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Living with primary orthostatic tremour
MargaretO
Member Posts: 5 Listener
Hi I have a rare disease and don't look sick. I can walk but not stand. Even friends don't understand and doctors have never heard of it. I try to keep positive and live as best as I can. Thanks for listening.
Replies
Sounds like you are a very special lady
It is good that you can keep positive especially as no one understands.
We are always here to listen , support and help in any way we can so please let us know if there is anything we can help with
CR
Welcome too our online crew !!!!!!!!
You have got the right attitude !!!!!!!!!
Please please have a good look around & please let me know if there is anything else that I can help you with ???????
You are very welcome it's my pleasure !!!!!!
Many thanks !!!!!