Heart valve disease — Scope | Disability forum
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Heart valve disease

deb74
deb74 Community member Posts: 814 Pioneering
I have just been diagnosed with heart valve disease and was wondering if any of you have it and how do you manage it.

Comments

  • Chloe_Scope
    Chloe_Scope Posts: 10,586 Disability Gamechanger
    Hi @deb74 how are you feeling about this? We're here if you need any support :)
    Scope

  • deb74
    deb74 Community member Posts: 814 Pioneering
    Hi Chloe I am ok at the moment thanks. 
  • thespiceman
    thespiceman Community member Posts: 6,388 Disability Gamechanger
    Hello @deb74 Sorry to hear this thank you for sharing.

    I have the contact details for The British Heart Foundation.

    https://www.bhf.org.uk.

    Helpline 0300 330 3311.

    Informative website lots of information and support.

    We are here as a community to be supportive, ready to listen.. Anytime.

    Please keep in touch.

    Take care.
    @thespiceman
    Community Champion
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  • deb74
    deb74 Community member Posts: 814 Pioneering
  • Chloe_Scope
    Chloe_Scope Posts: 10,586 Disability Gamechanger
    I know getting a diagnosis can be a bit of a shock so please do reach out if you need anything :)
    Scope

  • deb74
    deb74 Community member Posts: 814 Pioneering
  • Adrian_Scope
    Adrian_Scope Posts: 10,821 Scope online community team
    Sorry to hear this @deb74. Do you have much support from family or friends?
    Community Manager
    Scope
  • deb74
    deb74 Community member Posts: 814 Pioneering
    I am not having too
    man problems at the moment but if I do my dad is always on the other end of the phone.
  • deb74
    deb74 Community member Posts: 814 Pioneering
    Just read last post and noticed I wrote man problems and not many problems. Done some research and it looks like i was probably born with heart valve problems. The doctor told me he already knew I had a heart murmur and it is only just starting to cause me problems. I will just have to look after myself a bit more and slow down and learn to relax when I
    need to.
  • thespiceman
    thespiceman Community member Posts: 6,388 Disability Gamechanger
    Hello @deb74 Thank you for sharing.  Please can I ask did you contact The British Heart Foundation?

    I know this is a difficult time for you.  We are here to be supportive. I can understand at this time everything is causing you a lot of anxiety.

    What I think is important is to find ways to deal with the anxiety and stress.

    I use my self as I suffer mental health issues have anxiety and use meditation and quiet time. Have a lot of relaxation music easy listening calming.

    Does help.  

    May I also add contact  The British Heart Foundation they may suggest support groups you can join. In your area where you reside.

    Something to look at and consider.

    Wish you well.  

    Take care.

    @thespiceman


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • deb74
    deb74 Community member Posts: 814 Pioneering
    I will. Thanks 

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