Hi, my name is wol139! my neurologist suspects I have hsp

wol139
wol139 Listener
edited March 2023 in Rare, invisible, & undiagnosed conditions
Hi there.  I’m a lil scared as my neurologist suspects I have h s p I’m waiting for brain mri at mo.  I have all the symptoms and it’s progressing.  Need someone to talk to.  X

Comments

  • chiarieds
    chiarieds Championing
    Hi @wol139 - you are very welcome to chat here in the community. :)  Do you know when it's likely you'll get your MRI?
  • wol139
    wol139 Listener
    I’ve a date on 15 th March. Head and cervical x
  • Hannah_Alumni
    Hannah_Alumni Championing
    Hello @wol139

    Welcome to the community! :) 

    I have popped your post into our Rare, Invisible and Undiagnosed conditions section of the forum, in the hopes you find other users who have gone through or have experience of the same :)

    You are more than welcome to come join us in the Coffee Lounge, we have general debates and play games. It's a great way to make friends in the community, we are always here to chat <3 I'm keeping everything across for your MRI appointment! 
  • wol139
    wol139 Listener
    Gosh just phoned to get pip.  Awaiting the dreaded forms now. Any tips please. Never thought I’d get to this stage.  🙈
  • Hannah_Alumni
    Hannah_Alumni Championing
    @wol93

    Well done! I know it seems so daunting. You can always reach out to Scope's Helpline if you need help with forms :) 

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