PIP and seizure frequency

mark869
mark869 Online Community Member Posts: 5 Listener
in PIP, DLA, ADP and AA
Hello all

My seizures sometimes cause LOC. But I havent had LOC for around 8 months now.  I could still have LOC with my seizures but it seems a long time to go without.

Im wondering does that mean medically Im better and how will this affect my PIP. Is it change of circumstance, as in I am better or is seizure frequency not taken into account

Comments

  • mark869
    mark869 Online Community Member Posts: 5 Listener
    Hello everyone
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hello @mark869

    Wishing you a warm welcome to the community, it's nice to have you aboard and I hope you've had a good day.

    I'm not sure whether frequency is taken into account or not but hopefully other members with experience of this may be able to answer that particular query. Your discussion is in our PIP category which has plenty of other discussions relating to PIP entitlement and changes in circumstance that you may find it useful to look through.

    I just wanted to check regarding your condition, are you well supported to manage it? It's good that you haven't had LOC in a while, although I imagine that you still feel concerned about it.

    Take care :) 
  • mark869
    mark869 Online Community Member Posts: 5 Listener
    Mine are the dissassociative seizure type. But I was getting LOC type. They investigated me for heart stuff too. What do you think? I guess I could still have LOC but am unsure what to do. 


  • poppy123456
    poppy123456 Online Community Member Posts: 64,458 Championing
    PIP isn't awarded based on any diagnosis, it's how those conditions affect you against the 12 PIP activities. We can't tell you what you should do because we don't know exactly how your conditions affect you.
    You need to get some expert advice from an agency near you. Start here. https://advicelocal.uk/

  • mark869
    mark869 Online Community Member Posts: 5 Listener
    I’m not sure who could advise 
  • poppy123456
    poppy123456 Online Community Member Posts: 64,458 Championing
    Have you used the link i provided above? It will tell you exactly what advice agency is local to you. You will need to put your postcode into the link and choose a topic "welfare benefits"
  • mark869
    mark869 Online Community Member Posts: 5 Listener
    Citizens advice?
  • Tori_Scope
    Tori_Scope Scope Posts: 12,469 Championing
    Citizens Advice are sometimes the only organisation that show up @mark869. It depends on what's available in your area. Have you tried speaking to them?

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