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spinocerebella ataxia

JulesredshoesJulesredshoes Member Posts: 2 Listener
edited October 2017 in Undiagnosed and rare conditions
I have SCA and sleep apnea, depression but I'm still fighting xx
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Replies

  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @Julesredshoes

    It's great to meet you this evening.

    Yes that's the right way to be within our dis "able" d world !!!!!!

    Please please jump in & have a good look around as there is a "richness" off "info & advice" at your finger tips !!!!!!!!!!

    If you need any help or advice please "knock" on my "door"




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  • Sam_ScopeSam_Scope Member Posts: 7,732 Disability Gamechanger
    Hi @Julesredshoes welcome to the community, do you want to tell us a bit more about yourself?
    Scope
    Senior online community officer
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  • JulesredshoesJulesredshoes Member Posts: 2 Listener
    I'm a 5'5" bleach blond office manager, diagnosed with late onset spinocerebella ataxia of unknown origin around 5 years ago. Lots of tests, seen many specialists and am proud to say that my DNA is housed in London where it is tested every  time a new strain of SCA is discovered. To keep my SCA company, I was diagnosed with sleep apnea last year and use a CPAP machine at night, I have depression and am undergoing CBT at the moment. Gosh what a bundle of fun! Always fighting and defending what is seen as an invisible disability, I am a warrior!
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  • Sam_ScopeSam_Scope Member Posts: 7,732 Disability Gamechanger
    Thanks @Julesredshoes - take a look around the community, jump in and get involved! Let me know if you have any questions :)
    Scope
    Senior online community officer
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