Increased muscle spasms and pain — Scope | Disability forum
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Increased muscle spasms and pain

System
System Posts: 629

Scope community team

This discussion was created from comments split from: Hi, my name is Scottyp9273!.

Comments

  • Scottyp9273
    Scottyp9273 Member Posts: 3 Listener
    Hi there I'm just wondering if anybody could help me my son has SP he is 20 yrs old and in the last Yr or so his muscles are starting to spasm much more and he is in really bad pain I'm just wondering if there is anybody help me please 
  • Scottyp9273
    Scottyp9273 Member Posts: 3 Listener
  • ellieflower3
    ellieflower3 Member Posts: 186 Courageous
    Hi there 
    Hello, welcome! If you need advice, made a thread we'll try to help you! big hugs, stay safe!
    Lilly Josh  <3
  • janer1967
    janer1967 Member Posts: 12,827 Disability Gamechanger
    Hi and welcome to the community 

    There is lots 9f info in our cp section you may find useful and I will tag in our forum cp adviser who will hopefully be able to offer you some advice 

    @Richard_Scope
    I have professional experience in HR within public,  private, and charity sectors.  If I can help I will 
  • chiarieds
    chiarieds Community Co-Production Group Posts: 11,025 Disability Gamechanger
    Hi @Scottyp9273 - & welcome to the community from me also. I'm wondering if your son's increasing problems have been discussed with his GP? If so, I wonder if any medication has been mentioned, or a referral to see a neurophysiotherapist?
    There's some info here about CP that may be helpful: https://www.scope.org.uk/advice-and-support/cerebral-palsy/
    As Jane says, Richard will be more than willing to help.
  • Alex_Scope
    Alex_Scope Posts: 213

    Scope community team

    Hi @Scottyp9273 thanks for joining the community. I've split this discussion and moved it into the CP category for you so that others can more easily find it. 

    A lot of people living with CP, myself included, struggle to get the same level of support they did as children. Adult CP Hub is worth looking into for for advice, stories and guides on 'how to help yourself'. The website also has a directory of medical professionals, bodies and charities which might be useful as well. 

    Do let us know if you have any other questions and I hope you find this helpful.

    Alex
    Online Community Coordinator
    Scope

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  • Richard_Scope
    Richard_Scope Posts: 2,946

    Scope community team

    Hi @Scottyp9273
    Welcome to the community.

    As we age with CP the physical aspect of the condition can change, especially if we don't have access to physiotherapy or hydrotherapy
    The first thing I would suggest would be to get an appointment with your GP and request a referral to the Adult CP Care Pathway. This is basically like an M.O.T. for us adults with CP and involves a multi-disciplinary team of neurologists, orthopaedic consultants and orthotists, that will assess your son's CP holistically. However, there may be a long wait for an appointment.

    There are things that your son can do while he is waiting for an appointment. Exercise, particularly strength training is beneficial. Movement with CP is important. Pain, stiffness (more than his normal) and discomfort can be a sign of a lack of movement. 

    With CP, our nervous system is affected - how it is affected is different in every single one of us living with CP. Our nervous system, which is our own computer, keeps us alive and gives us the ability to move. 

    All our bones, joints, tendons & muscles are all connected & rely on signals received from our nervous system.  

    So the less we move, the less our nervous system is working, the fewer signals are being sent to connecting parts (muscles, tendons etc) the less we use our muscles the tighter they become, (pull an elastic band & this is what a tight muscle looks like, a muscle should look like a non-pulled elastic band ) our joints become stiff as they don’t know what they need to do.  

    So, imagine you have a laptop, it’s about 10 years old, you turn it on, but it takes an hour to fire up so you can use it. This is what your body is doing the less we use it, and why we get pain.  

    As I mentioned, Strength (resistance) training is the best type you can do, it strengthens the muscles up, especially around affected joints. It makes sure you stay strong & keeps sarcopenia at bay, it helps speed up your metabolism, helps you lose weight, it helps the body with the latter 2 even at rest. (You can use anything as weights from milk bottles filled with rice or water, wine bottles, tins of beans, shampoo bottles, shower gel, washing up liquid etc) this can be done seated or standing. 

    I hope that helps and if I can answer anything else, please let me know :)

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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