"Is PIP fit for purpose"? A welfare process that negatively affects health? — Scope | Disability forum
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"Is PIP fit for purpose"? A welfare process that negatively affects health?

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bendigedig
bendigedig Community member Posts: 254 Pioneering
edited April 2017 in PIP, DLA, and AA
Since joining the SCOPE community my view on the whole "PIP process" has been crystalised.

Before joining the community I had heard from others about how unfair and unjust the whole process is.  The PIP process is clearly the Idea of an "idiot" or an "evil genius" bent on saving money in order to pay for the shortfall of the defence budget etc.  Clearly it is riddled with injustices, inconsistency and incompetence.  

I have personally experienced high levels of Stress and have been left feeling even more depressed and anxious after having engaged with the PIP process.  I have diagnosis for ASD (Aspergers), sleep Aponea, Depression and PTSD.   I got the little ammount of money that I expected to get from the PIP process in addition to the sense of fear, anger, shame and embarrassment that the process encourages from the applicant.  I know that my health has been negatively affected by the experience.

The creation of The PIP process has forced the sick, disabled infirm and the vulnerable to BEG to PRIVATEERS for welfare payments in order for them to help live their lives.  This is a travesty!  Medical diagnosis should be enough evidence to support a DWP claim for a payment to support an individuals personal independence! A pseudo public official dealing with confidential personal information is bad enough.  A poorly qualified assessor rewriting the needs of an indivdual with a specific recognised condition is another.  From a welfare perspective it is tantamount to overulling the diagnosis of a mecical expert!  This is more than an INJUSTICE.

Ive been lucky though.  I know a lot of people have been through much much worse.  this highlights the first glaring problem with PIP and that is, INCONSISTENCY.

This brings into focus the pivotal role of "the PIP Assessor", fast becoming a reviled and feared individual,  a henchman that invades the privacy of an applicants life casting judgement and aspersion on the validity of the applicants claim.  Who, indeed, What are these people?  Often, rank amatuers (As always I am sure that there are e ceptions to the rule but thats not what we are talking about here) People with a sports science diploma or a certificate in remedial massage, an NVQ 2 in Care?  An individual acting as judge and jury in a complex medical assesment riddled with subtle issues far beyond their knowledge and/or lack of expertise!  The assessor, more often than not it would seem,  is somone who having seen the lucrative financial gain from the salary offered to them, is ready to sell their soul in order to pervert the data they are gathering for their master and consequently the claims that the ATOS/CAPITA paylords are presenting to their paymasters in the DWP are frequently twisted, falsified and at best incorrectly completed.  In turn the DWP can present a reduction in costs to their Paymasters in the Government. This is INCOMPETENCE.

It is my opinion that the government, partly (amongst other nefarious reasons) in an exercise in plausible deniability contracted this process out.  When it failed as it REALY SHOULD, they would be able to blame the contractor for their own Evil Plan.  In much the same way the privitisation of the NHS the Prison Service etc will afford the Government excellent plausible deniability for its own missuse and neglect.

I have created this thread for those within this community and beyond it, who wish to "testify IN WRITING" as to how  the PIP process is, or has negatively affected their actual HEALTH and consequently their quality of life? 

This seems to be a fundamental issue that is readily apparent in all cases where people have been FORCED to engage in the PIP process.

PLEASE contribute to this thread in as much detail as possible how the PIP process is negatively affecting your health and as a consequence your quality of your life.

PLEASE contribute to this thread whether you have been successful or unsuccseesful in the PIP PROCESS.

It is my opinion that if this process negatively impacts upon the health of those engaging with it that ANY GOVERNMENT WORTH ITS SALT would HAVE TO REVIEW ITS FITTNESS FOR PURPOSE!

Please consider this.  The more people that contribute evidence to this thread detailing the negative impact to their health due to the PIP process, the possibility that this evidence might be used to force a review of the process increases.  Either way, documenting this information is incredibly important!  

It occured to me that most of us, within any appeal etc. Would have included information as to how this process is or has negatively affected our health.  At the PIP interview (They came to my home), I stated openly and for the record that, "I was opposed to the process and that my very involvement in it was affecting my health negatively"..  Im sure I am not alone in my protestation?  This means that the DWP and their contracted henchmen know that this process has a damaging effect on the more vulnerable of our Nation and this means that the Government is FULLY AWARE that they are litterally getting away with blue murder at the moment!  

All that remains is for the will of the public to call the fitness of the PIP process into question.

Please detail in your post any negative health effects that directly correlate to the PIP process.  Please also advocate for those who are unable to post by gainng their consent to post their story.

I could be wrong but if WE ALL CONTRIBUTE relevant information to this thread and encourage others to join the SCOPE community in order to contribute, then it is possible that this information could potentially be used to support the question "Is the PIP process fit for purpose"?

Could this action potentially contribute to generating the headline...... "PIP,  the process that is supposed to help people is found to damage the applicants health"! In this event,  Im sure that the Government should, potentially be under a moral obligation to review the whole process.

For my part, depending on the response that this post generates I would be willing to take the information forward (hopefully with the support of other community members) as evidence to support the proposition that "PIP IS NOT FIT FOR PURPOSE"

I have NO political motivation for creating this thread.  My motivation comes from a moral and ethical standpoint.  I have not been encouraged by SCOPE nor have I sought the permission or involvement of SCOPE in this matter.  I can not see why anybody would object to me doing this as it is done in the interests of justice for all.

Sucess in such an endeavour only arrises through consensus and unity so please post generously and please encourage others to do so also :)
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Comments

  • janice_in_wonderland
    janice_in_wonderland Community member Posts: 265 Pioneering
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    Brilliantly compiled 

    I opened my letter yesterday following my assessment a couple of weeks ago 

    I'm unable to add everything that's happened and how my life is affected by things I suffer from although since the assessment I have had headaches and eating and sleeping are hugely affected and now returning to weighing myself on a daily basis again... I am unable to go out as I feel too vulnerable and fatigue is really pinning me down at the best of times 

    I'm very nervous and feel extremely insecure 

    if if it wasn't for friends offering to buy me Aloe Vera juice and supplements etc which are more important than shampoo bc of health reasons I think I might go into very deep depression 

    I've just burnt boiled eggs bc I'm really not functioning properly 

    ive gone from being a model/dancer to a wreck when I was only just starting to feel like focussing on my appearance again after a number of years of being repeatedly traumatised and removing benign tumours 

    I'm not sure what the future holds but the way I feel atm I want to move somewhere rural to retreat and be left alone to avoid humans I believe may cause me any further unwanted distress 

    im allergic to numerous things but I'll suffer the consequences of a cat and a peaceful garden 

  • bendigedig
    bendigedig Community member Posts: 254 Pioneering
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    @janice_in_wonderland
    I'm so sorry that you are going through this.

    It is clear that you have been affected negatively by the PIP Process.  Im sure that Headaches and sleep problems are the tip of the Iceberg when it comes to the negative impact it has had on you.  

    I find cats very rewarding too.  Its such a shame that this clearly necessary pleasure brings you some discomfort.  My sister had to give up keeping animals for similar reasons.  It was a huge sacrifice for her.
    Thank you for contributing.


  • janice_in_wonderland
    janice_in_wonderland Community member Posts: 265 Pioneering
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    Yes I am unable to interact and very tearful  but fortunately I have made good friends to help me through although if I was able to go out I feel thoughts entering my mind how I want to confront this assessor bc of how she has destroyed my confidence and I am close to being sick 

    I do not like using words such as hate or evil but on this occasion they are a generously polite way of expressing my disbelief how any human can be so detached and have no after thoughts however one day this will catch up with her and she will face the same situation only tenfold 

    tomorrow is another day 

    next week the fight begins when I'm stronger and see welfare advisor who deserves an award for her brilliant care in the community 
  • bendigedig
    bendigedig Community member Posts: 254 Pioneering
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    @wildlife
    Thanks for posting,  please encourage others to post.
    If we get enough significant evidence to document we might be able to take this forward.
    The more evidence the better obviously.
    They like evidence the government, don't they?  Well lets give them some.  Then, lets give them some more.
  • bendigedig
    bendigedig Community member Posts: 254 Pioneering
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    @janice_in_wonderland

    Evil is a strong word.

    As far as certain media reports have led me to believe, people have and may still be dieing due to bennefit cuts.

    Britain is one of the wealthiest countries in the world and has the Fith largest Defence spending budget.

    Causing the deaths of vulnerable people by taking away their income and then spending the same money on Killing other vulnerable people elsewhere in the world actually does qualify as EVIL, I think?

    I think what the government is doing does, whichever way you tilt it look like EVIL.

    ACCOUNTABILITY is also in the dictionary lets start making use of that word too.
  • janice_in_wonderland
    janice_in_wonderland Community member Posts: 265 Pioneering
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    Adding to that what really worries me is how these assessors are encouraging liars and lying to be acceptable in a professional environment by qualified medics! 

    I'm losing confidence and staying close to home to try to comprehend what is going on in the world 

    what happened to 'care in the community?' 

    If ever i bumo bump into that assessor in public I refuse to be held responsible for my actions bc I've been through so much this has highlighted what the system is all about 

    ive saved this government so much money! I have no idea how I got through operations alone as it was clear I needed a carer and also offered by social services government money towards a flight to see my only daughter in aus but rejected their offer so how many people are taking advantage of the system? How many are getting flight money to see relatives? 

    I didn't feel it was right 

    i was yoo ill to care for myself or my daughter who had glandular fever and my mum had cancer! 

    The CAB told me I ought to have been signed off sick long before I was but I'm forever being fobbed off 

    not anymore 

    and guess what to top it a recent mammogram letter is requesting me to attend an appt next week! Let's hope the lump is only a cyst! 

    Overload! 
  • janice_in_wonderland
    janice_in_wonderland Community member Posts: 265 Pioneering
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    If there is a 'GOD' then where is he and why is so much testing the vulnerable? 

  • bendigedig
    bendigedig Community member Posts: 254 Pioneering
    edited August 2017
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    @janice_in_wonderland

    You have my total sympathy and understanding Janice.

    I dont know where God comes into this?  We need all the help we can get though!

    If you check out the word "evil" in the dictionary then I think you will see that there is no mention of God.  At least not in the Collins Pocket thats next to my chair.  there are lots of references to the word God and Evil in the other book beggining with B but thats another thing isnt it?

    I sincerely hope that there is a God because if there isn't, then there are a lot of people today that are going to get away with an awful lot of Evil acts without having to account for them in any way.

    Perhaps we should focus on more corporeal matters before we think about Gods involvement in all of this?  I'm sure thats the way he would want it too?  If I'm wrong I expect I will account for that later.

    I'm not being flippant here.  I do appreciate the magnitude of Gods importance to most people of Faith.  God and religious faith is often all there is for some people to help them reconcile the unbelievable injustices that they might be experiencing.

    It would be nice if the Church got a bit more involved in this sort of thing though wouldnt it?  Its very obvious that they are totally aware of the peoples predicament by the ammount of food banks that the church has opened in the last couple of years.

    Sadly the last time Rowan Williams took a stand against the state pretty soon afterwards they replaced him.  If I'm not mistaken HRH Tossed a disparaging remark his way as they moved him on.  I'm not really sure if other denominations or faiths have spoken out against the government and its Evil ways in recent years?  Then again our government is known for killing so I expect that people would be justified in not wanting to "rock the boat"?

    So, when I say EVIL I mean it in the same way George Bush meant it..... You know when he said "Axis of Evil", or at least I think That I'm using the word in the same way?  After all, George W. wasn't well known for his accuracy with tricky little things like words was he? 

    What we need in this thread though is peoples testimony about how the PIP process has affected them and their health.  Lets try and encourage people to contribute.
  • Nystagmite
    Nystagmite Community member Posts: 596 Pioneering
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    Part of the problem for me is the way the assessment is carried out. How can anyone decide within 45 minutes - 1 hour what someone's true needs are? The lady who did my assessment, decided I had no hearing problems. Most odd that I'm under Audiology and have been for just over a year now. I had a friend with me at my assessment. He's not medically trained in the slightest; but has picked up on my hearing problems. You can't know what I can hear. All audiology and ENT can tell you is that my hearing is too sensitive. (to the extent that the tinnitus maskers I was given, are too quiet for the Audiologist to hear)

    The lady who did my assessment lied and couldn't get her lies straight. She made assumptions that couldn't be true in the slightest. This resulted in me losing over £130 a week.

    I also find it odd under DLA, I met similar criteria. But the conditions I have, are incurable. We have no idea how most of them will end up. But I'm not going to suddenly wake up and be able to see, hear, breathe and communicate normally. Apparently, I don't have communication issues. Funny how my friend will tell you the opposite. Oh, hold on, he has no idea what he's on about - he's only know me for 4 years and only taught Communication for some 30 odd years.

    I am dreading my renewal. But I'm lucky that it shouldn't be until at least 2026. Unless they change the goal posts again. Don't see the point in having to reassess those of us with permanent and incurable medical conditions at all.
  • janice_in_wonderland
    janice_in_wonderland Community member Posts: 265 Pioneering
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    I'm nodding 

    I think forcing myself to eat I will function better even though I feel sick 

    What baffles me too is how people less unwell than myself have got more points and they too are stunned at the assessors report 

    my good friend who came with me was cross when I mentioned things in the letter 

    she kept repeating 'WHAT A LIAR' so she's coming with me to see the welfare advisor who knows we are ok to discuss things altogether and have 1 month to deal with MR 

    In the meantime...
    Please universe free me from the hurt this indifferent assessor has caused me and how many others (2 faced lying evil brain draining psycho'?)
  • bendigedig
    bendigedig Community member Posts: 254 Pioneering
    edited April 2017
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    @Nystagmite
    Hi,
    Your story is very similar to many others that I have heard.

    Your point about the validity of your assessment is totally viable in my opinion.
     What I would really like you to detail is how this whole process ia affecting your health?  You may not even have thought about the negetive, deletorious and detrimental effect that all of this is having on you!  

    One thing about the people of these islands just of the coast of France is that we have been conditioned to put up with all manner of hardships.  As sombody pointed out in another thread and I think its the same for all of us.  We dont tend to like moaners.

    Well Im not asking you to moan about things.  I would like you to have a good hard critical think about how the PIP process has affected you and your health?

    I propose that PIP is not fit for purpose simply because it is making people ill?  Do you agree?  Can you support this proposition?

    Im almost certain you are not happy about it.  Has it caused you Stress Depression and Anxiety though?  I know I have suffered these things due to PIP.

    All your criticisms of the PIP process are entirely valid and provide accurate evidence that the SYSTEM IS A SHAM....  Everybody "in the know" is aware of this.  Especially the buggers that have subjected us all to it!

    What I would love is if people could provide evidence to support the proposition I have made about the PIP process negatively affecting their health.

    As always nystagmite you have my total support in this.
  • bendigedig
    bendigedig Community member Posts: 254 Pioneering
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    @janice_in_wonderland
    Dont give them any quarter!
    You and @Nystagmite are Bang on about the 
    • INJUSTICE
    • INCONSISTENCY
    • INCOMPETENCE
    WE ALL KNOW THAT THERE ARE THREE I's in PIP

    :)

    lets start gathering EVIDENCE for the other 4th "I" related to PIP.  THE ILLNESS CAUSED BY THE PROCESS.

  • DeeDeex4
    DeeDeex4 Community member Posts: 16 Courageous
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    I can provide original paperwork with my " Healthcare Professional" name plus my First tier Judge, Doctor and Disability specialist.. and will.
    Unfortunately it's my understanding any medical notes have to be requested in writing, I will also do that for you, when in June I see the Neurologist I will also provide her with dates and extreme symptoms and known causation to be made note of... then I will provide that.
    Unfortunately were back to the same starting point as before, Specialists and my word are ignored... I don't want to pee on anyone's bonfire and I'm by your side every step of the way, my Daughter is due turning 16 and myself again in 2 years although palliative with Cancer. I have stood on a principle for 13mths and will stand again, I have no choice, but this way it's on MY terms not theirs.
    i was actually going to my local newspaper with everything to see if they would print one horror and waste of tax payers funding but that's subject to a good day if I can get someone to take me and appointments.
    What we need is a Fairy god mother or Solicitor and a fair amount of people willing to expose themselves to further scrutiny... writing that makes me groan as it will others I'm sure, but it's the only way to make the Beauracrats take notice. 
    We are victims of unforeseen disabilities, but we are only victims of society if we allow it.. I'm not societys victim or dumping ground for inadequate Beauracrats and their hair brained ideas.
    In all I'm prepared to support my claims with Medical Evidence of past Cancer, present 2 Cancers future diagnosis and current mental, physical and emotional stresses endured over the past 13mths and counting... as I STILL haven't heard anything or recieved my backpay or monthly payments YET!!!

  • bendigedig
    bendigedig Community member Posts: 254 Pioneering
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    @DeeDeex4

    You are bloody marvelous!

    Please dont ever let them get away with how they've treated you.

    I'm hoping that people will follow your superb and very courageous example.

    If people do then that would be great.

    It would be possible to compile a report on the negative effects of the PIP process on the health of applicants.

    You are so on top of this that it seems like yours would make an excellent case study to put much flesh on the bones of what I suspect should be an avalanche of annecdotal evidence and better still a further flurry of more detailed accounts.

    These people should be made to feel ashamed of themselves for what they have done, what they are doing and for god knows what further sick schemes they intend to reveal.  If they dont feel shame already then we need to teach them how to be human so that they are able to be ashamed of themselves.

    Are they not aware how small these islands are?  Do they think they are invisible?  Faceless, Nameless?

    Thank you DeeDee for making such a sterling effort.  You are brilliant.  Lets hope others start posting thick and fast.
  • DeeDeex4
    DeeDeex4 Community member Posts: 16 Courageous
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    Not a problem.. no one strips me naked and beats me with my own shoe!!
    Should I have trouble with Daisys PIP change over you can access her file also.
    Daisy caught Pnemoccocal Meningitis at 11wks 5 days old, a prem baby in HOSPITAL... she's been on DLA from 3mths old.
    Frontal lobe brain damage, Hydrochapalus, Chronic Epilepsy ( SUDEP) alert attached,Chronic Lung disease, Autism, learning difficulties, sleeps a max of 4hrs nightly.
    As Daisy attends a special needs school I know others who would be willing to contribute should the need arise.
    Good luck
  • bendigedig
    bendigedig Community member Posts: 254 Pioneering
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    @DeeDeex4
    People like yourself deedee should be celebrated, not made to feel like a beggar!  Daisy is a very lucky girl to have such a great mum:)
    Thankyou for being so generous of heart and spirit.
    If nobody else comes forward in support of this then your case alone should spark out cry, surely?
    Lets see what we can do.
  • RomaFree1
    RomaFree1 Community member Posts: 14 Connected
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    It was prior to Christmas that I first heard that I was to be assessed for PIP. I had been awarded DLA for 'life'. I now feel that I have no life really. My first home assessment never took place. When my OH called Capita, he was told that it was cancelled and that they had tried to phone to inform me??? An outright lie as I chose not to give a phone number! 
    Another assessment was arranged and the person was half an hour late, by then I was shaking and in a dreadful state. I now await the dreaded decision  as it will arrive any day now, I am barely functioning. 
    I have read your replies in this thread (great thread btw!) and it is dreadful the way you have all been treated. 
    Something needs to be done to stop this barbaric way of dealing with the disabled. 
    Please keep adding to this thread started by Bendigedig....
  • DeeDeex4
    DeeDeex4 Community member Posts: 16 Courageous
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    Bendigedig.. start a Facebook page, I'm sure more coverage would be gained.
    i sense the fighting spirit being aroused by unity. 
    Just seen a headline on the news 50,000 lose adapted vehicles because of changes to benefits.

  • DeeDeex4
    DeeDeex4 Community member Posts: 16 Courageous
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    Find me on Facebook Denise Ellis, the cover photo is Lily in RAF uniform, Birmingham UK

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