Undiagnosed and rare conditions
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jojoelliottjojoelliott Member Posts: 1 Listener
Hi i'm new here. I;ve been diagnosed with sarcoidosis, does anybody else on here suffer with it?


  • JennysDadJennysDad Member Posts: 2,308 Disability Gamechanger
    Hi @jojoelliott, and welcome to the community. Glad to have you with us.

    I ran a quick search on the site and did not find sarcoidosis referred to, but that may have to do with my search terms, or the way our search functions. There will certainly be people on here with similar conditions, experiencing similar difficulties - practical, financial and mental - and pain. And you are safe here and among friends. There are plenty who will listen and who will try to offer you any support they can. Just talk to us about what you need.

    And you might like to look, too, at the Sarcoidosis UK site as an additional resources.

    Hoping some of this helps. Hope we will get to know you better,
    Warmest best wishes,

  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Hi @jojoelliott, and welcome to the community!

    You may like to chat with @Bikernut, who has mentioned sarcoidosis in the past, but Richard is right in that it's not something that we frequently hear about on the community. Would you like to tell us some more about it? 
  • Dulcie60Dulcie60 Member Posts: 1 Listener
    Hello I am new member here but a long time suffering with sarcoidosis and osteoporosis .
  • janer1967janer1967 Member Posts: 11,170 Disability Gamechanger

    Welcome to the community 

    This is an old post from 2018 so the original posters may no longer be active members 

    You could be better starting a new post yourself 

    Feel free to join in though you may find our recent discussions section more relevant 
  • chiariedschiarieds Community Co-Production Group Posts: 9,141 Disability Gamechanger
    Hi @Dulcie60 - welcome to the community & thank you for joining. How are you today? :)
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