spinocerebella ataxia

Julesredshoes

I have SCA and sleep apnea, depression but I'm still fighting xx

steve51

Hi @Julesredshoes

It's great to meet you this evening.

Yes that's the right way to be within our dis "able" d world !!!!!!

Please please jump in & have a good look around as there is a "richness" off "info & advice" at your finger tips !!!!!!!!!!

If you need any help or advice please "knock" on my "door"

Sam_Alumni

Hi @Julesredshoes welcome to the community, do you want to tell us a bit more about yourself?

Julesredshoes

I'm a 5'5" bleach blond office manager, diagnosed with late onset spinocerebella ataxia of unknown origin around 5 years ago. Lots of tests, seen many specialists and am proud to say that my DNA is housed in London where it is tested every  time a new strain of SCA is discovered. To keep my SCA company, I was diagnosed with sleep apnea last year and use a CPAP machine at night, I have depression and am undergoing CBT at the moment. Gosh what a bundle of fun! Always fighting and defending what is seen as an invisible disability, I am a warrior!

Sam_Alumni

Thanks @Julesredshoes - take a look around the community, jump in and get involved! Let me know if you have any questions