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Anybody else with RA?

System
System Posts: 702

Scope community team
edited November 2018 in Disability rights and campaigning
This discussion was created from comments split from: Hi, my name is Robbo1965!.
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  • Robbo1965
    Robbo1965 Member Posts: 5 Listener
    Any advice from anyone who from sufferers of RA 
    my fingers and elbows are suffering really bad, I can’t pick a cup of tea up and the pain at nights are so bad it’s wakes me up
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  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,798 Disability Gamechanger
    Hi @Robbo1965,

    I'm so sorry to hear about your pain. This time of year always seems to be a tough one for those with similar conditions. I'm tagging in @ChrisKz, @Marley123 and @marie66 in case they have any tips they can share. 

    Have you spoken to your GP about your concerns?
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  • Gwendoline1
    Gwendoline1 Member Posts: 215 Pioneering
    Hiya Robbo1965, I’m the same, the last few days have been awful, I don’t know whether it’s because of the rain as well as the cold.
    Im sorry I’ve no suggestion. Just wanted you to know your not on your own.???
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  • WYnn
    WYnn Member Posts: 5 Listener
    Hi Robbie1985, I have had R/A for over 20 years, If you have not already seen your GP. Make an appointment, explain your symptoms, and ask for help.. If you have, and you are on Meds, it maybe that they need changing, or extra added to make you more comfortable, Hope this helps,.
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  • cracker
    cracker Member Posts: 324 Pioneering
    I have that. I am losing function in my hands because of it. Lots of bony growth and stiffness in hands and shoulders,, wrists. I do take medication, which doesn't seem to help.

    Warmth helps ease the pain.
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  • Gwendoline1
    Gwendoline1 Member Posts: 215 Pioneering
    Hiya cracker,
    I also find the warmth helps a little too.
    I have the worse amount of bony growth in my feet, it’s not very nice is it.
    I take a variety of medication, nothing really helps with the pain to give a acceptable quality of life.
    Never mind, keep going I suppose haha.
    Take care and wrap up warm. ???

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  • Robbo1965
    Robbo1965 Member Posts: 5 Listener
    Thank you all for advise, spoken to my RA nurse and I am thinking about steroid injection, she thinks this will help, has anybody had steroid injections for there RA
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  • sette
    sette Member Posts: 1 Listener
    I just wanna share my experience in medical marijuana and it helps me deal with my health conditions. I've been suffering from chronic pain for how many years, but then when I learned that medical marijuana can help and cure sickness such mine like this article about a marijuana strain kylekushman.com/first-place-seattle-us-cup/. Cbd and thc are also new to me and I don’t even smoke. 
    If this is true I can't find any solid conclusive evidence that speaks to its efficacy.
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