Cerebral Palsy
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Struggling with pain during coronavirus

SystemSystem Posts: 547

Scope community team

edited May 2020 in Cerebral Palsy
This discussion was created from comments split from: Chronic back pain.
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  • fenfisherfenfisher Member Posts: 18 Connected
    Struggling
    Think I may have a problem spine and hip leg pain real problem it mo ,on tramadol  and gabapentin am due to go in to hospital pain clinic for lumber jabs etc but now with the cold 19 virus not sure if or when this is likely to be.
  • Abdi_ScopeAbdi_Scope Scope Posts: 234 Pioneering
    I am so sorry @fenfisher that you are struggling at the moment. It a time like this we can support each other. It is true many appointments will be delayed by Covid 19. Have you looked at some of the useful recent post
  • jojosephinejojosephine Member Posts: 2 Listener
    I also use an electric blanket and like @angelfitz find leaving it on a low setting really does help.  I also have a small electric back/neck heat pad that I use on my lumbar when sitting on the sofa (my fusion is here). @Purposeful is right in that your GP is not a specialist & neither is a regular physio - I would not be able to swim either and a physio tried to get some movement into my lumbar...after it had been fused! 
    I hope that the back clininc (which might comprise of  a mixture of neurosurgeons, orthopaedics, physios, nurse specialists, psychologists) will order some scans for you and refer you on for pain assessment too. 
    It is important to remember that X rays don't show soft tissue damage (discs or other) and that not everything shows up on an MRI either - my own personal experience - but hold on to the fact that you are not going mad and it is not in your head.
    Please let me know how the appointment goes,

    Claire
    I also use it when I do n’t have time to stretch and relieve pain. Have you tried massage and physiotherapy? They work for me, and I go there once a month. Most of the time, I do yoga exercises, turning my back at a very slow speed and stretching the muscles a little bit. After the end, the pain can always be relieved for a period of time.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Thank you for sharing this @jojosephine, I'm glad to hear you are able to manage your pain levels. I know this is something that I struggle with, so always interested to see what works for others. :)
    Scope

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