Disabled people
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Feeling like a burden

SystemSystem Posts: 544

Scope community team

edited December 2018 in Disabled people
This discussion was created from comments split from: Hi, my name is cheryl_lucy!.


  • cheryl_lucycheryl_lucy Member Posts: 4 Listener
    Having a really rough time with my conditions and my support workers can t cope. Now only have 1 lady. I can't put everything into her so staying with my grandparents for next few weeks, and have a couple of friends coming and taking me out here and there. But I feel I am a burden on them... I know they keep saying I'm not. I feel I can't cope on my own, and I'm petrified that the lad I had to sack last week, due to conduct issues,not the 1st time. 
    That's why I've come to stay with grandparents as it's 40miles away and they here all the time. 

    I know I shouldn't let him drive me from my home but I need to look after myself first. 
    I will go home in the new year,but I am also looking at moving back closer to family. Can't find staff where I am as they personal assistant, but nearer family i already have people prepared to help. But then I have the issues with moving and finding somewhere to live. Just feel like everything is never gonna get some as it all just falls onto something else. 
    I know I can only do my best,but I just feel like I'm swimming against the tide and getting battered and tired. I don't know what I expect from anyone here, but needed to get it out my head in case someone can help. 
    Gonna have lots of forms to fill in and lots of questions I don't understand... But I do have my mum and nan who are great at doing forms. 
    Just hope I can find somewhere for me and lucy to move to that will be nice and warm and somewhere we can make happy memories for 2019. 
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @cheryl_lucy

    Thank you very much for your post 

    I’m very very sorry to hear about your current problems!!!!

    Yes I would be more than happy in helping/supporting you.

    Please please let me know how you feel????
  • cheryl_lucycheryl_lucy Member Posts: 4 Listener
    Atm feeling a bit up and down.... Start new pain meds tomorrow so I expect my feelings to go down hill,due to pain on the transfer, but may be pleasantly surprised. 
    It's been a hard day today, and haven t achieved much as yesterday I over did it, shopping for stuff I need at grandparents,food meds dog food for lucy. But yet again Don t get everything from same shop. So it's in and out the car and wheelchair and thethenn i had a seizure... Luckily was in the car and Charlotte kept me safe.But it took it outta me. 
    So today I slept till after 12,mum fed lucy as I couldnt. And I managed to get washed and changed about 230! It's just been an off day, but the more I have the worse I feel. So I have to try and do stuff so I don't fall into trap of a sprial down hill. 
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @cheryl_lucy Sorry you are in a bad way.

    Is there anything I can suggest or give you advice on.

    One thing may I ask you do shopping. Is it possible for you to look on line shopping.

    Might help something to consider.

    I get stressed, anxious going to places.

    Just a thought reason why use online shops.

    You having issues with forms and anything related consider speaking CAB. I use them for form filling in and know they have expertise, knowledge on benefits or anything else.

    Having some one talking to you and explaining anything can be helpful and useful.

    Only helpful ideas and suggestions, sorry also about the problems you have experienced with any support you have.

    I am here as one of the team of community champions. Happy to help and assist .If you wish to. With anything. Information, advice and guidance.

    Pleasure to meet you.

    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @cheryl_lucy

    Yes it’s like a “roller coaster” 

    The more you do the worse things get.

    Mind you it’s a case of “managing” things.

    Very much like you have done today!!!!!

    It will be well worth it “tomorrow” believe me.

    Have a good sleep 💤 💤💤
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    I'm so sorry to hear things are tough at the moment, @cheryl_lucy. Does your GP know about your current care/support situation?

    It's really good to hear that you have supportive family around you, and I hope it helps to know that you're among others who understand here on the community too. I'm sure many of our members will be able to empathise, and are wishing you all the best. Please do keep us updated!
  • crackercracker Member Posts: 324 Pioneering
    In my experience, people are more than glad to help. I don't think you are a burden. Think of how you would feel if a family member or friend needed your help. You would probably feel good about being able to help.

    I am sorry you are under such stress and pain. I think you are working on it, and I am sure it will be resolved in time.

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