Son has been diagnosed with mild spastic Cerebral Palsy — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.

Son has been diagnosed with mild spastic Cerebral Palsy

System
System Posts: 761 Scope online community team
This discussion was created from comments split from: Son has just been diagnosed with mild spastic cerebral palsy..

Comments

  • katg77
    katg77 Member Posts: 3 Listener
    edited June 2018
    I am the mother of a 19 year old boy who has just been diagnosed with mild Spastic cerebral Pulse. It only affects his legs but due to the stiffness of the muscles his feet have twisted and deformed. Walking is difficult and painful for him.  He has become very closed off and we don’t know what help is avalible or where we should go from here. 

    Thanks for listening ?
  • Richard_Scope
    Richard_Scope Posts: 3,178 Scope online community team
    Hi @katg77
    Welcome to our community and good to meet you.
    Receiving a diagnosis can be a very difficult time and hard to come to terms with. There are things that can help to ease the muscle stiffness such as physiotherapy and hydrotherapy. Have any of these been offered to your son?

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • katg77
    katg77 Member Posts: 3 Listener
    Hi Richard. Thank you for replying to my post. It is hard coming to terms with a diagnosis or both of us. 
    My son attending Physio and a sees a occupational therapist @ Greenock who has helped a lot. He has not been offered hydrotherapy yet but that is something which I can bring up. We live in a small town with most services hours away.  
    Baclofen, insoles and a splint for bed is being used at the moment. 

Brightness

Complete our feedback form and tell us how we can make the community better.