Physical impairments and mobility issues
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Concerned about another member's safety or wellbeing? Find out how to let us know.

Hi, my name is MAGGIEMO1! I have myelopathy, myelomalacia, and stenosis

MAGGIEMO1MAGGIEMO1 Member Posts: 3 Listener
Hi everyone I'm new, I have myelopathy, myelomalacia & stenosis, injured my neck in 95 was told I fractured C/3 vertabra transfered to neurosurgery hospital treated as spine injury patient, send home 4 days later told I had sprained my neck and what other hospital thought was fracture was a congital rib, I never recovered after attenting neuro for 23 yrs looking for a cause, I got recalled due to invedtagation in to a Dr, now told I had the above and last week been told I won't have surgery as it could make me worse, I'm starting to get frightened, it turns out a mri scan I. 2006 had said I had ischemic changes due to spinal cord compression, now I have also been told I fractured my c/2/3 vertabra in 1995, so I've never had surgery 


Replies

  • janer1967janer1967 Member Posts: 12,026 Disability Gamechanger
    Hi and welcome to the community and sharing your story with us 

    You have been through it is there anything they can do now to help 

    Feel free to join in or ask any questions 
    Here to help with my experience in hunan resources and employment rights 
  • MAGGIEMO1MAGGIEMO1 Member Posts: 3 Listener
    Thank u for the welcome, I go to private phisio which helps me with my mobility, but I'm now at spinal injury unit & orthopedics  if the operate it could take away the mobility that I have, so there just going to watch my progression if compression develops again they will do surgery but not until then 
  • janer1967janer1967 Member Posts: 12,026 Disability Gamechanger
    It's good you are being monitored and fingers crossed you get stronger 
    Here to help with my experience in hunan resources and employment rights 
  • MAGGIEMO1MAGGIEMO1 Member Posts: 3 Listener
  • chiariedschiarieds Community Co-Production Group Posts: 10,158 Disability Gamechanger
    Hi @MAGGIEMO1 - & welcome to this friendly community. Thank you for joining & saying a little about yourself. I'm sorry for all you've been through, but hope the physio is helping & that you can be helped further without needing surgery in the future. :)
  • Cher_ScopeCher_Scope Posts: 4,417

    Scope community team

    Hi @MAGGIEMO1 and a warm welcome to our community. Blimey, you have been through it.  I'm sorry to hear about the missed diagnoses; if you wanted to explore taking this further then I'd recommend getting in touch with your hospital's Patient Advice and Liaison Service (PALS).  

    I absolutely understand you being apprehensive but it's good the physiotherapy is helping with your mobility and it sounds like you are now being carefully monitored  :)  

    You might find some of the stories shared in our Physical impairments and mobility issues category helpful to read.  While also, feel free to browse our recent discussions and take a mosey into our virtual coffee lounge where conversation is relaxed, varied and light-hearted.  

    If you ever have any questions, please let us know.  I hope you have a nice week and looking forward to speaking again soon.  
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
Sign in or join us to comment.