Cerebral Palsy
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CP and high risk for COVID19

SystemSystem Posts: 521

Scope community team

edited May 2020 in Cerebral Palsy
This discussion was created from comments split from: Skin picking at bed time.
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  • Crumble_RhubarbCrumble_Rhubarb Member Posts: 25 Connected
    edited March 2020
    Hi, I am new, i got a mild case of CP (Spastic hemiplegic).
     

    On Monday I got a text from NHS saying along the lines of I was "identified as a vulnerable person at risk of severe symptoms if I catch cornavirus and I must stay inside for 12weeks"- this surprised me as I don't feel like I am more at risk than anyone else and assume it's due to my very mild case of CP. Has everyone with CP been sent this?

    My main issue is pain though I do vary  quite a bit physically- and I am aware that where I wasn't using any aids when younger I could probably do with some now i.e bath rail etc.  I have also became aware that I seem to be unconsciously holding my affected arm in a bent position at the elbow that I don't think I used to do when younger- it's causing a lot of pain in my elbow just now.

     I was wondering if there was anything I could get to keep it straight? I asked my physiotherapist when I last went (before I was discharged)  about strapping my knee up to help with the pain- when it was maltracking -and she said it wasn't reccomended as it weakness the muscles more. Is this the same with what I assume is the spasticity in my arm?

    Thanks for reading.


  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @Crumble_Rhubarb   Pleased to meet you.

    Thank you for joining and sharing.

    Please if I can suggest going to ask the Team member @Richard_Scope who has the condition and is our CP officer.

    The gentleman will advise you give you any information.

    Please if you do have any questions please ask.

    Please take care.

    @thespiceman
    Community Champion
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  • Richard_ScopeRichard_Scope Posts: 2,736

    Scope community team

    Hi @Crumble_Rhubarb
    Cerebral Palsy affects every individual differently that is why it is difficult to create a one size fits all guidance about the impairment and coronavirus.

    If you have respiratory issues, like getting chest infections quite a lot. Or are invited to have the yearly flu jab, you have swallowing difficulties normally, as some people with CP do, due little to no mobility, then you will be classed as having an underlying health condition. It is not the CP itself. 

    You will need to contact your local authority to arrange an assessment of your home and needs by an occupational therapist. This is one way that you could get grab rails for your bath. However, with everything that is happening at the moment the wait time will be a long one.

    In terms of the increased spasticity in your arm, as we age our mobility changes like everybody else. But with CP, because of the way we move and the stresses and strains we put on our joints, we can experience pain in joints and tighter muscles. These can be helped through stretches and physio. There is the chance that strapping your arm would make the muscles weaker.
    How long has your arm been causing you pain?

    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Crumble_RhubarbCrumble_Rhubarb Member Posts: 25 Connected
    Thank you @thespiceman for your reply and tagging @Richard_Scope for me.

    Thank you Richard for your detailed response. I do get invited for the flu Jab each year which must be the reason for it!

    The Covid 19 situation is one of the reasons I haven't yet enquired about the grab rail. I haven't seen an occupational therapist since I was a child but remember them coming to my house.  

    With regards to my arm pains it's been there a few months- though I am in quite a bit of pain in both my arm and leg I wasn't as affected by my elbow it's always been the shoulder and wrist so elbow involvement is quite new as far as I am aware. Guess I'll wait until the Covid 19 situation is over and get referred back to physiotherapist.

    Thanks again both! 😊
  • Richard_ScopeRichard_Scope Posts: 2,736

    Scope community team

    You're most welcome @Crumble_Rhubarb! It's great talking with you :) I find muscle rubs good for easing pain. Particularly in my knees. Things like Deep Heat or Tiger Balm. 
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Crumble_RhubarbCrumble_Rhubarb Member Posts: 25 Connected
    @Richard_Scope sorry for the very late reply! Thank you for your suggestions regarding the balms etc. I've never tried any rubs before. I may have to give them a whirl.
    Thank you so much again 😊 

     
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