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Dr Alan Hakim/Hypermobility Clinic

Has anyone been seen by Dr Alan Hakim or been referred to the hypermobility clinic in London?
I'm already diagnosed with EDS and was referred to him at the request of my mum (don't ask), however I'm not sure what he's going to be able to offer? I've also heard some mixed reviews on him, so looking for some reassurance I think!
I'm already diagnosed with EDS and was referred to him at the request of my mum (don't ask), however I'm not sure what he's going to be able to offer? I've also heard some mixed reviews on him, so looking for some reassurance I think!
confessionsofazebra.blog
Replies
If you already have a diagnosis then it's likely this won't be the focus of the appointment unless there's any doubt your diagnosis is correct? Chances are you'll end up discussing how you manage your symptoms and if any other referrals are appropriate, e.g. gastro, physiotherapy, cardiology, occupational therapy etc.
Not sure what you/your mum is hoping to get out of the appointment but if you have any specific questions I'd be happy to answer them. As well as living with hEDS myself I work with a LOT of EDSers in my Occupational Therapy practice and I work closely with the HMSA
Best of luck! Hope it goes well
Independent Occupational Therapist | Public Speaker | Accessible Adventurer