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Tips on Dealing with Home Nursing Staff
We have a community nursing package for our eldest child. We are very greatful to recieve this, as we know many people dont, and should. Our oldest needs 24/7 Care and suffers with Around 60 to 160 fits a day. He is now 17 years old.
Since the nursing package has been introduced, we have been met with issue after issue after issue with them. We were lucky to have an amazing OT and each time the nursing team came up with a reason not to be able to do something with him, (Let him sit on a Toilet one example, ) the OT sorted out the issues and provided equipment to enable them to do that. A swan seat for the toilet, hand rails, slide sheets, a specialist bath, Hoists, all sorts.
The thing is, now his room is more like a Hospital Ward, and we now find that when the nursing team is in the house, we are hiding away, and when they have gone, we are going round picking things up, putting things back where they should be, and forever fixing things they break.
We have complained, and my wife is now at her wits end, and all ready to tell them to get out and never come back, but he is due to go into Adult services, and if we did that we would enter that with no care, and in turn no chance of getting any.
Its just our home, doesn't feel like ours any more. Does anyone else get this. And have you any tips on how you delt with it.