What benefits am I entitled to?
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The DWP doesnt recognise my illness

shaggy69shaggy69 Member Posts: 1 Listener
What to do if the d w p do not recognise my illness for which there is no cure 

Replies

  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    Hi shaggy and welcome

    Can you tell us a bit more about you and your illness ?
    There are many hidden illnesses which can be hard to quantify
    Do you have a diagnosis and a supportive GP ?

    there is lots of info on this site so please have a look round and come back with your questions

    CR
    Be all you can be, make  every day count. Namaste
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,731 Disability Gamechanger
    Hi @shaggy69
    Welcome to the community, as @CockneyRebel says, can you give us a bit more information about your diagnosis and what the DWP have said and we can see if we can help :)
    Scope
    Senior online community officer
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Hi @shaggy69, how are you getting on?
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @shaggy69

    Welcome to our online community/family.

    Please please let me how you are getting on????

    I think that I’m going to be in the same boat (ship) my friend.

    Let’s just say that they won’t be able to spell it in the first place.

    Please please let me know if I can help you further ?????

    Thanks.
  • mossycowmossycow Member Posts: 495 Pioneering
    Hi there, the benefits processes are a bit tricky if you have a difficult or no diagnosis. But the questions are more about how your life is.

    I asked my doctor what to write I'm the 'what condition do you have?' bit. 

    But then it asks things like 'can you manage to cook a meal?' or 'can you walk 5 bus lengths' or something like that. Which you will know the answers to better than 'what is your illness' if that makes sense. 

    But mostly @shaggy69 you ARE entitled to help and benefits so do feel confident in claiming. Ypu are a valued part of out society so society will help you out ☺ 

    "I'm trying to live like a random poem I read that ended 'to bloom where we are planted"

  • NystagmiteNystagmite Member Posts: 609 Pioneering
    You're not the only one.

    And that is what happens when you have a rare, misunderstood, midden disability.
  • Alison68Alison68 Member Posts: 4 Listener
    Totally agree,the Health Professional who assessed me said she had to look up PBC Primary Biliary cholangitis,it’s your immune system attacking your liver and destroying cells.
    The doctor at my PIP appeal didn’t give me chance to explain how it was for me Day to day.
    I don’t think she would have ever seen anyone with PBC AIH or AIHA all Autoimmune.
    It was a dreadful experience of not been listen too or heard and shot down.
  • stephenjohnstephenjohn Member Posts: 44 Courageous
        Most of us who have been to appeal have been ignored or spoken too in a manner that was upsetting,at our appeal a man from the dwp was in the waiting room pretending to read a newspaper ,I was astounded when he turned up in court .......it totally unfair that any truly disabled person is treated this way ,something like 60% of all appeals are given in the claimants favour which mean the dwp only get it right in 40  out of 100 cases ....
  • tommtomm Member Posts: 231 Pioneering
    edited February 2018
    Sadly there are some people out there who do swing the lead  and make things up  even getting clinical evidence  to back their claims up, The DWP allow this to cloud their judgement of genuine cases so the rest of us suffer  their sometimes  exesive scrutiny 
  • mikehughescqmikehughescq Member Posts: 5,929 Disability Gamechanger
    tomm said:
    Sadly there are some people out there who do swing the lead  and make things up  even getting clinical evidence  to back their claims up, The DWP allow this to cloud their judgement of genuine cases so the rest of us suffer  their sometimes  exesive scrutiny 
    Evidence of fraud generally is hugely overstated by DWP and the media and yet everyone “knows someone”. The phrases “invisible impairment” and “walk a mile in my shoes” go out of the window at that point. Evidence of PIP. fraud at this point in time is somewhere between negligible to nil. In my experience, closer to nil. 

    Government and the media enjoy the sick and disabled b;among each other for their problems rather than them. I’d rather focus on problems with the process.
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