Support for Auditory processing Disorder (APD)

Hi,

All of my family, 3 sons, my wife and I, have a clinical diagnosis of having various types of Auditory Processing Disorders. We are all clincially diagnosed at various assessment centres (Sheffield University, Great Orrnond Street Hospital (GOSH), and University College London (UCL) ) between 2003 and 2012. Auditory Processing Disorders are a listening disability, or the brain not being able to effectively process the sounds the ears hear, which includes sound based communication such as speech.
The temporal form of Auditory Processing Disorder is concerned woth having problems processing the gaps between sounds, which can include the gaps between words in rapid speech. The temporal form of Auditory Processing Disorder is also the main underlying cognitive cause of the developmental dyslexia symptom, what the dyslexia industry call a phonological processing deficit. 

The Medical Research Council recommends a multi discipline support team for those of us who have auditory processing disorders consisting of an audiologist, a speech and language pathologist, and a psychologist, help those of us who live with auditory processing disorders work around our sound processing limitations and suggest and may be help develop the alternative compensating skill and abilities we may be able to access to work around our limitations. 

Unfortunately so far we have  not been able to locate any local NHS medical professionals or support staff trained and qualified or willing to learn about our disability So far.we have only come across professional  ignorance and  incompetence from our local NHS Trusts so called support services, and this just make our mental health worse. for me personally it causes high levels of blood pressure.

Do you know where we can get the support and understanding we need so that we can begin to not feel so depressed, and have UK mental health teams increasing the public awareness of auditory processing disorders, so that we don not feel so much like freaks by others in our community. In recent years I have become house about mainly just ot avoid the disability discrimination from others who have never heard of Auditory Processing Disorders, and do not understand how best to communicate with me. 

Hi Antonia_Scope a week has passed since your post, above. As you can see the lack of any reply from  @NicolaLatheySLT is only a further demonstration of the lack of support those of us who have Auditory Processing Disorder receive from UK support professionals, who prefer to avoid us, and market their limited support services, and their lack of willingness to learn about the nature of  our disability and try to provide some support and understanding. 

Adrian_Scope 
due to the ignorance and professional negligence of our local NHS trusts audiologists, speech and language, and especially psychologists I have been totally ignored, and i have had no support what so ever for my mental health issues. I have found that running a support group on Facebook (currently it has just over 12,500 members) has been of some help as I can share my issues with others who have my listening disability. 
the problem it seems tis that I know more about my disability, than those who should be trained and qualified to provide the suport and understanding those of us who have auditory processing disorder require. 
And it would like to poinyt out that one of  your advisors had a good description of my disability posted on their page, but deleted it as soon as I mentioned that it was a good description of my disability. Just trying to hide their ignorance, 

Ami2301 
I started an adult APd group called "OldAPDs" on Yahoo back in 2000, which over the years has included an online research program which an  Australian psychologist who works with with adults who have APD a the research had contributions from an international  group of adults who have APD. the result articles "Controlling the Chaos" and "The Trouble With Strangers" can be downloaded from Damien Howard's web site Ear Troubles 
I also run a Facebook Auditory Processing Disorder (APD) support group, which has an international membership of over 12,500 mermbers mainly parents of children who have APD. The problem is a lack of adults who have APD willing  ot explain the issues of living with APD, which is the main underlying  cognitive cause of the dyslexia symptom.