Find out how to let us know if you're concerned about another member's safety.
Hi, my name is lynw!
Comments
-
Hello!
I am fairly new to this group but wanted to tell my story
and hopefully get some feedback from you all. Tragically my youngest son (I
have 3) had a near drowning accident when he was 17months old. As a result he
is now severely disabled, within minutes my whole world changed and I found
myself in the daunting world of disability. It has been and still is a very
tough journey. My son cannot walk or talk and is peg fed and suffers daily from seizures and
spasms...but he is still my beautiful little boy and my focus is to make each
day the best it can be for him. One of the many things that struck me was the
lack of clothing for children in wheelchairs and with gastrostomys and other
needs…with a background in luxury fashion I decided to have a go at putting
together a high quality, funky clothes label for children with additional
needs. So…I would be really grateful to get any feedback from you on your clothing
frustrations so that I can really focus on what these children really need. The
first Item I am working on is a bodysuit/all in one that allows access to gastrostomys(different
to the designs currently on the market), prevents wandering hands, provides comfort
when in a wheelchair and looks GREAT…so think Breton stripes, cool prints and
soft fabrics with no labels and flat seams!
ANY feedback would be great! -
Fantastic idea about the clothes, please make sure you let us know what you come up with. I look after a couple of little ones who have incredibly high muscle tone, and we really struggle with getting dressed - coats that open at the back are very useful indeed.
Brightness
Categories
- All Categories
- 13.3K Start here and say hello!
- 7K Coffee lounge
- 101 Games lounge
- 483 Cost of living
- 4.6K Disability rights and campaigning
- 1.9K Research and opportunities
- 230 Community updates
- 9.6K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 807 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 666 Dating, sex, and relationships
- 374 Exercise and accessible facilities
- 845 Transport and travel
- 32K Talk about money
- 4.6K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.2K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.4K Talk about your impairment
- 1.8K Cerebral palsy
- 886 Chronic pain and pain management
- 183 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.3K Mental health and wellbeing
- 328 Sensory impairments
- 832 Rare, invisible, and undiagnosed conditions