Baclofen pump — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

Baclofen pump

System Posts: 593

Scope community team

edited May 2018 in Cerebral palsy
This discussion was created from comments split from: Baclofen.


  • Globster
    Globster Community Co-Production Group Posts: 847 Pioneering
    edited May 2018
    I am a 30-year young man with CP, I use to have a baclofen pump four years, but it was taken out because got infected. 

    I am now 90g of oral baclofen tablets 3 times a day as well 100g gabapentin tablets 4 times a day, but this does not seem to be helping with back spasms and spasms in my legs. 

    I would like to know if anyone has had the baclofen pump put back in and it has improved your life. I really appreciate anyone advise. 
  • Richard_Scope
    Richard_Scope Posts: 2,914

    Scope community team

    Hi @Globster
    Welcome to the Community and thanks for your post. I'm sorry to read that you have had to have the Baclofen pump removed. Have you contacted your G.P. since the removal to explain that the oral medication is not providing you with the same benefit? It is also important that you discuss whether re-insertion is viable. 

    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • Jean_OT
    Jean_OT Member Posts: 513 Pioneering

    Hi @Globster

    Welcome to the community.

    Sorry to hear that finding a solution to manage your spasms is being problematic.

    Totally agree with Richard that talking to your GP is the starting point. GP will probably need to refer you back to the consultant to discuss if another pump is possible, or of other things (like botox for example) might be an option. In the meantime can your GP urgently refer you for physio, etc to help manage day-to-day?

    The pumps are made by Medtronic, they have an interesting website:

    Most people that have been on IB for any length of time will have had several pumps as they have to be replaced every 4-7 years. So maybe the question is more to do with if another pump would be safe/suitable for you considering your individual clinical circumstances (including infection risk).

    Best Wishes


    Jean Merrilees BSc MRCOT

    You can read more of my posts at:

  • Globster
    Globster Community Co-Production Group Posts: 847 Pioneering
    Hello Richard and Jean 
    I really appreciate all your advice from you both.
    I have recently spoken to my consultant who gives botox injections in legs and right hand and hand, who has referred back to the consultant who deals with the baclofen pump, but I bit scared about having the pump put back in.  


Do you need advice on your energy costs?

Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.