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Epilepsy

woodbinewoodbine Member Posts: 3,764 Disability Gamechanger
Hi I have now had epilepsy for 22 years following my second stroke at the age of 38, I would like to make contact with other people with Epilepsy if possible, its something I have shyed away from doing over the years.
my advice is given freely and is correct to the best of my knowledge.

Replies

  • Tommyb92Tommyb92 Member Posts: 75 Courageous
    Hi there welcome to the Forum I am one of The Community Champions I hope you get the information that you need and if there’s anything that we can do please let us know many thanks Tom

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  • woodbinewoodbine Member Posts: 3,764 Disability Gamechanger
    Thanks Tom its not really info I need just some interaction with others with epilepsy, something I have never had sadly 
    my advice is given freely and is correct to the best of my knowledge.
  • Tommyb92Tommyb92 Member Posts: 75 Courageous
    woodbine said:
    Thanks Tom its not really info I need just some interaction with others with epilepsy, something I have never had sadly 
    Sorry to hear this but glad you’ve found the forum!

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  • deb74deb74 Member Posts: 754 Pioneering
    Hi woodine I am 45 and have had epilepsy for 24 years. I suffered from stress and depression and I was told that was what caused it. It is now controlled by medication and doesn't really affect me that much. It took a lot of playing around with different kinds of epilepsy medication and doses by the doctors before they finally found something that worked. I haven't had any problems with my epilepsy for a few years now and apart from having to take pills everyday to control it most of the time I forget I have got it.
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @woodbine   My friend this might help you.

    https://www.epilepsy.org.uk.

    Helpline 0800 800 5050

    Please take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
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  • Paul7210Paul7210 Member Posts: 40 Courageous
    edited January 2020
    Hi Woodbine, i'm a carer to my wife who has severe epilepsy, her's has continued to progress over the years as it's refractory. I really hope you're able to find support on here.
    Best wishes
    Paul
  • April2018momApril2018mom Posts: 2,869 Member
    Have you ever heard of the Epilepsy Society or not? https://www.epilepsy.org.uk/
  • 77cp77cp Member Posts: 21 Connected
    77bp Hi Woodbine. I have had a epilepsy diagnonsis since I was 5 months old. It was not treated until after I left schooL. I was given a variety of drugs and now thankfully am drug free. It was something I did not talk about so I understand where you are coming from. There was such a stigma and no real information for people
    I imagine you are retired. So am I.You can contact me if you would like to talk














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