If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Any help on explaining CP to my son ?
Options
lizz
Community member Posts: 2 Listener
Hi this is my first post and i hope someone might be able to give me some advise , my son is now 10yrs he was born prem at 24wks he has mild Diplegic Cerebal Palsy on his left side {is able to cope with level surfaces and climbing stairs with hand rail going down can be a challange along with moving in groups or uneven flooring } he has vocal cord paralysis is means he is very quite too. He is in a special needs school and tries really hard to keep up with the school day but he get very tired and gets upset he cant run and play football like the other boys. I think school dont quite understand how exhausted he gets but i dont know if this is due to CP or beacuse he is just growing so very tall { we have had blood tests and awaiting results} .If any one has any advise it would be very much appreciated
Comments
-
Hi Lizz and welcome to the community! My daughter is 10 and has cp but is a wheelchair user. She also gets very tired. This is as a result of the type of cp she has - dystonic quadriplegia which means she is constantly moving from low to high tone. This also means she is always hungry and needs to consume about 30% more calories a day than her peers! In terms of speaking to your son about his condition, we explained to Maria that she was ill as a baby and that affected parts of her brain that control movement and speech and that's why she can't walk or speak. However she is able to get about in her wheelchair and uses a communication aid as her voice. She knows that she has cp and knows others with the same condition. We also made sure the school and others around her said the same so not to confuse or upset her. It's important you maintain consistency in how everyone speaks about her disability I think.
Are there activities the school can introduce that would better include your son and his friends? Boccie for eg? And they should be looking at ways to facilitate his friendships so that he doesn't feel excluded. Maria is in a mainstream school so vast difference between what she is physically able to do and her peers but she practises her wheelchair driving or uses her walker when they are doing PE in the playground so they are all together or she referees some games. Talk to the school, maybe they don't realise he is unhappy? Hope it gets better.
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 104 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.