Coffee lounge
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Receiving too many notifications? Adjust your notification settings.

Quandary over appointments

scotleagscotleag Member Posts: 86 Courageous
Couldn't think of anywhere else appropriate to post this other than here. And I'm not looking for answers as I don't think there are any definitive ones but just wondering how others are dealing with current situation as I'm sure there will be many facing similar choices. My situation is I have some appointments coming up later this month, four inside eight days and at three different locations, two local, one 25 miles away. Normally I'd be happy to get them all so close together and out of the way - all being well. But these are not normal times and like just about everyone else I'm concerned about the coronavirus. It seems obvious that in two weeks/three weeks time things will be worse than they are now and I'm concerned about running unnecessary risks but at least two of the appointments are ones I think I daren't miss. One's a recall for further blood tests as my most recent - Monday of this week - for methotrexate showed some issues with my liver test. I don't know how much or how serious but I do know they want a further test. On the same day I'm due a visual fields test which will be the third one since January (i've also just had eye photos taken two weeks ago). I'm then scheduled for the rheumatologist a week later and the ophthalmologist the day after that. 

I don't really want to cancel them as who knows when I'd get another appointment or even if things might not be even worse in a few months time. Yet at the same time as it's the results of the test and further/change of treatment to be discussed with the specialists I'm wondering if there's anything to be gained by face-to-face as opposed to phone or Skype and whether or not those options will be available. 

I can't make a decision just now as I need to take up the first two appointments. I don't want to wait months if there's been a deterioration that needs a change in treatment. But it's always possible that things are as they are now and that earlier tests simply showed anomalies that can happen every now and again and that's happened before with blood tests - where the first has shown some cause for concern but the secon was fine.

As i said at the start there are bound to be many people on here facing a similar dilemma and it would be good to hear what others have done/are going to do. 


Replies

  • CressidaCressida Member Posts: 601 Pioneering
    edited March 2020
  • veritercveriterc Community champion Posts: 184 Pioneering
    You are being very sensible to plan ahead.  I have an appointment at the hospital which sadly handled the first mortality, and they immediately put out a very dignified statement, which also included "All services and appointments at the hospital are running normally. The Trust is following established guidelines to minimise the risk of the virus spreading.  

  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    edited March 2020
    Hello @scotleag   Thank you for sharing your concerns.

    I do know been a lot of anxiety and panic over the Coronavirus .

    Please may I suggest the following link will be able to allay your insecurities and fears.

    https://www.nhs.uk.


    1.  Any symptoms not sure about contact the website.

    2. Do not go to your Doctors contact them.

    3. Any chills or colds self isolation and information look on the website.  As with any thing like this not sure.

    Look on the link.

    Use hand washing be clean use hand gels, wash and clean down any way on all surfaces.

    Kitchen and hygienic areas toilet a matter of routine.

    4. Dispose of tissues, cough hands over mouth.  

    Rehydration is important as well plenty of water, rest and eat sensibly.

    5. Other nutritional diet advice.

    Not mentioned but should be a regular practice.

    6. Fruit and vegetables . Citrus fruits, Apples, Pears.  Berries all have antibacterial properties.

    Vegetables Onions, Leeks, Broccoli, Peppers all good antibacterial  and others like Tomatoes Courgettes  Chilli's, Spinach leafy greens, Kale.

    Garlic, Ginger, Turmeric, Cinnamon, Fennel Seeds, Cumin.

    Herbs Parsley, Basil, Coriander both Herb and Spice.

    Rosemary, Thyme,Oregano.

    Whole grains, Bread, Pasta and Pulses, Beans and Eggs , Nuts. Lean Meat a normal balanced healthy diet.

    I also include yoghurt with added cultures , Greek, Natural.

    Look on the tubs.

    Please have a look around the forum . Have my recipes Soups lots useful antibacterial and good for immune systems.

    One other every one is panic buying and stockpiling in my opinion there is no need.

    A virus like this is only harmful if you been to the infected countries or a underlying health issues.

    Be on line the list.

    Also lets not forget a weaken immune system those have died were and had underlying health conditions.

    I am here to be supportive and is there anything I can help with.

    As I have a lot of nutritional diet knowledge and expertise use this a lot on the forum, happy to reassure you.

    Please just go about as normal you be fine.  It is a concern I know but you could if example use a taxi if not wishing to go on public transport.

    Please take care.

    @thespiceman


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • pollyanna1052pollyanna1052 Member Posts: 1,999 Disability Gamechanger
    Hi, I had a blood test last Tuesday....the nurse said we shouldn't panic over Covid-19..just take normal hand washing as normal. The blood test is normal...not for Covid-19 mind.

    I have an appointment in Liverpool at The Walton on Tuesday. I will be going.

    Constantly watching tv about covid is causing hysteria and bulk buying.



  • scotleagscotleag Member Posts: 86 Courageous
    veriterc said:
    You are being very sensible to plan ahead.  I have an appointment at the hospital which sadly handled the first mortality, and they immediately put out a very dignified statement, which also included "All services and appointments at the hospital are running normally. The Trust is following established guidelines to minimise the risk of the virus spreading.  

    Thanks for this. First two are unavoidable. Once I get the results I'll be able to decide if the follow-ups are necessary or not
  • scotleagscotleag Member Posts: 86 Courageous
    Hello @scotleag   Thank you for sharing your concerns.

    I do know been a lot of anxiety and panic over the Coronavirus .

    Please may I suggest the following link will be able to allay your insecurities and fears.

    https://www.nhs.uk.


    1.  Any symptoms not sure about contact the website.

    2. Do not go to your Doctors contact them.

    3. Any chills or colds self isolation and information look on the website.  As with any thing like this not sure.

    Look on the link.

    Use hand washing be clean use hand gels, wash and clean down any way on all surfaces.

    Kitchen and hygienic areas toilet a matter of routine.

    4. Dispose of tissues, cough hands over mouth.  

    Rehydration is important as well plenty of water, rest and eat sensibly.

    5. Other nutritional diet advice.

    Not mentioned but should be a regular practice.

    6. Fruit and vegetables . Citrus fruits, Apples, Pears.  Berries all have antibacterial properties.

    Vegetables Onions, Leeks, Broccoli, Peppers all good antibacterial  and others like Tomatoes Courgettes  Chilli's, Spinach leafy greens, Kale.

    Garlic, Ginger, Turmeric, Cinnamon, Fennel Seeds, Cumin.

    Herbs Parsley, Basil, Coriander both Herb and Spice.

    Rosemary, Thyme,Oregano.

    Whole grains, Bread, Pasta and Pulses, Beans and Eggs , Nuts. Lean Meat a normal balanced healthy diet.

    I also include yoghurt with added cultures , Greek, Natural.

    Look on the tubs.

    Please have a look around the forum . Have my recipes Soups lots useful antibacterial and good for immune systems.

    One other every one is panic buying and stockpiling in my opinion there is no need.

    A virus like this is only harmful if you been to the infected countries or a underlying health issues.

    Be on line the list.

    Also lets not forget a weaken immune system those have died were and had underlying health conditions.

    I am here to be supportive and is there anything I can help with.

    As I have a lot of nutritional diet knowledge and expertise use this a lot on the forum, happy to reassure you.

    Please just go about as normal you be fine.  It is a concern I know but you could if example use a taxi if not wishing to go on public transport.

    Please take care.

    @thespiceman


    Wow, thanks for this amazing list. It reads every much like my wife's except she knows she can have all the spinach and kale to herself and I have yet to persuade her of the benefits of any type of meat. Lot of common sense there which I've screenshotted for future reference
  • scotleagscotleag Member Posts: 86 Courageous
    Hi, I had a blood test last Tuesday....the nurse said we shouldn't panic over Covid-19..just take normal hand washing as normal. The blood test is normal...not for Covid-19 mind.

    I have an appointment in Liverpool at The Walton on Tuesday. I will be going.

    Constantly watching tv about covid is causing hysteria and bulk buying.



    I had my blood test last Monday. Just annoyed I've been called back as everything has been fine for a while. I think the problem with this virus isn't hysteria as such as we are beginning to see. I've never been one for health scares. Around a decade back I had a big argument with my wife when she spent a lot of money on tamiflu which I thought (rightly) was a waste of money for something highly unlikely to affect us.

    But this is different. Something none of us have seen in our lifetimes and for which there is no vaccine to 'waste' money on. The panic buying is crazy. It would be better all round if the panic buyers instead developed a fear of going into supermarkets in the first place
  • scotleagscotleag Member Posts: 86 Courageous
    Just an update on this. It appears different departments are doing different things. I got a call from GP surgery to cancel blood tests & told to carry on with Methotrexate. Next I got a call from hospital cancelling appointment & told rheumatologist will call me at appointment time. But nothing at all from ophthalmology.  I'll try and get through on Monday to see what's happening. That appointment is scheduled a day after the cancelled rheumatology one but I thought I'd have heard from them by now. It's next Thursday and the way things are going it'll be an even worse situation then. I've seen a lot of people who have contracted coronavirus say they have experienced eye pain so I'd imagine specialists may well be diverted from regular appointments.
  • woodbinewoodbine Member Posts: 2,358 Disability Gamechanger
    My GP surgery has cancelled 2 appointments and made them "telephone" chats, but I was referred to the hospital on Tuesday this week and got an appointment for a scan 2 days later for the 30th March.at the hospital.
  • CressidaCressida Member Posts: 601 Pioneering
    @scottleggscotleag said:
    Just an update on this. It appears different departments are doing different things. I got a call from GP surgery to cancel blood tests & told to carry on with Methotrexate. Next I got a call from hospital cancelling appointment & told rheumatologist will call me at appointment time. But nothing at all from ophthalmology.  I'll try and get through on Monday to see what's happening. That appointment is scheduled a day after the cancelled rheumatology one but I thought I'd have heard from them by now. It's next Thursday and the way things are going it'll be an even worse situation then. I've seen a lot of people who have contracted coronavirus say they have experienced eye pain so I'd imagine specialists may well be diverted from regular appointments.
    I recently had routine appointment due in rheumatology and this was carried out by telecon. I was advised to continue methotrexate and anti-tnf and to self isolate. I was informed that due to meds I would have access to 111 if needed. I also have specialist nurse contact if needed. 
  • scotleagscotleag Member Posts: 86 Courageous
    Sounds similar. My rheumatology appointment was a scheduled one but the bloods were because something had come back showing something up on kidney analysis. I don't pretend to understand everything a blood test does or checks for but apparently it's minor and needn't affect medication. More worrying is the ophthalmologist. That ISN'T a routine appointment but on account of most recent visual fields tests results. Now, as there's no one-the-day tests to be conducted and specialist should have records of recent tests and eye photo (though I cancelled my THIRD visual fields test) I don't see why the can't be phone too. Skype would be better but I don't think they've heard of that down this way
  • pollyanna1052pollyanna1052 Member Posts: 1,999 Disability Gamechanger
    I have a podiatry appointment on Thursday. I have rung to check if it is still on, but they didn't know.

    Trouble is it is for regular toenail clipping. If it isn't done, I will develop problems.

    Don't want to end needing surgery again.

    If the clinic is closed, I hope they can send someone out to me

  • scotleagscotleag Member Posts: 86 Courageous
    This is the dilemma isn't it? And millions will be affected. Go for treatment and potentially risk serious illness, possibly even your life? Or stay home and risk endangering your health and in some cases also possibly your life? impossible choice and nothing that can be done about it. 
Sign in or join us to comment.