Undiagnosed and rare conditions
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Feel so ill and unwell

shelby1066shelby1066 Member Posts: 8 Listener
Hi I have been recently unwell. Under 5 different specialists. Being told could be ms. Could be parakinson. Could be huntintons. Could be fibromyglia. Could be toxins. Which may have damaged my kidneys. On top of this going through menopause.  Feel so I'll and unwell. Gp was awful telling me it's all in my head. When he was one who prescribed antibiotics which I am not allowed to take causing toxins to build up. Now have blue badge and radar key which was surprisingly easy to get and being assessed for pip 


  • mossycowmossycow Member Posts: 495 Pioneering
    Really sorry you are so unwell. Awful. If you need help with PIP etc the helpline is really good. 

    "I'm trying to live like a random poem I read that ended 'to bloom where we are planted"

  • wildlifewildlife Member Posts: 1,314 Pioneering
    So sorry to hear this Shelby. I'm the same. I have regular blood tests but nothing shows up. My body is just giving up slowly and painfully. Hope you can get a proper diagnosis soon and get some help. That will help your PIP claim too..  
  • dysautomia90dysautomia90 Member Posts: 6 Listener
    Hope today is better day . I have dysautomia my doctor still says it in my head even though i got proper doctor dignous .i also have somthing still undignoused hope u get help support u need soon 
  • tet1tet1 Member Posts: 7 Listener
    I know the fight to get conditions diagnose its very frustrating but hang in their and good luck with you're pip claim
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    I'm sorry to hear you're suffering, @shelby1066. Like many of the others who've replied to your post, I've experienced being told my condition is 'all in my head' too and know how frustrating it is, especially when you're feeling so poorly.

    For what it's worth I really hope you find some answers soon, and best of luck with your upcoming assessment. Let us know if we can be of any assistance!
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