PIP, DLA and AA
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Renew Pip

debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
oh my goodness I got the dreaded brown envelope and my pip runs out in November. Help! Please! 😮
💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
I am a fibro warrior !💜♏️

Replies

  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    I’m just waiting on my letter too, was an appeal so waiting on letter to apply again. Anxiety through the roof x
  • April2018momApril2018mom Posts: 2,869 Member
    Hello!
    Call DWP tomorrow. Do you have a social worker or not? My son’s brilliant social worker helped me to fill out the forms and answered my questions as well. She kept me calm as I awaited a reply regarding their decision. Best wishes! You can find more information here on PIP renewals at https://www.turn2us.org.uk/Benefit-guides/Claiming-Personal-Independence-Payment/Review-or-renew-PIP-claim#guide-content

  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,

    There's no need to ring DWP tomorrow because you already have the form.

    I'd advise you to fill the form out with as much information as possible about how your conditions affect you. Adding a couple of real life examples of what happened the last time you attempted that activity for each descriptor that applies to you. If you're filling it out yourself then just do a little each day and then it won't be as bad. This is what i did with my daughters last form.

    Don't forget to send evidence with the form because they rarely contact anyone for this. If you don't have enough time to return the form, you can ring DWP to request a further 14 days.

    I'm assuming because you've only just received the form that you were awarded by a Tribunal? If so then, if a decision hasn't been made by the end date, your money will stop. Once a decision's been made, if you're successfully awarded your money will be backdated to the date it stopped.

    Expect another face to face assessment because most people have them, it's rare to have a paper based assessment.

    If you need help with the form this link will tell you what's available in your local area.

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    I just go a letter saying my pip award will end in November no form. I won the award at appeal. So I’m rather anxious. The cab helped me with it the first time around. Thanks 
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    I just go a letter saying my pip award will end in November no form. I won the award at appeal. So I’m rather anxious. The cab helped me with it the first time around. Thanks 
    You will need to ring DWP to re-apply, once this is done you'll be sent the PIP2 forms, which will need to be filled and returned with all your evidence.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    Thanks
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    I’m waiting on my forms and an appointment with welfare rights. I missed the postie on Friday so that’s probably the forms. 
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    Well I had my first appointment with wro today and I think it went OK. Forms filled to be posted out. Yay!
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    I got my form to complete, anxiety not good. Started filling out form but got to page 10 and had to stop. Think I need to find a wro 
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    Tried finding wro in Fife but just comes up with cab
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    susan48 said:
    Tried finding wro in Fife but just comes up with cab
    Try this link. https://advicelocal.uk/

    Do be aware of the timescales for returning the form. You can request an extra 14 days if needed. Advice centres are overrun with appointments and this makes waiting times rather long.

    The best person to fill out the forms really is yourself because you are the only one that knows how your conditions affect you. There's no specific wording to use, just tell it how it is. Adding a couple of examples of what happened the last time you attempted that activity for each descriptor that applies to you. Good luck.


    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • elle_telle_t Member Posts: 13 Listener
    Hi @susan48 I live in Scotland and was offered help through an income maximiser worker at local Social Work Department to help complete the forms because I found it difficult to write them out if that helps
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    I'm glad it all went well @debbiedo49!

    If you need any further information @susan48 then please do let us know. :)
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  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    susan48 said:
    I got my form to complete, anxiety not good. Started filling out form but got to page 10 and had to stop. Think I need to find a wro 
    Susan I couldn't open the envelope until just before my appointment so I understand x
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    susan48 said:
    Tried finding wro in Fife but just comes up with cab
    My wro works from local council they are called M A R T. As we are both in Scotland you may be same. Last time they went with me but this time that's stopped.
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • paffuto10paffuto10 Member Posts: 388 Pioneering
    Good luck to all who are going through it. 

    I have my f2f for PIP Renewal in 2 weeks. Aaaargh. .......

    They're certainly cutting it fine with me, it runs out in one month!!! 
    Aaaargh again!!! 

    Have to say though, they have been quite fair in offering me an alternative assessment centre with drop off point right outside the door. 
    Possibly because my MP asked them how non wheelchair claimants are supposed to gain access to previous building when the nearest drop off point was 70 metres walk away??!!  

    Dirty tricks abound, me thinks? 
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    Good luck!
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    Got my assessment on Friday aarrgghh!
    grimace 😂 
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • Adrian_ScopeAdrian_Scope Posts: 7,919

    Scope community team

    We'll be thinking of you @debbiedo49! Please let us know how you get on. 
    Senior Community Partner
    Scope

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  • paffuto10paffuto10 Member Posts: 388 Pioneering
    @debbiedo49

    Hello again  :)

    Got through mine and received decision two weeks ago. PIP continuing at the same rate. Yaay...

    So, fingers crossed for you too that you will have the same result.

    Good luck! x
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    I hope it goes well @debbiedo49, we'll be here if you need anything!
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  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    I survived. Thanks x
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    Iv heard nothing.
    got a letter with a. 2week extension to return my form. That was received on 01/10/19.
    my final payment for previous pip appeal is November 21st!!!

    not sure what will happen 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    susan48 said:
    Iv heard nothing.
    got a letter with a. 2week extension to return my form. That was received on 01/10/19.
    my final payment for previous pip appeal is November 21st!!!

    not sure what will happen 
    Most people have face to face assessments so expect one of those. Some wait weeks, others wait months, there's no timescales. If your PIP does end because a decision hasn't been made in time, once a decision is finally made if it's in your favour then your money will be backdated to the date it stopped.

    Hopefully you won't be waiting too long.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • paffuto10paffuto10 Member Posts: 388 Pioneering
    @debbiedo49

    Well done for getting through it x
  • paffuto10paffuto10 Member Posts: 388 Pioneering
    @susan48

    Mine went a few weeks over then was backdated, so try not too worry too much. Easier said than done, I know. 

    Hopefully you will be hearing soon. x
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    Thanks everyone! I haven't heard yet and won't for weeks. I just feel like saying to them: you do realise that pip is my lifeline? 
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • M_EandmeM_Eandme Member Posts: 53 Courageous
    Hi @debbiedo49 currently going through the same process and like you feel so stressed, anxious and dreading decision its not fair at all for those that really need it! I had to finish work last july and i depend on my pip just had my last payment so may be without in December of all months while they deciding 
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    I called them today as I got a letter from esa to say I’m losing the SDP as PIP will end in a few weeks. They just said it’s with a case manager and looking to make a decision without a face to face. Just means on the 22nd nov Iv pretty much lost most of my benefits payments.

    god know how I will pay bills and my mortgage 
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @susan48, I am so sorry to hear this and cannot imagine how you are feeling right now! Has your PIP award ended before a decision has been made?

    When was the last time you rang DWP? They might be able to give you more information on the progress of your claim. 

    Please do let us know how you get on and if there is anything at all we can do to help.
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  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @Chloe_Scope, thanks.
    my pip ends next Friday and still no decision.
    i rang them yesterday and still with case manager!! 
    Im more annoyed that they gave me a 2week extension for my completed for to be sent back, I didn’t ask for it.

    just the anxiety of the waiting game now, our lives are in there hands 


  • paffuto10paffuto10 Member Posts: 388 Pioneering
    @susan48

    Mine went 10 days over and was then backpaid, also hubby's Carers Allowance was stopped but then backpaid.

    It's very stressful I know, to suddenly become "non disabled".

    I was too scared to even phone so you've done very well contacting them!! 

    Sending you strength and hope you get the decision soon. x


  • paffuto10paffuto10 Member Posts: 388 Pioneering
    Also sending strength and good luck in this extremely stressful waiting game, to

    @M_Eandme and @debbiedo49
         
       xx

  • M_EandmeM_Eandme Member Posts: 53 Courageous
    @paffuto10 thankyou, unless the people behind the desk go through it, they cannot understand the extra stress and anxiety it causes on top of what we already go through im keeping everything crossed as being unable to go back to work at present i depend on this help 
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    I'm sorry it's causing so much stress @susan48, they certainly like to keep people guessing! Did you request a copy of the report? This will give you an indication about what to receive.

    All the best to you @M_Eandme, please do keep us updated. :)
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  • M_EandmeM_Eandme Member Posts: 53 Courageous
    Report requested today so waiting game now to see what it says, my last one was full of lies so im hoping to have better experience this time 🤞🙏... my 1st one was only bout half hour, this time was close to 2 hours and i was offered home visit so the wait begins.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Fingers crossed @M_Eandme!
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  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    susan48 said:
    I called them today as I got a letter from esa to say I’m losing the SDP as PIP will end in a few weeks. They just said it’s with a case manager and looking to make a decision without a face to face. Just means on the 22nd nov Iv pretty much lost most of my benefits payments.

    god know how I will pay bills and my mortgage 
    Hi Susan, 
    That happened to me with ESA and I was going down a long road of appeals etc. Eventually I lost. Then I had to decide to go on jsa at the time to get an income. I never went back to try for ESA again as U C was coming out in my area and I was advised to stay on jsa or risk being bumped onto U C. It's complicated. but, I went on jsa and have been on that a few years. Same with me, getting or losing Pip makes the difference with paying bills etc. It's awful. I got d p with my jsa and if i don't get pip I lose it. So fingers crossed we both get some good luck x
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    Something else I learned from my recent f2f for pip after 30 mins or so I began to get very tired and felt I was just rambling. I should have asked for a break but I just wanted it over. 
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • paffuto10paffuto10 Member Posts: 388 Pioneering
    edited November 2019
    Same here @debbiedo49

    except I also got a bit snappy. 

    I was sweating, in pain from sitting and had to use the desk to pull myself up and lean on for half a minute to relieve the pressure down below (have bladder damage from radiation). 

    Hubby was holding me up from behind and whilst I was standing leaning on the desk, she just continued asking me questions, which I couldn't understand! 

    I burst into tears and got snappy! 

    Then for the rest of the interview worried myself to death about the fact that I had managed to pull myself up and stand for half a minute. 

    So rambling and crying!! 
    Nightmare! 

    And same as you, I should have asked for a break, but just wanted to get it over with. 

    Really shouldn't have to go through this, any of us. x

  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    When I called she ask if I’d had an assessment, I said no she said they must be try to decide without the assessment as I’d send in lots of proof! Thought they wanted letters etc. Waiting is so stressful but thanks for all your support x
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    Good luck everyone!
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • Tammyjane33Tammyjane33 Member, Community champion Posts: 670 Pioneering
    @debbiedo49 I'm sorry to hear this. Why is it ending in November? How long do you get it awarded for, is it 3 years? I have been in a similar situation and it made me so ill. I hope all goes well. 
  • Tammyjane33Tammyjane33 Member, Community champion Posts: 670 Pioneering
    Hi does anyone know how many years pip is awarded for please? Thankyou in advance x
  • Tammyjane33Tammyjane33 Member, Community champion Posts: 670 Pioneering
    Sorry I think I'm looking at old posts 
  • M_EandmeM_Eandme Member Posts: 53 Courageous
    oh my goodness I got the dreaded brown envelope and my pip runs out in November. Help! Please! 😮
    Hi @debbiedo49 my pip also ran out this month, had an assessment so waiting on copy of my report atm, the stress is taking over my days waiting with worry, as i went through tribunal last year, good luck 😘
  • Tammyjane33Tammyjane33 Member, Community champion Posts: 670 Pioneering
    @M_Eandme sorry to hear this. I hope you're assessment went well 😊
  • M_EandmeM_Eandme Member Posts: 53 Courageous
    Hi does anyone know how many years pip is awarded for please? Thankyou in advance x
    Hi @Tammyjayn33 usually 2/3 years but could be more depends on the individual as far as i know :) 
  • M_EandmeM_Eandme Member Posts: 53 Courageous
    @M_Eandme sorry to hear this. I hope you're assessment went well 😊
    Thanks @Tammyjane33 im still waiting for my report so have fingers crossed. My 1st assessment in 2017 was 40 mins and my report was full of lies. My recent assessment was almost 2 hours, and the guy seemed nice but i will wait to see my report :/


  • Tammyjane33Tammyjane33 Member, Community champion Posts: 670 Pioneering
    Thankyou @M_Eandme fingers crossed there will be no problems for you. 🤞❤️
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi does anyone know how many years pip is awarded for please? Thankyou in advance x
    It depends on the individual person but it can be anything from 9 months to 10 years, which is the maximum award length.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • Tammyjane33Tammyjane33 Member, Community champion Posts: 670 Pioneering
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    Well on Friday I received a txt informing my that an appointment has been arranged for a f2f, Friday 13th December, how lucky am I. Im annoyed as they have had my form since the end of September. Never mind,  as of now I can’t pay my bill and live that’s to the lack of interest from the government, cheers for that and a merry Christmas to them all cause here’s one person not able to think about anything else that pip and assessment and money.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    susan48 said:
    Well on Friday I received a txt informing my that an appointment has been arranged for a f2f, Friday 13th December, how lucky am I. Im annoyed as they have had my form since the end of September. Never mind,  as of now I can’t pay my bill and live that’s to the lack of interest from the government, cheers for that and a merry Christmas to them all cause here’s one person not able to think about anything else that pip and assessment and money.
    I'm sorry to hear that. I note from a previous comment you were expecting a paper based assessment as you were told it was with a case manager. I'm sorry the information you were given about the paper based assessment was incorrect. Sometimes there is a delay in sending a file to the health assessment providers, other times they are sent straight away but they are always sent to them because they are the ones that write the reports and without a report a decision can't be made.

    When my daughter had her review last year, i returned her forms at the beginning of September and it was 11 weeks before they were sent to the health assessment providers.

    Paper based assessments are very rare, unfortunately. Do you have someone to attend the assessment with you? This can help any anxiety you may have on the day.

    Once you've had the assessment, wait a week and then ring DWP to request a copy of the report, this will give you some idea what the decision is likely to be because they mostly go with the report.

    I also note from another comment of yours on this thread that you don't know how you're going to pay your mortgage, i would advise you to ring your mortgage provider to tell them about your financial difficulties and hopefully they will be able to help you.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    Thanks @poppy123456, I have someone to take me to the assessment as it’s miles away.
    i did ring my mortgage company yesterday to make them aware of my situation so I have something in place for 2 months. Hopefully within that time they will have come to a decision.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @susan48, I really hope it all goes okay and please do let us know how you get on. :)
    If you need anything in the meantime then please do let us know!
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  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    M_Eandme said:
    Hi does anyone know how many years pip is awarded for please? Thankyou in advance x
    Hi @Tammyjayn33 usually 2/3 years but could be more depends on the individual as far as i know :) 
    My last award was. 2 years so I'm guessing it could be from one year onwards. I've read on here folks suggesting you ask for a longer award at assessment or tribunal but I've never been that confident. 
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    susan48 said:
    Well on Friday I received a txt informing my that an appointment has been arranged for a f2f, Friday 13th December, how lucky am I. Im annoyed as they have had my form since the end of September. Never mind,  as of now I can’t pay my bill and live that’s to the lack of interest from the government, cheers for that and a merry Christmas to them all cause here’s one person not able to think about anything else that pip and assessment and money.
    I know exactly how you feel. It's horrible. My last claim ended while I've been going through the process. I'm now off pip. Reducing my income drastically. I'm on jsa and work part time. What I earn comes off jsa. The pip has been the motivation to go to work, to not be poor and not feeling less worthy than my colleagues earning wages. Luckily I walk there so I don't need travel money. I'm just feeling why bother? Who am I kidding? It's such roller coaster of emotions. I feel that I should get pip until a Decision is made. I'm feeling that I want a decision now so I know. Laughably, today I got a brown envelope today advising me I'm getting my travel expenses sent to my bank. It's been over one month for thirty pounds for taxis I couldn't afford. So yay I'm rich 😁 
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @debbiedo49, I know it’s really tough but try to stay strong. It will probably be will into at least January before I hear anything after my assessment. Take care x
  • M_EandmeM_Eandme Member Posts: 53 Courageous
    It is not good at any time bit especially right on Christmas. My pip stopped November and also waiting for a decision, i requested a copy of the assessment report and 18 days on still waiting, i know they have back logs thou, good luck both 🤞
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    💞 thanks all xx
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • M_EandmeM_Eandme Member Posts: 53 Courageous
    Report finally arrived today  ...much better than my last report a lot of trurh in it im pleased to say, has scored me 8 points for daily and 4 points for mobility with a advised review at 18 months.....my last one was tribunal 9 points daily 8 points mobilty which ended last month, so will wait for decision now! Stress has decreased slightly after a better report but will have to see what final decision is now, 🤞
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    Hi just an update- DWP received my renewal form the end of September, pip stopped and on the extra payment on my esa because my pip stopped in November.
    Had a face to face on Friday, the “nurse “ I saw was understanding and listened. Or so she said! 
    Now Iv to wait 4-6 weeks on a decision.
    clearly there’s no point sending out forms early so they can deal with your reclaim before it ends, will be without income for at least 2 months.

    looks like a Christmas on a very tight budget. Merry Christmas 🎄 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    @susan48 Wait a week and ring to request a copy of the report to be sent to you. This will give you some idea what the decision is likely to be because they mostly go with the report.

    The timescales you were told is just a guide and nothing more. There's no timescales for decisions, backlogs are just part of the reason a decision can be delayed. I would expect it to be longer than usual at this time of year because of the Christmas closing days next week.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
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