Anyone with Dystonia ??
My_angel
Online Community Member Posts: 18 Listener
Hello everyone
I wonder if on this forum I can find parents with CP - Dystonia children?
My daughter is 3,5 has been recently diagnosed with Dystonia - and until 3 we thought its only erebral Palsy - so its kinda of new chapter in our life, anyone can advise how your children cope with it, any rehabilitation program etc... thank you
I wonder if on this forum I can find parents with CP - Dystonia children?
My daughter is 3,5 has been recently diagnosed with Dystonia - and until 3 we thought its only erebral Palsy - so its kinda of new chapter in our life, anyone can advise how your children cope with it, any rehabilitation program etc... thank you
0
Comments
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Yes my son is 2 and a half has bad dystonia, health staff hardly see him and are rubbish took them ages to figure it out that he had dystonic cp, he has a new medicine called trihexphenidil helps reduce it a bit and it works!0
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My son has trouble sleeping at night any tips?0
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