing , it’s also call EUPD ( emotionally unstable personality disorder )

    TBH I think emotional dysregulation disorder is a much better name to describe this .

  • letitbe
    letitbe Community member Posts: 469 Pioneering
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    if they are different please let me know what the differences are , from what I’ve read they are all the same .

  • Jimm_Scope
    Jimm_Scope Posts: 3,700 Disability Gamechanger
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    From what I understand, everyone with BPD experiences emotional dysregulation, but not everyone with emotional dysregulation has BPD. My partner didn't "tick any of the other boxes for BPD", from what I remember the psychiatrist saying. She only has emotional dysregulation, so doesn't have BPD.

    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
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  • letitbe
    letitbe Community member Posts: 469 Pioneering
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  • skyladawn
    skyladawn Community member Posts: 45 Courageous
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    hi I have bpd I’m 56, not sure if it gets better with age though, sometimes I think I’m worse with somethings than I was when I was younger especially the black and white thinking

  • letitbe
    letitbe Community member Posts: 469 Pioneering
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    yes , mine seems to have got more intense the older I get, all my meds do is over sedate me .

  • skyladawn
    skyladawn Community member Posts: 45 Courageous
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    @letitbe im not taking anything atm seen psychiatrist today and now he wants me to be assessed for adhd and autism 🤦🏼‍♀️🤷🏼‍♀️

  • letitbe
    letitbe Community member Posts: 469 Pioneering
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    how do u feel about that ? Is this an nhs psychiatrist?

  • skyladawn
    skyladawn Community member Posts: 45 Courageous
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    yeah nhs, tbh I actually think they are trying to give me a diagnosis that is easier for them to deal with if that makes sense

  • letitbe
    letitbe Community member Posts: 469 Pioneering
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    Yeah that makes sense - I don’t think they like dealing with BPD because it can be really hard to get under control unless they really over sedate you .
    Are you under a CMHT or had any therapy for it ?

  • skyladawn
    skyladawn Community member Posts: 45 Courageous
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    exactly

    Yeah under cmht well for now until they see what comes back from the assessment

    I have asked for dbt/cbt but they won’t let me do it as I’m not medicated

    Had a few “talking “ sessions with a mental health coach but felt it was pointless as it was the same thing every time and didn’t really get anywhere

  • letitbe
    letitbe Community member Posts: 469 Pioneering
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    I hope your CMHT are better than mine , mine have actually made me worse and I think I’ll be discharged any day now because I’ve literally shouted and screamed at everyone one I’ve spoken to there so they’ll be thankful to get shot of me .
    I can’t believe they are saying no DBT/MBT because you’re not medicated , it seems like an excuse to me.
    I have had a few years of nhs therapy for it but now I’m getting pip I’m using part of it to pay for private therapy. Have you never been given meds to help ?

  • skyladawn
    skyladawn Community member Posts: 45 Courageous
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    no better than yours by the sounds of it. That’s what gets me though they know how bpd effects people but when they see it first hand they are quick to dismiss us, major trigger, and not offer the help we actually need. Hopefully they will keep you on, yeah that’s why I think they are trying the adhd/autism route as it’s less work for them 😂

    I’ve looked for therapists but tbh by the time I find one I think I will call I’m back to the stage where I think I’m ok

    The only meds I’ve been on and off of since about 17yr old are antidepressants think I’ve tried them all

  • letitbe
    letitbe Community member Posts: 469 Pioneering
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    exactly , things change so quick with this BPD .
    TBH I don’t mind if they discharge me now - I’ve absolutely had enough of them, you’re absolutely right about them dismissing us - it’s absolutely terrible.

    I can’t believe they are trying to get you another diagnosis because it’ll be easier for them - terrible !

  • skyladawn
    skyladawn Community member Posts: 45 Courageous
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    too quickly sometimes, i totally get where your coming from, you ask for help and nothing then they wonder why you have reacted the way you have, erm hello you diagnosed me with bpd 😂

    Oh I can believe it and while I’m waiting for the assessment I’ve been told that I don’t need appointments with the cmht, so now on paper it looks like they have done their job so to speak

    I really hope that you get the help you need

  • letitbe
    letitbe Community member Posts: 469 Pioneering
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    thank you , I hope you do too .
    We Got to try and keep pushing through the constant instability .
    thank you for responding :)

  • skyladawn
    skyladawn Community member Posts: 45 Courageous
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    your welcome and thank you too

    💯 we have to, as much as it tries this ain’t taking us down 💪🏻💪🏻

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