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Newly diagnosed with Crohns

paulv2paulv2 Member Posts: 3 Listener
edited September 2019 in PIP, DLA and AA
I have just in the last 3 months been diagnosed with Crohn's - however, I think I have had this for years. I remember going to the Doctors 5 years ago and they sent me for sigmoidoscopy camera which wouldn't of picked up Crohn's anyway.

I am also on this PROFILE trial - has anyone heard of it or are on it?

Does anyone have any recent experiences on apply of PIP? I will be ringing next week to start the claim.



  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger

    I can't help with the Crohn's question but do be aware that PIP isn't about a diagnosis, it's how those conditions affect your ability to carry out daily activity based on the PIP descriptors.

    Evidence will be needed to support your claim and the evidence should state how your conditions affect you.

    When filling out the form you should put as much information about how your conditions affect you as possible. Adding a couple of real life examples of what happened the last time you attempted that activity for each descriptor that applies to you.

    Having some understanding of the PIP descriptors and what they mean will help because it's very easy to over score yourself and think "i should score this many points" but when you take a closer look and do some research, it may not be possible to score as many points as you first thought.

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • CressidaCressida Member Posts: 754 Pioneering
    Hello @paulv2 . When you were enrolled in the clinical trial they should have given you some information about what they are trying to achieve 


    You might find this link helpful. 

  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @paulv2 and a warm welcome to the community! How are you doing?
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  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,731 Disability Gamechanger
    Hi @paulv2
    Welcome to the community! I have Ulcerative Colitis so I understand about Crohns Disease. Have you heard of Crohns and Colitis UK?
    They say:

    "We understand that living with long-term health conditions like Crohn’s or Colitis may have an impact on your financial situation. 

    You could be entitled to benefits to help you support yourself. Read on for information on some of the key benefits, and to find out how to access help with applications via our Information Service.

    How we can help 

    • Our Helpline staff can answer your general questions about Personal Independence Payment (PIP) or Disability Living Allowance for children (DLA).  
    • We provide easy to read guides on PIP and DLA for children. 
    • Disability Benefit Service. A 30 minute appointment where our volunteers can discuss your eligibility and help with completing the form. If turned down, we can also help with the mandatory reconsideration. Telephone appointments with DBS volunteers can be made by calling the Helpline"

    Senior online community officer
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