Are there any private paediatric neurologists anyone can recommend? — Scope | Disability forum

Are there any private paediatric neurologists anyone can recommend?

hamoudh
hamoudh Member Posts: 1 Listener

My nephew has developmental regression and has seizure 6-7 times a day, he is currently on a NG tube as it is unsafe for him to swallow. He has not yet been given a diagnosis however they do suspect that he may have Leigh disease and his seizures now have become worse than before to the point that he is now crying and you can see he is in pain 


Are there any private paediatric neurologist that you can recommend that can assist us further ?

Comments

  • Tori_Scope
    Tori_Scope Posts: 6,610

    Scope community team

    Hi @hamoudh :) Welcome to the community.

    I'm sorry to hear about the situation your nephew is in, I'm sure that must be distressing for the whole family. I don't have a recommendation for a paediatric neurologist unfortunately. Have you looked online to find one close to your location that you could contact, perhaps for an initial consultation?
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  • woodbine
    woodbine Community Co-Production Group Posts: 5,631 Disability Gamechanger
    @hamoudh welcome to scope, perhaps your GP could recommend someone suitable?
    I am a person with epilepsy not an epileptic, my illness doesn't define me.

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