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Terminal illness

marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
edited December 2020 in Disabled people
Hi I have central sleep syndrome severe and congestive heart failure my doctor tolled me yesterday that my central sleep apnea is progressive what dose he mean 
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Replies

  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    HI,

    Progressive means slowly getting worse. Although i wouldn't have thought that sleep apnea would be classed as a terminal illness.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Well my doctor said its getting worser I have central sleep apnea which is linked in with congestive heart failure 
  • OxonladyOxonlady Member Posts: 245 Pioneering
    [email protected], this is the sort of question you need to put to your doctor and ask him to explain in a way that you can understand.
    I find that when doctors don't explain things properly, patients can get worried and anxious unnecessarily. 
    Write down all your questions and put them to the doctor's secretary so that they can get back to you with a further and clearer explanation. 
    Have you been given a CPAP machine to use at night to help your breathing? 

  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Yes but its getting worse 
  • OxonladyOxonlady Member Posts: 245 Pioneering
    Are you using the CPAP machine properly?
    I'm afraid I couldn't use it, it kept me awake so I gave up on it. 
    If your breathing is getting worse you do need to inform your GP and Consultant. 
    I'm guessing that you are worried about the congestive heart failure diagnosis. Please discuss this further with your doctors and especially what you can do to help yourself. Some health authorities have a congestive heart failure specialist Nurse that patients can talk to for advice. 
  • woodbinewoodbine Member Posts: 2,274 Disability Gamechanger
    @marcushodgkiss93 I'm afraid we are not doctors and you need (as suggested) to discuss this with your GP or consultant. Good luck
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Hi just to let you know I have spoke to gp and he said I have a chronic illness 
  • Cher_ScopeCher_Scope Community Team Posts: 2,472 Disability Gamechanger
    Hi @marcushodgkiss93  Thanks for the update.  Do you have a treatment plan and someone to help support you?
    Online Community Co-ordinator

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Yes can I ask what benefits am I able to claim due to my chronic illness as I can go back to work as it's got worse 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Yes can I ask what benefits am I able to claim due to my chronic illness as I can go back to work as it's got worse 

    According to another thread you're already claiming Universal Credit. If you haven't been through the work capability assessment process and been placed into one of the groups then you can send in fit notes to start the process off.

    I have tried to advise you on other threads without success.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    I meant to say am I able to claim new style esa at same time as universal credit sorry my confusion 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Claiming New style ESA at the same time as UC will not make you financially better off because the NsESA will be deducted in full from any UC entitlement. Also to claim New style ESA you will have needed to have worked and paid the correct amount of NI contributions in tax years April 2017 to March 2019, if you haven't worked in those years then you won't be able to claim it.

    Have you been through the work capability assessment process for your UC claim? It's the same process as it was for ESA. If you have, have you been placed into one of the groups?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    I have been placed into no work related group 
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    In universal credit 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    There's 2 no work groups, one is LCW and the other is LCWRA. UC has replaced all the old benefits. Other then PIP there's no other benefits you could claim but PIP is a disability benefit.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    What is no work related requirements 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    edited December 2020
    It means you do not have to look for work or prepare for work.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Is that the extra money in universal credit
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    edited December 2020
    The extra money is the LCWRA group. Which is Limited capability for work related activity. It's the same as Support Group for ESA. It will tell you on your UC statement if you receive the LCWRA element in with your monthly payments. On your statement it will give you a full breakdown of all the elements included with your claim.

    LCWRA element is an extra £341.92 per month.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    You're welcome :)
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Sorry poppy I am a pain 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    You're not a pain at all. I'm always happy to help anyone here on the community but it can be extremely difficult to advise on very little information but we got there in the end :)
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Hi poppy have had a look  at old back statements from 2018 and it says I was getting enchanted disability premium of esa and was getting £179.00 every 2 weeks before transferd over in 2019. 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    edited December 2020
    Hi poppy have had a look  at old back statements from 2018 and it says I was getting enchanted disability premium of esa and was getting £179.00 every 2 weeks before transferd over in 2019. 

    That amount every 2 weeks doesn't sound right to me, or was that a weekly rate? In another thread you mentioned that DWP are looking at some backdated money that you might be owed. What's happening regarding that?

    May i also ask why you claimed Universal Credit? Was it because you were found fit for work after a work capability assessment for ESA? Or maybe because you moved house to a different local council?

    Everything you've said in previous threads hasn't really made a lot of sense and i've tried to help you many times in the past but we haven't really got very far.

    Can you also look on your UC journal and tell me exactly what elements you're receiving for this please?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    I am getting £587.22 every mouth and no I was not found fit for work I was on enhanced rate of disability premium support group and transferd over to universal credit beacuse i live in an earer of universal credit and yes I was payed my arrears by esa. 
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    And also my arrears from EESA was £2,595.60 that was backed dated from 2018 to 2018. 
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    2018 to 2019 that's ment to say 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Enhanced rate of ESA doesn't make sense. Enhanced disability premium is paid as part of Income Related ESA when in the support group. Were you claiming the Severe disability premium in with your ESA payments? What was the arrears for?

    Please have a look at your statement on your journal and tell me exactly what elements you're receiving. It will have a full breakdown of each element.

    I do not understand why you claimed UC in the first place if you weren't found fit for work. All areas are now a full UC area but this doesn't mean everyone has to claim UC. They don't "put" you on UC, this is something you have to claim yourself. I'm still claiming the old Income Related ESA, as well as many thousands of other people.

    Sorry for all the questions but it's still not making any sense to me. I see you've posted several times on different threads in the past asking similar questions but all we're doing is going round in circles.


    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    For get it dont understand how I am not making any sense when your the only one that's saying I am not making sense every one else has managed to help me thanks. 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    You've not received any other help, except from myself. I'm sorry if me Trying so hard to understand you is bothering you. You keep saying that DWP put you on UC but this simply won't happen ever.

    I've asked you muiltiple questions on several different threads but you're not answering the questions so i don't know how i'm supposed to help you.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Sorry poppy but I have not found your advice helpful as I have explained to you and all you keep coming up with is I am not making any sense and I know what has happened I never claimed universal I was transferd off esa to universal credit and it was and error of esa hence why they payed me the arrears what they owed me from 2018 to 2019. 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    I'm sorry you haven't found my advice helpful but without more information it extremely difficult to advise, just like i keep continuing to say. We are just going round in circles.

    Regardless of not understanding why you were transferred to UC because this just wouldn't happen, there's nothing i can advise you regarding that.

    The most important thing now is that you're receiving the right amount of money in with your UC payments each month.

    I've asked you this question multiple times but you still haven't answered it. What elements exactly are you receiving from UC, please check your statement on your journal and it will tell you exactly what you're claiming. Also i'm assuming you were in the Support Group when you were claiming ESA, is that correct?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Thank you but there's still the other question that you're refusing to answer and i can't help you further without knowing this.

    What elements exactly are you receiving from UC, please check your statement on your journal and it will tell you exactly what you're claiming.

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • Cher_ScopeCher_Scope Community Team Posts: 2,472 Disability Gamechanger
    Hello there.  Just a gentle reminder to keep it friendly, as per our community guidelines.  

    As benefits are dependent on complex personal circumstances, it can be tricky to ascertain what is happening with limited information and without being able to directly 'speak' with someone.  It's important to remember our members intention is to help and not hinder should wires ever become crossed.  

    As ever thank you for your benefits advice @poppy123456 and I hope you have a clearer understanding soon @marcushodgkiss93.  If you wish to talk to someone further about this, you can contact Scope's free helpline on 0808 800 3333.  
    Online Community Co-ordinator

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Thank you and thanks poppy for trying to help me I will contact you and explain better 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    edited December 2020
    @Cher_Scope thank you. Simply answering that very important question is really all that's needed here.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • chiariedschiarieds Community champion Posts: 6,341 Disability Gamechanger
    Hi @marcushodgkiss93 - I'm sorry your health has worsened, & you're unable to work. I understand that you have a 10 year award for the daily living part of PIP (enhanced rate), but nothing for the mobility part.
    Are you still receiving ESA? Last month you said you were told the payments for this had stopped, but they were looking into money they owed you. It seems you have now received the arrears.
    If you're now getting Universal Credit, I understand that you get a basic amount for this, & an extra amount if you are placed in the Limited Capability for Work-Related Activity (LCWRA) group (because you cannot work). There are also some other elements that you can get extra money for as well as this LCWRA element.
    I wonder if you have checked your UC journal to see if it mentions these. For example it might say 'Housing cost element,' which may help towards paying your rent. So if you check the statement on your UC journal, it should say which of these elements you are getting. Please let us know what this says, thank you. :)

  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Will do thank you 
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    It say limited capability 
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Its saying Limited capability for work 
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    I am in the no work related group 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    There's 2 of those groups but what exactly does it say? Is it limited capability for work related activity (LCWRA) or limited capability for work (LCW) The LCWRA is an extra £341.92 per month.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • chiariedschiarieds Community champion Posts: 6,341 Disability Gamechanger
    Thank you @marcushodgkiss93  - does it say anything else about any other elements, such as a 'Housing cost element?'
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Yes it say housing free NHS and electricity warming 
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    I am in the no work related group 
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Limited capability for work no work related group 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Thanks. You said earlier that you're receiving £587 per month but that doesn't seem much at all, if you're claiming the housing element as weill. Do they pay your landlord directly, or do you pay it yourself?

    You should be able to click onto your most recent Universal Credit statement (where it tells you what you will be receiving that month) and look to see exactly what it it says. Can you do this please?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    My monthly payment is £848.77 every month it says 
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Just found it 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Thank you. Do you pay your rent from this or is your rent taken from your UC payments and they pay it for you? Sorry again for all the questions.

    Are you also under or over 25?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    I am 27 and no they pay it to me 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Thanks. It doesn't seem like you're in the LCWRA group because if you were then your payments would very likely be higher. I think you maybe in the LCW group.

    I'm assumoing you don't know how to find your statement on your journal? It will tell you the exact elements of what you're claiming on there. So for you it would say Standard allowance £409.89 then housing allowance, if you were in the LCWRA then you would be receiving an extra £341.92 per month.

    I think the best thing you can do is to ring the scope helplone tomorrow morning when they open and speak to someone there and you will be able to tell them everything and they will be able to advise you correctly because we could be here all night.

    The number for you to ring is Scope's free helpline on 0808 800 3333.  

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    I spoken to some one on phone to day and they said because I am in the no work related group then I would be receiving the extra. Thank you 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    You're welcome but to me your payments seem too low for you to be receiving the extra £341.92 per month for the LCWRA gorup.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    If this helps you too the amount I picked up this month was £444.09 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    No, that doesn't help at all, sorry. At first you said you were receiving £587.22 and then you said it was £848.77 and now you're saying you had £444.09 this month.

    I'm thinking you're in the LCW group although the numbers still don't make any sense. On your statement it will tell you exactly all the elements you're claiming as well as the amounts next to each element. At the end of your statement it tells you exactly how much you'll receive for that month.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    In LCWRA I know its 341.92 a month how so I pick up 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Sorry but i don't understand that. I'm sorry but i can't help you further without knowing the exact elements you're receiving.

    Do you have someone like a friend or relative that can help you look on your journal to see exactly what you're claiming?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    What do you mean by elements 
  • chiariedschiarieds Community champion Posts: 6,341 Disability Gamechanger
    Hi @marcushodgkiss93 - when you have a look at the statement on your journal, does it say perhaps the basic amount is about £400 each month?
    Are there any other amounts that you can see that are extra to this such as a 'Housing cost element?'
    So, under the one that says just over £400, are there any other amounts of money listed?
    Then what is the total of the money you get? Thank you for your patience. :)
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    With Universal Credit there are various elements (parts) so you have the standard element, for single people under 25, standard element for over 25's and a couple element. You have child elements, LCW element, LCWRA element, housing element (which is for your rent) carers element for those that care for another person.

    For you because you live alone you will be receive standard element (over 25) £409.89 then your housing element (no idea how much that is for you) then either the LCWRA or LCW element.

    Each month before you receive your money, you will have a statement on your journal and this will tell you exactly how much you're going to get into your bank. In this statement it will tell you all the elements that are included in your money and at the end of the statement it will give you a total amount that you will be getting into your bank. Can you actually see this anywhere on your journal?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    It says I can get help with health care costs prison costs also energy warming improvements cost food cost care costs and so on 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    That's nothing to do with the elements that you receive.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    It's not clear on universal credit I cont find the elements that your on about 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    You'll need to find where your monthly statements are and it will tell you everything on there.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    The statement should be in the payment section.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    You know why I cont see it beacuse it's the assessment period that why 
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Assessment period I only got standard for assessment period ESA only just set every over to universal credit I should know in my January payments 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Is this a very recent UC claim?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Yes I have checked what element I get and it is LCW and in my to do list is take part in a work search review by phone why I dont understand stand why my work coach has put me down for that as she said I wont have to look or prepare for work due to my disability and illness 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    You may not receive any extra money for the LCW group, it will depend on when your claim started. If it was after April 2017 then you won't receive any extra money.

    You will need to ask your work coach because i won't be able to tell you why your journal says this. If you haven't had the work capability assessment yet then you may not be in any group, your work coach may have decided that no work requirements are needed because of your health condition so has switched them off. Journal enteries can be made by anyone and not just your work coach.

    It took a long time to get there but eventually we did. Had you said earlier that this was a new UC claim then i could have advised you that you may not have had a statement yet.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Offical the work coach has put when it started is 7/7/2019 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    That means if it's just LCW then you won't receive any extra money each month. You will only receive extra money of you're placed into the LCWRA group.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    But I thought if you get enached rate of pip you automatically be getting LCWRA I was getting LCWRA before 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Enhanced rate of PIP doesn't automatically entitle you to LCWRA.

    Yes i did note that you were previously claiming ESA but when did that claim end? If it was more than 1 month ago then your ESA claim will not be carried over to UC.

    Please speak to your work coach because i can't give you any further advice than i've already given you. Your work coach will be able to tell you what you're entitled to and which group you'll be placed into, although you did say it was the LCW group.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • chiariedschiarieds Community champion Posts: 6,341 Disability Gamechanger
    Hi @marcushodgkiss93 - I see you mention that you know being in the LCWRA group would mean you would get an extra £341.92 a month, but you say you have been put in the LCW group instead, so you can't get this extra amount, sorry. Unfortunately a PIP award doesn't change what you may get with UC.
    I'm absolutely sure Poppy has advised you correctly. :)
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Just found out I was in support group of income related esa and getting enchanted disability premium what should I be getting on universal credit 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    This will make no difference if your ESA claim ended more than 1 month after you claimed Universal Credit.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • marcushodgkiss93marcushodgkiss93 Member Posts: 122 Connected
    Hi poppy I have spoken to dwp ESA today and they said I was in the work related activity group and got enached disability premium in 2018 and then transferred onto universal credit in 2019. 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Sorry but that doesn't help me. Please get some further expert advice because i've spent a lot of time trying to help you and it's extremely difficult to give any further advice because i don't know all of the details of why your ESA stopped or why you claimed UC.

    On Sunday after spending all my evening trying to help you eventually tell me that your UC is a new claim and now you tell me that you claimed it in 2019 but we are now coming towards the end of 2020.

    This link will help you find what advice agency is local to you. https://advicelocal.uk/

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Hi poppy I have spoken to dwp ESA today and they said I was in the work related activity group and got enached disability premium in 2018 and then transferred onto universal credit in 2019. 

    Just to add that the work related activity group for ESA is the WRAG and for UC this would be LCW and not LCWRA. I believe you said your work coach has already placed you into the LCW group.

    You maybe eligible for the lower extra payment of £128.25 per month but it will depend on when your claim started, if it was after April 2017 then you won't be entitled to any extra money.

    There's no disability premiums paid when claiming UC because they don't exist.

    Expert advice will be needed so that you can explain to them exactly what happened and they will be able to tell you whether you're entitled to the extra £128 per month.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
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