What part is the CP and what part is my mind?

System

This discussion was created from comments split from: Hi, I'm Mick, Ask me questions about mental health today.

lozzer25

Hello @MickConnon I was diagnosed with cerebral palsy when I was 25 I am 33 now I have been a baclofen since being diagnosed however the neurologist is saying that some of my symptoms are pyschosomatic how am I meant to determine what part is the cerebral palsy and what part is my mind? Proper confused 

Chloe_Scope

Hi @lozzer25, how are you doing? I can understand this being very confusing. Did your neurologist refer you onto anyone to try and reduce the psychosomatic element? 

lozzer25

No how am I meant to know what part is pyschosomatic I can't even have a intimate relationship with my partner  

Adrian_Scope

Hi @lozzer25. When are you next seeing your neurologist?

lozzer25

Hello Adrian I'm not seeing her im sick of being pushed from pillar to post im just getting on with it now 

Adrian_Scope

Sorry to hear that @lozzer25. Have you thought about going to your GP for a referral instead?

lozzer25

No I'm just leaving it now 

lozzer25

I keep getting I think it's foot drop my foot keeps dragging on the floor it's twice I've had it now 

Adrian_Scope

Hi @lozzer25. I know how stressful this must all be, especially as you feel like you're not getting any answers, but if you've got symptoms or concerns that need addressing it's really important you speak to someone. Unfortunately as we're not medical experts here we wouldn't be able to advise on your foot drop concerns but we're always here to listen. 

Are you and your partner getting any support from anywhere? 

lozzer25

Sorry Adrian thank you for replying I'm making a doctor's appointment tomorrow and all they will say is to increase my medication still doesn't stop it from happening again will just grin and bear it till it eventually decides to untighten itself 

Chloe_Scope

Hi @lozzer25, I hope you are able to make an appointment today. Is there anyway of seeing another doctor to gain a second opinion? I hope they can offer some other potential solutions

lozzer25

I'm sick of seeing doctors about it I've come to the realisation that nothing can be done will just grin and bare it till it goes away thank you Chloe I didn't make an appointment just going to ride it out it will sort itself out eventually x

Chloe_Scope

Hi @lozzer25, I can understand your frustrations around this and it must feel like you're going round in circles! If it persists I would advising seeing someone about it so it doesn't cause further damage.

lozzer25

That's exactly how it feels will see a doctor if it's not gone by next week x

Adrian_Scope

Let us know how it goes @lozzer25. I'm sorry you're having to go through this.

Chloe_Scope

Please do let us know how you get on @lozzer25

lozzer25

Thank you it went away after a week and then it come back on Saturday it's interfering with my work again I've tried exercising it do know what else I can and how many times it is going to happen but I'm just grinning and bearing it because if I go to the docs they will want me to temporarily increase my baclofen and then it goes and then it happens again don't want to keep increasing my tablets x

Chloe_Scope

Hi @lozzer25, thank you for taking the time to update us. Were you stressed around the time it came back? I can understand it being frustrating if it is interfering with your work.

How are you doing today?

lozzer25

No I wasn't Chloe I just got off the bus and it started happening again I think it's because my leg is weak and longer than the other x

Chloe_Scope

Ah okay, are you waiting for any physio at all? This may help to bring your strength back up

lozzer25

I've had physio I've been discharged don't think there is anything they can do 

Chloe_Scope

Hi @lozzer25, have you thought about getting a gym membership or going swimming? This could help strengthen the muscles as well