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Multiple Systems Atrophy ( MSA)
CaroleR
Member Posts: 2 Listener
Hi , I am caring for my husband who has this horrible neurological disease (MSA). It is very rare and as yet no treatment is available . I would like to contact any other sufferers and seek any help in how to cope with the condition .
Thanks
Carole
Thanks
Carole
Replies
Welcome to the community. Sorry I don't have any direct experience of your husband's condition. Hopefully other members of this community will be more helpful but as you say the condition is pretty rare. Have you made contact with https://www.msatrust.org.uk/ ?
Best Wishes
Jean
Jean Merrilees BSc MRCOT
You can read more of my posts at: https://community.scope.org.uk/categories/ask-an-occupational-therapist
Thanks for your prompt reply .My husband has contacted msa trust and is a regular participant and follower of their suggestions . I think it helps him to feel that he is not entire alone.
Regards
Carole
I've had a look through our forum and members and you appear to be the first person to discuss MSA on the community. I'll share this around but in the meantime, would you like to tell us some more about your/ your husband's experiences?
you can go to the libery they have special books on rare conditions.just ask.