Mental health issues are becoming physical pains. — Scope | Disability forum
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Mental health issues are becoming physical pains.

earthchild23
earthchild23 Member Posts: 145 Pioneering
Hi 👋 I’m EARTHCHILD23🌍 🌷 
I hope you are all ok and been well and safe through the pandemic.
I am a mum to a beautiful 9 year old, and we are both survivors. But plodding on. We have been through a lot as many others have been on here and I just thought I’d share. I have EUPD, OCD Depressive disorder, ADHD, and dyslexia so I do apologise when my messages get jumbled or cut off.
So I wanted to ask something... 
I know there’s been a post about how people are coping with physical illnesses affecting there mental health but for me it’s quite the opposite I just wanted to ask and share if anybody has a mental health disability that over time is now affecting there physical health? 
At the moment I’m suffering from hyprolactenemia, gallatorea, fatigue, pins and needles, bloated stomach, headaches, back pain, leg and hand numbness. It’s quite bizarre it’s being investigated, I’ve been and had a MRI to check my head and everything is normal, so my GP has ruled out any growths in my brain, but my hormones are elevated especially one called prolactin it’s basically making me feel like I’m pregnant and suffering from stiffness with numbness and pain all at once. I have an appointment on video call with endrincologist, who will probably tell me it’s my anti psychotic medication but I’m on a low dosage and my anti depressants can’t cause it. 

I just want to know if anyone else has experienced this or has any information on how they cope I know you can’t give medical advice as your not GPs. 

Thanks  😃
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Comments

  • leeCal
    leeCal Member Posts: 4,319 Disability Gamechanger
    Hi, have you checked out the side effects pamphlet that comes with your anti psychotic medication? That may shed some light on the matter, apart from that I wouldn’t know.

    The difference between science fiction and science fact is funding

  • earthchild23
    earthchild23 Member Posts: 145 Pioneering
    Hi 👋 @leeCal do you mean leaflet? 
    And if so I don’t get a leaflet I have a dosset box that comes everyweek so I have no idea 💡 hun 
  • leeCal
    leeCal Member Posts: 4,319 Disability Gamechanger
    edited August 2020
    Yes, I meant leaflet. That’s all I can suggest personally.
    perhaps @chiarieds could help.

    The difference between science fiction and science fact is funding

  • earthchild23
    earthchild23 Member Posts: 145 Pioneering
  • janer1967
    janer1967 Member Posts: 12,742 Disability Gamechanger
    Hi you could look up your medication side effects on the internet or contact your pharmacy they can advise you
    I have professional experience in HR within public,  private, and charity sectors.  If I can help I will 
  • earthchild23
    earthchild23 Member Posts: 145 Pioneering
    Hi @janer1967 I’ve spoken to a consultant today (Friday) who is going to test to see what’s going on. I’ve looked up online some of the symptoms are side effects but when all together as symptoms for a women it can be many other things going on. I’m going to wait on consultant now as I’ll just work my self up again. 
    But thanks for advice 
    😊
  • janer1967
    janer1967 Member Posts: 12,742 Disability Gamechanger
    Hope you get it sorted with the consultant and start to feel better 
    I have professional experience in HR within public,  private, and charity sectors.  If I can help I will 
  • Ross_Scope
    Ross_Scope Posts: 5,377

    Scope community team

    Hello @earthchild23

    Best of luck with the consultant, let us know how you get on :) 
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  • earthchild23
    earthchild23 Member Posts: 145 Pioneering
    Hi @Ross_Scope 
    i hope you are ok? 
    Yes it was reassuring and I find it more comfortable as your in your home and not worried about everything else with this pandemic, I just hope I’m able to get some more information to understand what is happening from the symptoms I’m experiencing. Which will also be helpful when completing my PIP renewal. (When it magically appears)
  • Tori_Scope
    Tori_Scope Posts: 6,575

    Scope community team

    I also hope you get some more information @earthchild23, and that you get your PIP renewal soon :) 
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  • Notquitedisabled
    Notquitedisabled Member Posts: 8 Listener
    I can be in a mental state where I'm stressed and it causes a headache, or when I don't move enough, partly due to depression, and that causes a headache eventually.

    But there's more to it. I believe mental illness IS physical illness. Regardless of any emotional trauma that may have triggered it, "mental" illness is caused by physical illness we label "imbalances" and treat physically (or at least I do, with medication). 

    What I'm trying to say is that, in my personal experience and opinion, the "mental" aspect of mental illness is a SYMPTOM of a PHYSICAL imbalance or illness. And if one symptom of the imbalance/illness is "mental," it is likely that OTHER symptoms of the imbalance/illness exist also, but are classified as "physical." 

    It's possible you have one complex system where all your symptoms are actually connected by ONE disease, condition, or syndrome, and that doctors just miss it or there is no diagnosis for it (which doesn't mean it doesn't exist, just that it hasn't been studied or "discovered" officially). 

    It's also possible that your new symptoms are not connected to your mental illness at all and should be treated differently. What your post reminded me was the book, "Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed and Sick," by Maya Dusenberry. The book is filled with stories and anecdotes, dating back hundreds of years, of women who were seriously ill but were consistently told their symptoms were "mental illness" or that the illness was real but "created" by their minds. The illnesses of course were NOT created by their minds, and so the women never got better, but were blamed for their illnesses and called difficult patients and "malingerers" for seeing doctor after doctor and refusing to accept that they were not "really" ill.

    Only with the 20th century and several waves of western women's increasing social and economic power have we found that more and more of these "nonexistent" diseases are finally getting studied. It took decades, for instance, to get CFS/ME to get real study because the women whom it affected were labelled liars. 

    So what I'm trying to say is, please hang in there, and whatever the case is, whether you ARE actually experiencing physical illness as a result of mental illness, or something totally different than mental illness, please don't give up on yourself or think you're crazy or the only one suffering with your condition.
  • harry01
    harry01 Member Posts: 172 Courageous
    @earthchild23 yes. I had violent episodes of generalised muscular spasms. They were preceded by very high levels of stress. 

    Look up 'functional disorder'.  As far as I know our scientific understanding on this is not very good at all. 


  • Chloe_Scope
    Chloe_Scope Scope Posts: 10,565 Disability Gamechanger
    Hi @earthchild23, how are you doing today? :)
    Scope

  • earthchild23
    earthchild23 Member Posts: 145 Pioneering
    edited October 2020
    Hi guys so here’s a update.. 

    @Chloe_Scope

    @janer1967 😊. I’ve found a letter on my heath records that I’ve been rejected from nerve conduction so it looks like because of Covid they won’t be investigating why I’ve got pin n needles in my hands and legs which lead them to spasm and pains 

    It’s one thing after another tbh I’m fed up.
    @Tori_Scope my PIP review has come through I’ve sent it off ma be my partner did it together so I’m waiting to see if it goes ok as there wasn’t much space to explain but I sent in my MH care plans and records. 
    So yes I’ll still need that luck. 
    Don’t know what I’d do without this platform 🤦‍♀️. 
    Thanks guys 
    sorry for late reply 
  • earthchild23
    earthchild23 Member Posts: 145 Pioneering
    harry01 said:
    @earthchild23 yes. I had violent episodes of generalised muscular spasms. They were preceded by very high levels of stress. 

    Look up 'functional disorder'.  As far as I know our scientific understanding on this is not very good at all. 


    harry01
    Yes well I completely understand that one. As my previous medication was giving me restless legs and I’d get pain all the way through them. I called it nerve pain as it was stabbbing and wouldn’t shake off. 
    I will look up functional disorder and enquire with GP. 
    Thanks 😊 

  • earthchild23
    earthchild23 Member Posts: 145 Pioneering
    I can be in a mental state where I'm stressed and it causes a headache, or when I don't move enough, partly due to depression, and that causes a headache eventually.

    But there's more to it. I believe mental illness IS physical illness. Regardless of any emotional trauma that may have triggered it, "mental" illness is caused by physical illness we label "imbalances" and treat physically (or at least I do, with medication). 

    What I'm trying to say is that, in my personal experience and opinion, the "mental" aspect of mental illness is a SYMPTOM of a PHYSICAL imbalance or illness. And if one symptom of the imbalance/illness is "mental," it is likely that OTHER symptoms of the imbalance/illness exist also, but are classified as "physical." 

    It's possible you have one complex system where all your symptoms are actually connected by ONE disease, condition, or syndrome, and that doctors just miss it or there is no diagnosis for it (which doesn't mean it doesn't exist, just that it hasn't been studied or "discovered" officially). 

    It's also possible that your new symptoms are not connected to your mental illness at all and should be treated differently. What your post reminded me was the book, "Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed and Sick," by Maya Dusenberry. The book is filled with stories and anecdotes, dating back hundreds of years, of women who were seriously ill but were consistently told their symptoms were "mental illness" or that the illness was real but "created" by their minds. The illnesses of course were NOT created by their minds, and so the women never got better, but were blamed for their illnesses and called difficult patients and "malingerers" for seeing doctor after doctor and refusing to accept that they were not "really" ill.

    Only with the 20th century and several waves of western women's increasing social and economic power have we found that more and more of these "nonexistent" diseases are finally getting studied. It took decades, for instance, to get CFS/ME to get real study because the women whom it affected were labelled liars. 

    So what I'm trying to say is, please hang in there, and whatever the case is, whether you ARE actually experiencing physical illness as a result of mental illness, or something totally different than mental illness, please don't give up on yourself or think you're crazy or the only one suffering with your condition.
    @Notquitedisabled

    Honestly everything you have said is what I feel! 
    I have gone through leg spasms to headaches dizziness and fainting to fatigue and been in awful pain where my bones feel crippled. I’d understand if I was like 70 y/o but I’m just going 27 ! The effects of my mental health are having an impact on my physical health and it’s hard for me to explain to the GP without them acting as if I’ve become mentally unwell again. 
    A typical day at the moment consists of me being drowsy and fatigued, not feeling any energy, getting a headache needing to lye down, then it gets to the evening I’m wide awake with spasms in my arms and or numbness in my back and legs. It’s actually terrible! 
    I will look up that book too as well as functional disorders 
    ive gone from looking up symptoms of ME Fibromyalgia to try and understand if I am suffering from symptoms of them too as it doesn’t make sense, and on top of that I’m putting on a lot of weight rapidly without changing my eating habits I’ve gone from 13stone to 17 1/2 in less than a year. I’m worried because I feel like my body is going through something but I don’t know what but everytime I try to vent it it’s always the thing that it’s my EUPD and OCD Or Psychosis symptoms starting and it generally isn’t in taking my medication and actually trying to cope with myself. 
    (Sorry for the vent) 
    things sometimes get too much. 
    But thanks @Notquitedisabled 😊
  • Tori_Scope
    Tori_Scope Posts: 6,575

    Scope community team

    Hi again @earthchild23. There's no need to apologise for the late reply, it's good to see you on here.

    Well, my fingers are still firmly crossed for your PIP outcome! 

    There's also no need to apologise for venting, it sounds like things have been really tough. You're always welcome to vent on here any time.
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  • earthchild23
    earthchild23 Member Posts: 145 Pioneering
    edited October 2020
    Hey @Tori_Scope i thought I’d come on as I’m having another night of no sleep, I buckled up the energy and confidence to go on a walk today after taking my son to school on taxi. anyways I went on the walk with earphones in so I don’t have to deal with people or socialiseto see if I could stretch my legs to see if the leg spasms would stop but it seems it’s returned and they are painful when they clench up (it’s like when you clench your fist and your muscle goes tight) but it’s not worked, I am also wide awake so imsomnia has returned but I’m absolutely knackered and then during the day today I’ll be lethargic and fatigued from being up. It’s honestly a pain and Yes coming on here helps  sometimes I just need to let out the frustrations that are going around in my head. 
    I’ve tried calling pip to see if they’ve recieved the form but couldn’t get through so I’ll try again later on if I’m not asleep all day. Mental illness is like being at war some times you win and sometimes you lose but you are forever fighting with yourself. 
    Thank you for getting back to me 😊

  • Tori_Scope
    Tori_Scope Posts: 6,575

    Scope community team

    That sounds painful, I'm really sorry @earthchild23. Hopefully the other test results will come back soon, and the doctors will agree to investigate your nerve pain further at some point too.

    I'm sorry to hear you're also having trouble sleeping. Are you still receiving mental health support? I think I remember you saying that you had a support worker? Bad sleep always makes things worse, so definitely try and speak to either a member of your mental health team, or your GP. Do you know what might be causing your insomnia?

    I think the phoneline might open at 8am. 

    I hope you managed to get some sleep, and that you feel a bit better today :) Let us know how you're feeling.
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  • earthchild23
    earthchild23 Member Posts: 145 Pioneering
    Hi @Tori_Scope
    ive managed to do a bit of walking but my legs still go numb so I’m going to contact go again to discuss the conduction rejection and pain I’m still having. 
    I really hoped this would be something that could stretch out but it doesn’t do it. 
    I don’t have a mental health support worker but I have one for domestic abuse called a ISVA. She can help with supporting letters to my mental health team so I might ask her to get in contact with them about the insomnia and low mood but I offset feel like once speaking to them I’m being a bother so it’s just more fustrating. 

    I have also managed to get in touch with PIP to speak to them about the review they just said they have recieved it with evidence and I’ll have to wait minimum 8 weeks for a decision and if they don’t accept my review they will stop payments, I guess they tell everyone that but it just makes you think your claims going to end and make things difficult again. 

    Thanks for getting in touch and I hope you are ok too 😊

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