Archie Battersbee — Scope | Disability forum
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Archie Battersbee

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woodbine
woodbine Community member Posts: 11,658 Disability Gamechanger
in Coffee lounge
Our thoughts and prayers must be with this boy and his family, they are now seeking permission from the high court for him to be moved to a nearby hospice.

They have fought a long hard battle to keep him on life support and it now seems that battle has been lost.

It is not the natural order for parents to bury their children but sadly it does happen, they are all in my thoughts tonight. x
2024 The year of the general election...the time for change is coming 💡

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  • Oxonlady
    Oxonlady Scope Member Posts: 566 Pioneering
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    Hi @woodbine, I agree with you entirely. There have been several cases similar to Archie Buttersbee's, I remember the fight Charlie Gard's parents put up. 
    It's so sad when young lives are lost. Every parent's worst nightmare... 

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  • SueHeath
    SueHeath Community member Posts: 12,420 Disability Gamechanger
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    I agree it's so sad, I think every one would try and keep him alive if it was their son.

    Really feel for his family - bless them x
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  • bg844
    bg844 Community member Posts: 3,887 Disability Gamechanger
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    Very sad indeed and I don’t wish that pain upon anyone but I do think they need to decide what sort of life that boy would have if he ever pulled through. 
    Wouldn’t wish that upon anyone.
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  • Sandy_123
    Sandy_123 Scope Member Posts: 50,610 Disability Gamechanger
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    I have been following this mainly on twitter, where drs reports are and the details of the court. Reading those reports, I can't see how the boy will survive the trip. Plus I don't think a hospice will be able to cater for him. As sad as it is.
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  • bg844
    bg844 Community member Posts: 3,887 Disability Gamechanger
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    Sandy_123 said:
    I have been following this mainly on twitter, where drs reports are and the details of the court. Reading those reports, I can't see how the boy will survive the trip. Plus I don't think a hospice will be able to cater for him. As sad as it is.
    I agree.
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  • leeCal
    leeCal Community member Posts: 7,550 Disability Gamechanger
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    It’s all very sad .

    “This is my simple religion. No need for temples. No need for complicated philosophy. Your own mind, your own heart is the temple. Your philosophy is simple kindness.” 
    ― Dalai Lama XIV

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  • poppy123456
    poppy123456 Community member Posts: 54,266 Disability Gamechanger
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    I've been following this too. Yes, it's very sad and i can't imagine what his parents are going though. I think there comes a time where you have to put the needs of a child before anything else.
    The high court rejected the appeal to move him to a hospice. The family have until 2pm to appeal that decision, which they are going to.
    I just feel that there comes a time when you have to stop and think what would be the best thing for him.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    It is very tough!  <3
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • SueHeath
    SueHeath Community member Posts: 12,420 Disability Gamechanger
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    RIP Archie Battersbee  :'(

    I so hope the family can come to terms with this, bless them all, very hard times  <3
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    RIP Archie Battersbee indeed @SueHeath :'( How are you managing this news at the moment? I hope you are coping ok but if you want to talk it through or need anything, we are all here for you  <3  
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • Lisatho11987777
    Lisatho11987777 Scope Member Posts: 5,911 Disability Gamechanger
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    I belive they should of left him until he passed on his own a parent will always fight for their child 

    RiP fly high x

    Thoughts are with the family 
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    I hear you @Lisatho11987777. Indeed, parents will always fight for their children. RIP Archie. 

    How are you managing with this news? I hope you are managing ok but if we can do anything to help please don't hesitate to let us know  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • Lisatho11987777
    Lisatho11987777 Scope Member Posts: 5,911 Disability Gamechanger
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    @L-volunteer I am ok I was in the same position 26 years ago  I thought that things would of moved on from that even machines dont keep people alive for ever  natural death still accurs 

    It's also a campaign I have fought for years the law always in my opinion contradicts its self  
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    Glad to hear you are ok @Lisatho11987777. Sounds tough that you were in the same position 26 years ago though.

    I can hear how you would want (and expect) things to have progressed since. Not least with how important it is to you and all the campaigning work you have done around it!  <3
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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