Dystonia- anyone else? — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.
Please read our updated community house rules and community guidelines.

Dystonia- anyone else?

Options
strongsurvivor82
strongsurvivor82 Community member Posts: 3 Listener
in Cerebral palsy
Hi I suffer with generalised dystonia due to a reaction to psych meds years ago. My case is fairly mild so I feel very blessed but it still affects my life in ways one might not think of. The muscle spasms and risk of falling due to balance issues are quite debilitating. I find it hard to cope with peoples` reactions. So little is known about it?
· Share on FacebookShare on Twitter

Comments

  • BexK
    BexK Community member Posts: 3 Connected
    Options
    :) Hello. I have athetoid CP, which is similar to dystonia.  I have multiple difficulties including speech difficulties but I also have difficulty with walking and balance.  ditto people's reactions as well! I never know what to expect when I meet new people.  happy to chat if you want. :-)
    · Share on FacebookShare on Twitter

Brightness

Categories

Complete our feedback form and tell us how we can make the community better.