Cerebral palsy

Larkspur Care has contacted the Cerebral Palsy Network. Larkspur have opened a specialised adult centre. They have deliberately sought to reach people across a wide geographical area because they want to hear a broad range of experiences, perspectives and ideas. Larkspur Care would like your input on the following…

Having cerebral palsy means I have always had to be aware of my body — my energy, movement, fatigue, pain and the things I need to make everyday life work well. Some days are more physically and emotionally challenging than others. One of the brightest and most comforting parts of my life is my dog, Willow. She is a…

Article by Melissa Parker. From the Metro I’ve always needed help finding accessible bathrooms – and it’s always made me feel like a burden (Picture: Melissa Parker). ‘Please may I use the bathroom?’, I asked. Desperate for the loo while on a family holiday in Spain, I clearly remember the expression on a relative’s face –…

50 million people live with cerebral palsy worldwide. Their voices and priorities deserve a place on the global agenda. World Cerebral Palsy Day brings together more than 187 partner organisations and reaches millions of people each year. Yet 6 October is still not formally recognised by the United Nations. It’s time to…

CP Sport athletes are invited to join the weekly Birmingham Athletics Academy session, where they'll have the opportunity to take part in a range of running, jumping and throwing activities. Led by experienced England Athletics coaches, the sessions are designed to be inclusive and welcoming. Coaches have experience…

I know I am (slightly) late to the party with this one. But, happy belated World Cerebral Palsy Day for yesterday. This year's theme is the change I want to see. So here's mine: A simple ask for World CP Day: When we say we are tired, as a non-disabled person, please do not respond with "I am tired too". It might seem…

Disability campaigners have called on the UK Government to do more to cut the backlog for its Access to Work scheme. You can watch the report from ITV News here.

Sharing on behalf of Love Productions: The Great British Bake Off – Casting Call: Are you, or someone you know, a star baker in the making? The Great British Bake Off is currently looking for a fresh batch of bakers to take part in the next series, and we want to hear from you. We want the famous white tent to be an…

Like many people, I was shocked to hear the sad news that RJ Mitte died last night. I am going to write a more in-depth blog about the important work he did for our community. But here is a video that I turned to when I heard of his death A huge loss for the cerebral palsy community. If you are struggling, please speak to…

Hello! First post, so apologies in advance if there's some kind of forum etiquette! Was made aware of this forum by speaking with an adviser today. This post is mostly just going to be me venting and asking for advice from anyone who has gone through the same process. I'm a 30, soon-to-be 31 year old who is trying to buy…

I am posting this on behalf of a Cerebral Palsy Network member World Cerebral Palsy Day is a powerful reminder of the strength, resilience, and brilliance within our community. Today, we stand together as one voice to celebrate every barrier broken, every triumph achieved, and every story shared. We are not defined by…

This year, for World Cerebral Palsy Day, we are being asked to answer one question: THE CHANGE WE WANT TO SEE FOR CEREBRAL PALSY. We need a deeper, more compassionate understanding of the hidden realities of living with cerebral palsy. For many of us, cerebral palsy is only one part of the picture. Co-existing conditions…

Register at: From Memory Books to Future Boxes - Creative Art Workshop | CP Teens UK A creative arts workshop offering the opportunity to capture precious memories, hopes and dreams for the future in beautiful handmade books and boxes. Thursday 28th May 2026 (half term) Chesterfield - exact location only given to those…

I can still remember the day clearly. I’d not long turned 16 and there I was with my physiotherapist when they said: “It’s your last day with us today. Now you’re 16, we won’t be working with you anymore.” I’d done the standing frames. The casting – having my legs put in plaster to stretch my hamstrings. Missing time with…

Article written by Emma Purcell in Crip Life Sophie moved into the new alternative flat temporarily starting on 22nd May 2026, but an immediate permanent relocation isn’t possible at this time as Sophie now has the additional challenge of needing to restart recruitment for two new PAs. Therefore, she will continue to live…

Hi everyone, World Cerebral Palsy Day is on 6 October. This year’s campaign invites people to share the change they want to see, starting with the words “My change is…” We’d love to hear what that means to you. Your change might be better access to support as an adult, somewhere accessible to spend time with friends, or…

As part of our Accessible Homes Week (12-16 October), Habinteg is hosting a live, one-hour webinar on Tuesday 13 October where we'll be discussing our latest piece of research. As part of the week, we’ve commissioned a UK-wide survey exploring public attitudes towards accessible and adaptable housing, and we’d love you to…

I know this sounds scary, but it's real and SUDEP Action continue to raise awareness of how to reduce the amount of deaths caused by epilepsy. Today I discovered Charlie's Card, created by SUDEP Action, which you can apply for free of charge. Click on the link below. If you run out of epilepsy medication or there is a…

my lovely Forster parents are getting old and social services have I have move out soon even at 42 years I am nervous about the change any advice you can give me to relax about the situation?

New research from the United States has added powerful evidence to something women with cerebral palsy in the UK have been saying for years: access to routine women’s healthcare is not equal. A large U.S. study published in 2026 looked at healthcare records for more than 138,000 women with cerebral palsy, compared with…

Join us for the Cerebral Palsy Teens UK Entertainment Night 2026! Tickets going fast ‼ Get ready for a fun evening: the Cerebral Palsy Teens UK Quiz, games, a human fruit machine and more - plus food! Evening open to everyone (this is a fundraising event) - i.e. the public, family, friends, as well as service users…

Trying to help a friend out. He is a able to use his computer with the aid of heavy duty buttons/paddles operating specialist software (left right and up down buttons on a grid) programmed to undertake various PC tasks. He also uses a Possum Primo to turn on TV etc. He cannot use his upper limbs for anything needing fine…

I'm posting this 30-day challenge on behalf of Chrissie Henson, who has been in touch with Scope. and the Cerebral Palsy Network. Hi, I'm Chrissie. I am a person-centred therapist and author who also lives with Cerebral Palsy. I recently contacted @Richard_Scope as, over the last few months, I have set up a YouTube…

💬 Young people living with cerebral palsy — we want to hear from you. Adults often talk about the experiences of young disabled people. Scope and the Cerebral Palsy Network want to make sure we’re listening directly to you. We’d love to hear your perspective on: 💜 How does fatigue actually feel for you? Not just being…

I honestly feel like each day I get nowhere with life due to the health conditions I have. I have not seen any family since 2015, nor do I have any friends. Since my ex-wife walked out on me in 2023, I have had nobody to advocate for me. I battle my own corner each minute of the day, which is truly tiring. I question every…

Help us design a standing activity programme for children with cerebral palsy We want to hear from families, carers and professionals. Why this matters Cerebral palsy is a disability that affects the way that children move. Some children with cerebral palsy need full support to move and may spend long periods sitting or…

Try something new. Meet new people. Enjoy sport together! Scope and Cerebral Palsy Sport are teaming up for an Inclusive Sports Festival — and you’re invited! Join us for an afternoon of sport and activities in a friendly, supportive environment. Whether you already love sport or are trying it for the first time, come…

CP Sport: a summer of inclusive sport 🏃⚽🏄 There has been a huge amount happening at CP Sport over the summer, with young people and families getting involved in athletics, climbing, cycling, surfing, football and much more across the country. Here are some of the highlights. National Athletics Championships 2026 The CP…

September is Suicide Prevention Awareness Month. September focuses on raising awareness about the often-overlooked challenges faced by individuals living with mental health conditions. Suicide is a pervasive issue that does not discriminate, affecting individuals from diverse backgrounds. In 2023, the recorded rate across…

Parents and carers of children with cerebral palsy-we want to hear from you. We'd love to hear your perspectives on: a time your child's behaviour was misunderstood. experiences of fatigue. talking to a child about cerebral palsy working with school what helped after diagnosis Your views can help Scope and the Cerebral…