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Pip stopped but getting worse

Hi I've recently had my pip stopped. I suffered a massive csf leak 3 years ago and my gp misdiagnosed it and I went 18 days without fluid around my brain. My neurologist doesn't help my situation because he doesn't have a clue. Over the last year my symptoms have got worse but yet they stop my pip. Any advice would be appreciated. Thanks
Replies
You have one month to challenge your PIP decision via a mandatory reconsideration. There is nothing to be lost from doing this. Some people recommend doing a new claim as well but the benefits of doing this vary from case to case and it will time-limit any award from your first claim to the day before your new claim and cause problems with inconsistent awards and multiple claims if the new claim fails as well. Best to start with the MR.
Also worth getting a copy of your report and seeing whether there is anything worth a complaint. There usually is.
Really sorry to hear, must be so frustrating. Go for it, and best of luck.
"I'm trying to live like a random poem I read that ended 'to bloom where we are planted"
Tribunals are impartial and only interested in what you can and can't do. It is not your condition that get you PIP points but how your condition affects you, i.e. the disabilities it causes.
Disability Rights (DR) site has a good guide to PIP appeals. Below is what I posted the other day about PIP points and aids - which might be of some help.
"This is just by way of info about why people are awarded PIP points, which might help those applying for PIP, asking for mandatory reconsideration and appealing to a tribunal.
The correct position is much more nuanced and complex and has nothing to do with a week at all. It is nicely summarised by CPAG at http://www.cpag.org.uk/content/ask-cpag-online-have-frequency-rules-been-properly-applied