Mummy seeking adivce — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.

Mummy seeking adivce

Hi everyone I have just joined this community as I need some advice.
I had my son last year at 25 weeks we've had a roller coaster of a year, but he has done amazingly well, we started physio a couple of months ago and I can tell by het responses that she thinks something is wrong but she won't say. When she left today I just cried and cried thinking that I just want someone to tell me what's wrong. My consultant did the same thing a couple of months ago.
We have had so much bad news first finding out he has a profound hearing loss and now possibly cerebral palsy. He still can't use his hands properly due to high tone but has progressed so much lately I thought maybe I was being worried for nothing. 
Has anyone else had problems with muscle tone and what the outcome was?? 
Thanks 

Comments

  • dannybrownlow
    dannybrownlow Member Posts: 2
    Hi, my daughter was born at 23 weeks and we where in exactly in the same situation as you find yourself in. She was eventually diagnosed with cerebral palsy but not until she was nearly four years old the doctors and consultants would never give us a definite answer. All I can say is to just keep strong and pushing to get the right help for your son. Keep the physio going it really does help, ask about getting an occupational therapist involved they can help provide specialist equipment for your son who I am sure will flourish no matter what obstacles he has to face.
  • Jennydavidson1904
    Jennydavidson1904 Member Posts: 2
    Thank you for responding, I won't let them fob me off for long lol just having one of those doubtful days where I worry about eveything and cry....I have an app with my neonatologist next week I have stored up questions and taking my husband too so he can ask as well x

Brightness

Complete our feedback form and tell us how we can make the community better.