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Hi, my name is Hypermobilecat!

SystemSystem Posts: 489 Scope community team
This discussion was created from comments split from: Hi, my name is jackiebri!.

Replies

  • hypermobilecathypermobilecat Member Posts: 12
    hello, just joined ,have a lot of different things going on I am 57 and my health/disability got worse age 43. my husband is now my carer, unfortunately my children have same genectic condition as me ,ehler danlos syndrome type 3. my youngest age 17 also has bleeding disorder and heart condition, currently under childrens hospital and having transistion over to rare diseases unit next year. my son age 25,working but has to pace himself,work then rest. he tried working two jobs, but even though he did well, he looked ill and was sent home. he does about 21 to 28 hours per week. I have got enlarged lymph nodes on my lungs which havent gone away. lung biopsy is suggested, but dont know if it is safe. get really fatigued a lot and funny pains with breathing trouble. I guess a lot of people on here have a lot of different things healthwise going on .
  • Chris_ScopeChris_Scope Member Posts: 695 Pioneering
    Hi Hypermobilecat, welcome to the community, I hope you find it helpful and supportive. Do take a look at the categories page, and if you need any advice or just want to share your experiences with the community, please don't hesitate to start a new discussion.
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