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Hi, my name is FightingFreedom!
FightingFreedom
Member Posts: 1
I'm 20 (turn 21 next week) I've always been unwell but it never dictated my life but over the last 18 months it's descented and I've had complications we didn't foreseen. I have EDS and POTS/Bladder failure and cardiac and respiratory problems plus many others but it has now took over my life making me very sick and losing so much of my independence/dignity and just life of a 21 year old to a point that has meant I've become fully wheelchair bound can't even stand at moment and only have a small chance of learning to walk again but even that might be years away and I have a long term SPC and a multitude of medical problems. I've spent the last months in hospital and adapting back home and to a life with carers, nurses and relying on everyone else for nearly everything makes me feel so frustrated. My friends don't understand and just don't get it. I don't have anyone around who is similar to me/or in wheelchair so I was hoping to find people who might understand and bit of support.