Suffering with CRPS for over 10 years now — Scope | Disability forum

Suffering with CRPS for over 10 years now

Meza Member Posts: 1 Listener
Hi, I've been suffering with CRPS for over 10 years now, I also got diagnosed with osteoarthritis and fybro around 4 years ago, as if the CRPS isn't bad enough to cope with, you get hit with other conditions lol, the other one is sciatica, I do stretching exercises to help, it's very painful trying to do anything, but when your in so much pain and lack of sleep you tend to try anything, rant over lol, thanks for reading this x


  • Antonia_Alumni
    Antonia_Alumni Scope alumni Posts: 1,781 Pioneering
    Hi @CRPS

    Thank you for sharing this with us. Having an additional health condition can be a lot to deal with. I am happy to hear you have found stretching helpful. You may ask our chronic pain advisor , if you have any questions.

    How have you been doing lately?
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,674 Disability Gamechanger
    Hi @Meza
    Welcome to the community and thank you for sharing.  We have lots of members who have multiple diagnosis who understand just how tough that is! 

    Have you ever seen a pain clinic? 

    Pain clinics
    People with chronic pain may be able to attend a specialist Pain Clinic for assessment and possible pain management, together with advice on living a fuller life in spite of pain.
    Pain Clinics vary in the treatments offered and not all hospitals may have a specific pain clinic. Sometimes a Consultant with an interest in pain will prescribe drugs or give injections to try to control pain. Other clinics have teams of doctors, psychologists, nurses, physiotherapists, occupational therapists and others.
    Pain Management Programmes
    A Pain Management Programme (PMP) is a psychologically-based rehabilitative treatment for people with chronic pain which remains unresolved by other treatments currently available . It is delivered in a group setting by an interdisciplinary team of experienced health care professionals working closely with patients.
    Some Pain Centres may run Pain Management Programmes that aim to teach a group of patients with similar problems about pain, how best to cope with it and how to live a more active life, others may offer acupuncture and other complementary therapies.
    For the majority of people, attending a Pain Management Programme reduces the disability and distress caused by chronic pain by teaching physical, psychological and practical techniques to improve quality of life. It differs from other treatments provided in Pain Clinics in that pain relief is not the primary goal, although improvements in pain following participation in a Pain Management Programme have been demonstrated.
    Referral to a Pain Management Programme is usually via your local pain clinic.
    The British Pain Society has produced a publication on Pain Management Programmes, which can be found HERE.

    This information comes from the British Pain Society.

    Senior online community officer