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Tips and tricks on bringing up a baby whilst being disabled
I recently started a blog I would love to share with you. https://www.facebook.com/thewheelsonmum/ My aim is to make the content I wanted when I fell pregnant, tips and tricks on bringing up a baby whilst being disabled. If that's something you'd be interested in please do check it out. If not please don't worry! I also…
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Power of attorney
Hi, My daughter is about to turn 18 and it has been recommended that I be given power of attorney to manage her money/ benefits and affairs etc. I understand the concept, but don't have a clue about the details. Would anyone be able to give me some links to begin exploring please? Should I take legal advice? I'm completely…
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Should I give up work and become a full-time carer for my baby?
I am a wife and mother to a gorgeous 18 month old baby boy he recently had an assessment with the peadiatric specialist team as he can’t hold his head up yet, Crawl sit or stand he now has a list as long as well let’s say a piece of string of appointment with various specialists I’m finding it very difficult to cope with…
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Emotion support for carers
My son is now 7, he was born with multiple conditions and its been hard, but the good news is most of his conditions are managed and supported and school is collecting evidence for the ECHP so now i'm just looking for a little support in dealing with my side as a carer. It's difficult dealing with the behavioural bits and…
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Caring for my adult daughter is heartbreaking
I am the sole parent of an adult daughter with JME elipepsy. It started when she was 16 ish but she managed to complete school and University and running a business. In the last 18 months or so she has seriously deteriorated and can no longer work. We have done the consultant thing and he is great but there is nothing more…
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Three chest infections in three months
has anyone had three chest infection in three months . Have been told they will not resuscitate you if heart stops
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4month kids development
My 4 mont son is used to keep left hand fisted most of the time, otherwise ok. What may be the problem?
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My little sister
Hi guys/girls, I am new to this forum so welcome to you all :) . My first topic is about my little sister who is 7 and suffers from pda. One of the issues we have with her is that she will not zip her jacket up when it's unpleasant weather outside. We don't want her to get ill from being out in the cold rain so we always…
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Adult daughter has JME epilepsy which has seriously deteriorated, finding it hard
I am the sole parent of an adult daughter with JME elipepsy. It started when she was 16 ish but she managed to complete school and University and running a business. In the last 18 months or so she has seriously deteriorated and can no longer work. We have done the consultant thing and he is great but there is nothing more…
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Hi, my name is Tigermoth42!
Hi everyone, looking forward to chatting soon
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sex as release of day to day pressures
Hi I am new here and do not know if this is ok to post here as i am a carer as well. i hope it is. I have been my wife's carer for a long time now and we have always had an active and good sexual relationship. She now has been in remission of cancer now for 12 month and also suffers from mental health problems, but still…
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Bereavement and Parish Nursing.
I joined here after reading the article on bereavement , my colleague Jackie Lincoln and myself are Parish Nurses working from North Shields Methodist Church and support our 7 Methodist Churches in the North Shields & Whitley Bay circuit, as well as supporting the Churches, members and attenders we do outreach work for…
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I am a parent of a disabled adult - the next phase of her life by trying to get her a job
Hi I am a parent of a disabled adult. She is 22yrs old, diagnosed with learning difficulties. Wecare just about to start the next phase of her life by trying to get her a job.
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Searching for a diagnosis for my son
Hi I’m new to this and on a lengthy road to a diagnosis for my son. It’s hard to find answers and get the right support so thought I would try here. Jayden has severe developmental delay,sensory problems,low muscle tone,problems feeding, involuntary movements and it goes on and on were waiting to see a group of…
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Help with my son
Hi, I’m not sure where to start, but we have 13yr son with moderate learning difficulties, high anxieties, self harms, very angry and swears. We took him to A&E last night as threats to harm us. Is in mainstream school on a very reduced timetable. Im finding this so draining any advice, support encouragement would be very…
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Struggling with possible cp diagnosis for my 19mth old
Hi all, I don’t know if this is right place to write this. I oringally went to my doctors as my little boy couldn’t seem to straighten his legs, always stood bent knees, sat bent kneaded and slept with bent knees. He was sent for X-rays an referred to physio. Xrays were clear but it was when we had our first appointment…
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Sleep struggles
Hi. My son is about to turn 3, has GDD, possible ASD, SPD and rarely sleep through the night. I have no problems getting him to sleep, though he won't fall asleep until around 8.30-9pm then will wake up at any time between 11pm & 5am - usually just once, but he will be awake for about 2 hours. Then he's up & ready for the…
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Looking to chat with other parents of disabled kids
Hi im Hayley I have 5 kids 2 of which have disabilities one has juvenile idiopathic arthritis and the other has attention defeceit hyperactivity disorder and Tourettes syndrome would appreciate some advice and just to talk to other parents going through similar problems with hospitals etc.
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Overwhelmed after a stroke
Hi all I'm new
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What would you find helpful? Hospital visits...
Hi guys, A quick introduction... I am a support worker on a general paediatric ward. I work closely with children, with and without learning disabilities, and am looking for ideas to improve our service for the Children AND parents!! My 14yr old daughter is doing a sponsered bungee jump in a couple of weeks to raise money…
