Mental health issues
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Mental health issues are becoming physical pains.

earthchild23earthchild23 Member Posts: 145 Pioneering
Hi 👋 I’m EARTHCHILD23🌍 🌷 
I hope you are all ok and been well and safe through the pandemic.
I am a mum to a beautiful 9 year old, and we are both survivors. But plodding on. We have been through a lot as many others have been on here and I just thought I’d share. I have EUPD, OCD Depressive disorder, ADHD, and dyslexia so I do apologise when my messages get jumbled or cut off.
So I wanted to ask something... 
I know there’s been a post about how people are coping with physical illnesses affecting there mental health but for me it’s quite the opposite I just wanted to ask and share if anybody has a mental health disability that over time is now affecting there physical health? 
At the moment I’m suffering from hyprolactenemia, gallatorea, fatigue, pins and needles, bloated stomach, headaches, back pain, leg and hand numbness. It’s quite bizarre it’s being investigated, I’ve been and had a MRI to check my head and everything is normal, so my GP has ruled out any growths in my brain, but my hormones are elevated especially one called prolactin it’s basically making me feel like I’m pregnant and suffering from stiffness with numbness and pain all at once. I have an appointment on video call with endrincologist, who will probably tell me it’s my anti psychotic medication but I’m on a low dosage and my anti depressants can’t cause it. 

I just want to know if anyone else has experienced this or has any information on how they cope I know you can’t give medical advice as your not GPs. 

Thanks  😃

Replies

  • leeCalleeCal Member Posts: 3,359 Disability Gamechanger
    Hi, have you checked out the side effects pamphlet that comes with your anti psychotic medication? That may shed some light on the matter, apart from that I wouldn’t know.
  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Hi 👋 @leeCal do you mean leaflet? 
    And if so I don’t get a leaflet I have a dosset box that comes everyweek so I have no idea 💡 hun 
  • leeCalleeCal Member Posts: 3,359 Disability Gamechanger
    edited August 2020
    Yes, I meant leaflet. That’s all I can suggest personally.
    perhaps @chiarieds could help.
  • earthchild23earthchild23 Member Posts: 145 Pioneering
  • janer1967janer1967 Member Posts: 9,138 Disability Gamechanger
    Hi you could look up your medication side effects on the internet or contact your pharmacy they can advise you
  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Hi @janer1967 I’ve spoken to a consultant today (Friday) who is going to test to see what’s going on. I’ve looked up online some of the symptoms are side effects but when all together as symptoms for a women it can be many other things going on. I’m going to wait on consultant now as I’ll just work my self up again. 
    But thanks for advice 
    😊
  • janer1967janer1967 Member Posts: 9,138 Disability Gamechanger
    Hope you get it sorted with the consultant and start to feel better 
  • Ross_ScopeRoss_Scope Posts: 3,161

    Scope community team

    Hello @earthchild23

    Best of luck with the consultant, let us know how you get on :) 
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Hi @Ross_Scope 
    i hope you are ok? 
    Yes it was reassuring and I find it more comfortable as your in your home and not worried about everything else with this pandemic, I just hope I’m able to get some more information to understand what is happening from the symptoms I’m experiencing. Which will also be helpful when completing my PIP renewal. (When it magically appears)
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    I also hope you get some more information @earthchild23, and that you get your PIP renewal soon :) 
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  • NotquitedisabledNotquitedisabled Member Posts: 8 Listener
    I can be in a mental state where I'm stressed and it causes a headache, or when I don't move enough, partly due to depression, and that causes a headache eventually.

    But there's more to it. I believe mental illness IS physical illness. Regardless of any emotional trauma that may have triggered it, "mental" illness is caused by physical illness we label "imbalances" and treat physically (or at least I do, with medication). 

    What I'm trying to say is that, in my personal experience and opinion, the "mental" aspect of mental illness is a SYMPTOM of a PHYSICAL imbalance or illness. And if one symptom of the imbalance/illness is "mental," it is likely that OTHER symptoms of the imbalance/illness exist also, but are classified as "physical." 

    It's possible you have one complex system where all your symptoms are actually connected by ONE disease, condition, or syndrome, and that doctors just miss it or there is no diagnosis for it (which doesn't mean it doesn't exist, just that it hasn't been studied or "discovered" officially). 

    It's also possible that your new symptoms are not connected to your mental illness at all and should be treated differently. What your post reminded me was the book, "Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed and Sick," by Maya Dusenberry. The book is filled with stories and anecdotes, dating back hundreds of years, of women who were seriously ill but were consistently told their symptoms were "mental illness" or that the illness was real but "created" by their minds. The illnesses of course were NOT created by their minds, and so the women never got better, but were blamed for their illnesses and called difficult patients and "malingerers" for seeing doctor after doctor and refusing to accept that they were not "really" ill.

    Only with the 20th century and several waves of western women's increasing social and economic power have we found that more and more of these "nonexistent" diseases are finally getting studied. It took decades, for instance, to get CFS/ME to get real study because the women whom it affected were labelled liars. 

    So what I'm trying to say is, please hang in there, and whatever the case is, whether you ARE actually experiencing physical illness as a result of mental illness, or something totally different than mental illness, please don't give up on yourself or think you're crazy or the only one suffering with your condition.
  • harry01harry01 Member Posts: 160 Connected
    @earthchild23 yes. I had violent episodes of generalised muscular spasms. They were preceded by very high levels of stress. 

    Look up 'functional disorder'.  As far as I know our scientific understanding on this is not very good at all. 


  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @earthchild23, how are you doing today? :)
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    edited October 2020
    Hi guys so here’s a update.. 

    @Chloe_Scope

    @janer1967 😊. I’ve found a letter on my heath records that I’ve been rejected from nerve conduction so it looks like because of Covid they won’t be investigating why I’ve got pin n needles in my hands and legs which lead them to spasm and pains 

    It’s one thing after another tbh I’m fed up.
    @Tori_Scope my PIP review has come through I’ve sent it off ma be my partner did it together so I’m waiting to see if it goes ok as there wasn’t much space to explain but I sent in my MH care plans and records. 
    So yes I’ll still need that luck. 
    Don’t know what I’d do without this platform 🤦‍♀️. 
    Thanks guys 
    sorry for late reply 
  • earthchild23earthchild23 Member Posts: 145 Pioneering
    harry01 said:
    @earthchild23 yes. I had violent episodes of generalised muscular spasms. They were preceded by very high levels of stress. 

    Look up 'functional disorder'.  As far as I know our scientific understanding on this is not very good at all. 


    harry01
    Yes well I completely understand that one. As my previous medication was giving me restless legs and I’d get pain all the way through them. I called it nerve pain as it was stabbbing and wouldn’t shake off. 
    I will look up functional disorder and enquire with GP. 
    Thanks 😊 

  • earthchild23earthchild23 Member Posts: 145 Pioneering
    I can be in a mental state where I'm stressed and it causes a headache, or when I don't move enough, partly due to depression, and that causes a headache eventually.

    But there's more to it. I believe mental illness IS physical illness. Regardless of any emotional trauma that may have triggered it, "mental" illness is caused by physical illness we label "imbalances" and treat physically (or at least I do, with medication). 

    What I'm trying to say is that, in my personal experience and opinion, the "mental" aspect of mental illness is a SYMPTOM of a PHYSICAL imbalance or illness. And if one symptom of the imbalance/illness is "mental," it is likely that OTHER symptoms of the imbalance/illness exist also, but are classified as "physical." 

    It's possible you have one complex system where all your symptoms are actually connected by ONE disease, condition, or syndrome, and that doctors just miss it or there is no diagnosis for it (which doesn't mean it doesn't exist, just that it hasn't been studied or "discovered" officially). 

    It's also possible that your new symptoms are not connected to your mental illness at all and should be treated differently. What your post reminded me was the book, "Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed and Sick," by Maya Dusenberry. The book is filled with stories and anecdotes, dating back hundreds of years, of women who were seriously ill but were consistently told their symptoms were "mental illness" or that the illness was real but "created" by their minds. The illnesses of course were NOT created by their minds, and so the women never got better, but were blamed for their illnesses and called difficult patients and "malingerers" for seeing doctor after doctor and refusing to accept that they were not "really" ill.

    Only with the 20th century and several waves of western women's increasing social and economic power have we found that more and more of these "nonexistent" diseases are finally getting studied. It took decades, for instance, to get CFS/ME to get real study because the women whom it affected were labelled liars. 

    So what I'm trying to say is, please hang in there, and whatever the case is, whether you ARE actually experiencing physical illness as a result of mental illness, or something totally different than mental illness, please don't give up on yourself or think you're crazy or the only one suffering with your condition.
    @Notquitedisabled

    Honestly everything you have said is what I feel! 
    I have gone through leg spasms to headaches dizziness and fainting to fatigue and been in awful pain where my bones feel crippled. I’d understand if I was like 70 y/o but I’m just going 27 ! The effects of my mental health are having an impact on my physical health and it’s hard for me to explain to the GP without them acting as if I’ve become mentally unwell again. 
    A typical day at the moment consists of me being drowsy and fatigued, not feeling any energy, getting a headache needing to lye down, then it gets to the evening I’m wide awake with spasms in my arms and or numbness in my back and legs. It’s actually terrible! 
    I will look up that book too as well as functional disorders 
    ive gone from looking up symptoms of ME Fibromyalgia to try and understand if I am suffering from symptoms of them too as it doesn’t make sense, and on top of that I’m putting on a lot of weight rapidly without changing my eating habits I’ve gone from 13stone to 17 1/2 in less than a year. I’m worried because I feel like my body is going through something but I don’t know what but everytime I try to vent it it’s always the thing that it’s my EUPD and OCD Or Psychosis symptoms starting and it generally isn’t in taking my medication and actually trying to cope with myself. 
    (Sorry for the vent) 
    things sometimes get too much. 
    But thanks @Notquitedisabled 😊
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    Hi again @earthchild23. There's no need to apologise for the late reply, it's good to see you on here.

    Well, my fingers are still firmly crossed for your PIP outcome! 

    There's also no need to apologise for venting, it sounds like things have been really tough. You're always welcome to vent on here any time.
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    edited October 2020
    Hey @Tori_Scope i thought I’d come on as I’m having another night of no sleep, I buckled up the energy and confidence to go on a walk today after taking my son to school on taxi. anyways I went on the walk with earphones in so I don’t have to deal with people or socialiseto see if I could stretch my legs to see if the leg spasms would stop but it seems it’s returned and they are painful when they clench up (it’s like when you clench your fist and your muscle goes tight) but it’s not worked, I am also wide awake so imsomnia has returned but I’m absolutely knackered and then during the day today I’ll be lethargic and fatigued from being up. It’s honestly a pain and Yes coming on here helps  sometimes I just need to let out the frustrations that are going around in my head. 
    I’ve tried calling pip to see if they’ve recieved the form but couldn’t get through so I’ll try again later on if I’m not asleep all day. Mental illness is like being at war some times you win and sometimes you lose but you are forever fighting with yourself. 
    Thank you for getting back to me 😊

  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    That sounds painful, I'm really sorry @earthchild23. Hopefully the other test results will come back soon, and the doctors will agree to investigate your nerve pain further at some point too.

    I'm sorry to hear you're also having trouble sleeping. Are you still receiving mental health support? I think I remember you saying that you had a support worker? Bad sleep always makes things worse, so definitely try and speak to either a member of your mental health team, or your GP. Do you know what might be causing your insomnia?

    I think the phoneline might open at 8am. 

    I hope you managed to get some sleep, and that you feel a bit better today :) Let us know how you're feeling.
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Hi @Tori_Scope
    ive managed to do a bit of walking but my legs still go numb so I’m going to contact go again to discuss the conduction rejection and pain I’m still having. 
    I really hoped this would be something that could stretch out but it doesn’t do it. 
    I don’t have a mental health support worker but I have one for domestic abuse called a ISVA. She can help with supporting letters to my mental health team so I might ask her to get in contact with them about the insomnia and low mood but I offset feel like once speaking to them I’m being a bother so it’s just more fustrating. 

    I have also managed to get in touch with PIP to speak to them about the review they just said they have recieved it with evidence and I’ll have to wait minimum 8 weeks for a decision and if they don’t accept my review they will stop payments, I guess they tell everyone that but it just makes you think your claims going to end and make things difficult again. 

    Thanks for getting in touch and I hope you are ok too 😊
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    Contacting them again sounds like a good idea to me @earthchild23. Fingers crossed they'll be able to do something, or at least let give you an idea of how long it might be until you can access the treatment.

    Ah yes, that was what I was remembering. I think it'd be great if she could do that. You're definitely not a bother, and they shouldn't make you feel that way! 

    Well at least they've definitely received it. There's nothing more you can do now, so just try to put it out of your mind for the moment (easier said than done, I know!). 

    No problem. Please do keep us updated with everything. I'm fine, thank you for asking :)


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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Hi @Tori_Scope
    ive managed to put in a Gp request as you have to do it online and tried to explain in (500 characters) what it’s like so hopefully someone will get back to me tommorrow. 

    Yeah I’m going to contact my ISVA about counselling because if it is stress related it can hopefully help. 

    I just hope this PIP isn’t another stress and gets put through, I’m also supposed to be doing my third part of my course with Open University so I hope I actually do that this year and don’t have to postpone because of things getting too much. 
    I am sorry if I am a bother on here I just don’t like putting it on my partner all the time. 
  • Ross_ScopeRoss_Scope Posts: 3,161

    Scope community team

    I hope the open university course goes well @earthchild23 :) 

    You are absolutely not a bother at all, we very much value your contribution here, you're always welcome :)

    Sometimes it just helps to talk about how you feel, and you can always do that on the community.
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    @Ross_Scope Yes on year 3 out of 6 now so it helps it’s part time and can be done from home and they understanding of people with disabilities and how it affects us, so I’ve had times I’ve taken a break to gather myself. But I hoped this year would be a sailing year but it’s been rocky for everyone. 

    I will continue to keep you all updated on here and use helplines if this get too much with my mental health. 

    We are all struggling at this time and it’s good that this platform is available so Thankyou once again. 
    I appreciate the support 😊
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    I hope they get back to you today @earthchild23 :) 

    Yes, definitely get in touch any time! 

    No problem, thanks for being here. 
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Thank you 😊 
  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Update.. 

    so after doing various tests I’ve found out now that I have type 2 diabetes. For this I have to change diet exercise ect to reverse it but with lockdown it is difficult 😔 I already lack motivation to get up on a morning and look after myself and son and rely on family/partner I’m hoping I’ll have a social worker again soon for some support..Everything thing just feels difficult😣 but I will find the motivation somehow, this does give some explanation to my numbness in arms legs and feet but doesn’t explain spasms and pain so I’m going back to neurophysiology... And  I have a ongoing calcium and vitamin d deficiency I’ve been prescribed tablets for this for 8 weeks. I’ve had no feedback from endocrinology consultant. I guess it’s another waiting game. ☹️
  • Ross_ScopeRoss_Scope Posts: 3,161

    Scope community team

    Hi @earthchild23

    Sorry to hear that, but at least you have the diagnosis now and that explains some of the things you've been experiencing, it's always better to know rather than wonder what the cause is.

    Do you have ways of exercising at home? As you say the pandemic has made it hard to do certain things, it might be beneficial to have methods of doing certain things in the home.

    It must be hard, but I'm sure you will cope very well indeed, and the community will support you along the way.

    I hope you do manage to get support in place from a social worker, that would be very beneficial for you. Hopefully visiting the neurophysiologist goes well, let us know how you get on.
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    hey @Ross_Scope thankfully I do, but it is medication induced, as my diets fairly healthy and I think I’ve had it for a while as previous tests would show it but gp didn’t take notice. 
    I just want answers for the hormone difficulties I’ve been having and pains now, gosh it’s hard being a lady with invisible illnesses all in one with the extras we cope with 😂🤦‍♀️
    Yes when the nerve conduction comes around it should be helpful. 
    Thank you for listening also does anyone on here have advice about managing diabetes and mental health together? 

    Thanks. 🥰
  • Ross_ScopeRoss_Scope Posts: 3,161

    Scope community team

    Keep fighting for those answers @earthchild23 and you will get there, I admire your determination :) 

    For that last part, might be worth creating a new discussion on the community to ask that question? I'd be interested to see people's responses.
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Hi Ross yes I will make a new thread and thank you I will try do my best 😊
  • earthchild23earthchild23 Member Posts: 145 Pioneering
    So I’m wide awake again with pain in my left foot tonight and pins and needles limbs just feel heavy, and ache. I’ve had a coffee because I’ll probably be up until school run thankfully we have taxis booked to take us everyday. 
  • Ross_ScopeRoss_Scope Posts: 3,161

    Scope community team

    Ah sorry to hear that @earthchild23, you doing any better now?
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Hi @Ross_Scope No I can still feel the aching tingling sensation and my foot feels heavy again. I’ve just got to wait for it to go away.
  • Ross_ScopeRoss_Scope Posts: 3,161

    Scope community team

    Well hopefully it goes soon @earthchild23, you doing anything nice today?
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    No @Ross_Scope the only thing exciting today was reading posts on here I’ve been back in bed. Are you up to much?
    Thanks 
  • Ross_ScopeRoss_Scope Posts: 3,161

    Scope community team

    Sounds good to me @earthchild23 :) Well last night I spent most of it playing games to be honest, I wasn't overly productive. How are you today?
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Yes when it gets difficult it’s nice to come on here and chat 😊 do you play games online or on consoles or board games? I’ve been asleep from the school run this morning to now as I don’t sleep on a night with my pins n needles pain, what have you done ? 
  • harry01harry01 Member Posts: 160 Connected
    I play online computer games. I find them to be distracting. Watching a film or chess 
  • earthchild23earthchild23 Member Posts: 145 Pioneering
    edited November 2020
    @harry01 Ok that’s good it’s something to do I don’t have the concentration span for board games I get easily distracted I have adhd so attention is something I’m still learning in some aspects, it only works if I become obsessed with the games. 
    Thanks 😊 
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    What's your favourite genre of film @harry01
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  • harry01harry01 Member Posts: 160 Connected
    @Tori_Scope I don't know. And I guess it's not a film but was watching the queen's gambit. It's a bit silly. 
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    I've seen that advertised but I haven't watched it @harry01. Is it about chess? I might give it a go.
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    I’ve seen the advert too, I’ve never understood chess it’d be good if scope introduced online games and we could play one another 🙂
  • harry01harry01 Member Posts: 160 Connected
    @Tori_Scope yeah, her life and chess. 
  • harry01harry01 Member Posts: 160 Connected
  • earthchild23earthchild23 Member Posts: 145 Pioneering
    edited November 2020
    Yes @harry01 I’ll have a look online keep me occupied whilst I’m awake on a night 
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    That's probably beyond my personal technical capability @earthchild23, but I'll pass the suggestion on!
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Yes @Tori_Scope it would be great if it ever happened where ppl could game and chat with supporting one another 
  • Ross_ScopeRoss_Scope Posts: 3,161

    Scope community team

    Completely agree with you @earthchild23 :) 

    You doing alright today?
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Hello @Ross_Scope
    hope you are ok 🙂
    I’m not too bad today’s been a ok day minus having to sleep earlier on, my plan is to do some reading 📖 about psychology understanding minds. 

  • Ross_ScopeRoss_Scope Posts: 3,161

    Scope community team

    That sounds interesting @earthchild23, I hope you enjoy the book :) 
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  • harry01harry01 Member Posts: 160 Connected
    @earthchild23 lichess is a good site. It's free. 
  • Ross_ScopeRoss_Scope Posts: 3,161

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    Thanks for your insight @harry01, hope you're well.
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Ok great @harry01 and @Ross_Scope yes I’ve just got round to doing this reading now. 
  • Ross_ScopeRoss_Scope Posts: 3,161

    Scope community team

    Are you enjoying it @earthchild23?
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    @Ross_Scope Yes it takes your mind of things but gets too much at times as it’s a piece on ’animal psychology’ that I’m reading at the moment. Have you been ok? 
  • Ross_ScopeRoss_Scope Posts: 3,161

    Scope community team

    Ah I see that's understandable, but I'm glad you're enjoying it on the whole @earthchild23 :) 

    Yes I'm well thank you, very cold at the moment even though the heating is on, but I'm well nevertheless :)  Thanks for asking
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Hi @Ross_Scope I hope you warm up soon the weather has changed as is getting colder day by day.. best to keep wrapped up and put extra layers on in the house. 
    I’m always got and cold think it’s hormonal so the hearings on and off at home.. 
    ive given reading a miss tonight I have a terrible headache coming on and my legs are aching again. Plus I’ve been struggling the last few days mentally that’s why I took up reading but it seems as mum said I’m neglecting myself abit sometimes illness takes over and it gets difficult to want to even get washed or dressed I hope one day I don’t have to rely on family for support. I’ve been trying to loose weight by eating less too but with everything I’m still exhausted through the day and up on a night. Let’s hope tonight is different hopefully the noises I’ve been hearing will calm down too. 
    Stay well and take care we all need to support and be kind to one another in these times.

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