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hi guys....right I’m gonna tell you....I have Fibromyalgia, Agoraphobia, Anxiety, Panic Attack’s, musculoskeletal issues in hips and back, Raynaud Phenomena, Hypothyroidism, Diabetes and a few other bits and bobs which are caused by the Fibromyalgia. I struggle so much on a daily basis but I am very lucky as I have my parents, children and sister and friends who do almost everything for me. My eldest daughter is my carer. I had highest rate mobility and higher rate care elements of pip. I do leave my house but only if I have 1 or more of my family with me as they are my support and I wouldn’t leave the safety of my house at all. I have a mobility car which is my only source of independence. I had my PIP assessment in June and I haven’t heard anything and as my payments were still ok so I assumed everything was the same until Friday I received a letter from Motability that I have to hand my car back on the 27th November 2017. I have only had the car for a year and I put £1800 deposit on it. So I rung PIP and they have said they can see that I haven’t had a letter. The assessor was only around 25 and she really looked down on me. She has decided that I only need the standard rate which is ridiculous as I’m worse now than when I had my very first assessment. So they have said I can appeal and they can see I had no letter telling me what the assessor had decided and no letter telling me my money had changed. Please can someone tell me where I stand and what I can do....I’m desperate and it’s making me so ill. Thanks Roseanne
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