RURAL REJECTION MENTAL HEALTH SEVERE ADHD SUFFERER — Scope | Disability forum
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RURAL REJECTION MENTAL HEALTH SEVERE ADHD SUFFERER

Sonny5000
Sonny5000 Community member Posts: 31 Connected
Hi I have had to extensively research my rights the law every guideline in every book that should support my severe adult adhd ICD10 F9.I am still waiting four years later I have spent three years challenging absolutely every one who has had legal duties to use the appropriate treatment and support as in all the legalities.I live in Horsham West sussex now I am seeing what is now known as rural rejection for good reason.TheE areas are abusing there positions rather than use the law to help support and or protect you.I am now classed by law as a severe case of negligence and neglect all my issues have gotton as bad as it gets because I am still facing ignorance uneducated titles who all have never heard of my vital recovery code used supposedly in every county and is supposed to be digitally logged but I am still having to find someone who knows what I am talking about as it’s all supported but not used to to lack of education in rural areas.I have been and still am begging for someone to help me save my life so I’m going to have to try and vocalise it to get the support and justice I have needed.I’m sure thousands are also suffering but what is beyond frustrating is seeing all this help to get you well and never to let a patient become what I have so I am determined to get justice even know I feel this could end badly in my early demise where it would be make a huge nationwide true life experience and justice would be surely given after they have seen all my cries for help but have faced so much ignorance rejection when it’s all supported.Thankfully the home office are starting to wake up a bit by acknowledging this uk problem and the gaps in it which are rural rejection suffering sufferers nky I have had my hand up for years along with wanting to be a voice for all those experiencing what I am.I have the knowledge on why there are gaps etc and that is because certain mental health issues like mine and my code they have no clue how to deal with you so they palm you off to others who also have no mental health training.I know I’m not alone but rest assured once someone helps me get justice by law then I will be on my way to help so many others.

Comments

  • Sandy_123
    Sandy_123 Scope Member Posts: 32,552 Disability Gamechanger
    Hi @Sonny5000 good luck with finding someone to help you get justice, I don't know anyone to recommend.
  • Sonny5000
    Sonny5000 Community member Posts: 31 Connected
    There are certain titles that can buy tryin to find one is actually very hard.Although I have proved as in any court that law is law guidelines safety support is stated everywhere but I am still not receiving what is quoted by law.My case will become huge because a patient and severe duff has not only had to deal with debilitating daily mental health issues but having to then go on to extensively research who to help you further from the absolute inhumane unjust discharge paper work from my mental health which is full of so many failings it’s unbelievable as I have only used every appropriate law and rights for my condition and have contacted up to 50 titles from the FOI to commissioners to safe guarding teams and even sending them there own wording only to be constantly met with I’m sorry your suffering but… that and twenty case numbers all been ignored which obviously has made my issuget worse and worse.It really feels as if they want you to go away as not many people can do this but all the time my heart is beating I am absolutely determined to see justice as it states all titles who have abused and not used there correct procedures will be made accountable.So I’m quashing them in a corner as any court would be in tears at how far my severe self neglect has got and all my cries for help which must be all over the uk .mmMy issue is complicated but it’s always been supported it’s not being used as it should as we are seeing that exactly that.Rural counties now have to be educated in areas like mine the mental health has had a four year duty to communicate with my council and commissioners to explore every treaoption until I am well not ignore me to the point of near death so I can only try and take this vocally so those who need it will have no where to hide along with many benefits I can offer which they are asking for but won’t let me in and are still ignoring me.I wish I could take them to court as they would use all my legalities protocols guidelines all have now had a severe impact on my life mentally physically emotionally every thing.One thing I know is that my code also a vital recovery part has been ignored for years when you research this it’s called payment by code and that every county has the duty to use thee code I and if they have no clue as mine doesn’t there duties all mentioned above will have serious impacts just as I am experiencing so thank you once this gets national as it’s that bad and does not look good for my county will have to finally and for this terrible neglect.


  • Sonny5000
    Sonny5000 Community member Posts: 31 Connected
    IF ANYONE ELSE IS SUFFERING A SIMILAR EXPERIENCE I WOULD BE INTERESTED IN KNOWING.THANK YOU 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,979 Disability Gamechanger
    edited March 5
    Apologies that no one has responded to you yet @Sonny5000. I do not have similar experiences but I wanted to respond to let you know I have seen your post and I hear you.

    It sounds like you are having a particularly difficult time, especially with the law and the impact on your mental health.

    Would anything help things to feel more manageable for you at the moment? Please don't hesitate to let us know if we can do anything to help :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,741 Disability Gamechanger
    Hello @Sonny5000

    I'm going to email you shortly to see if we can offer any more support around what you're currently experiencing. Please keep an eye on your inbox and reply when you feel able.

    Best wishes and take care.
    Online Community Co-ordinator

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  • Sonny5000
    Sonny5000 Community member Posts: 31 Connected
    Hi thank you I have just replied to your email where I also sent a very few of the hundreds of evidence based reality that this is really as bad as it sounds.
  • Sonny5000
    Sonny5000 Community member Posts: 31 Connected
    Hii oh all from Scope that have emailed me.Further from my many emails to sorry thee are alot but that is how complicated it is for me as I said that the Never Ever Capita are the only team that seem to be told of my severe neglect but no title seems to be able to report it to them when they state they need to hear of any serious experiences like mine.As I said all the average teams like safeguarding council my doctor is not enough I’m past that stage I need it to be reported to the right team.I can’t understand it when someone like me is still trying to save them selves and seem to have had to research extensively have found all the flaws the ignorance stigma I am still facing all is very serious and reportable but no one seems to be able to do it as it should be done? I’m hoping that further from myself trying to report it to them my emails bounced back more frustrating but I just hope that something will happen where a title can get me the support and justice.Thank you for your help 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,979 Disability Gamechanger
    I can hear the importance of it being reported to the right team for you @Sonny5000. Hopefully, you can find the right team to report it to soon.

    You are right, ignorance and stigma are very serious. You deserve a lot better than ignorance and stigma, everyone does. 

    It sounds like the emails bouncing back are the most frustrating thing for you as reporting it to the right people is your main concern at the moment. 

    You deserve support and justice. Please don't hesitate to let us know if there's anything we can do to support you.

    In the meantime, I am just wondering if it bounces back with more appropriate contact details by any chance. That's probably too good to be true though  <3
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • FrankV
    FrankV Community member Posts: 23 Connected
    Hi @Sonny5000 wow your story does sound bad, I could not understand the whole of it, but one thing I can say is that when it comes to ignorance in the Law I feel your pain! More than a decade since the introduction of the Equality Act and there is still so much ignorance around mental health, it is actually disgusting. All these so called learned people with university degrees etc, who have an obligation towards their profession yet they are clueless about situations that have a direct negative impact to a persons welfare. Im not "rural", but also not part of Greater London, I am based in the home counties and I am subjected to Discrimination almost everytime I set foot out my yard, even on the phone and it is so frustrating. But when the disabled community finally do become acknowledged properly under the Equality Act 2010, then I guess that there are 1000's of public services who will face penalties and it will be about time too. I also just want to say that I have considered suicide myself over the way in which I have been ill treated by HMCTS, my GP, and a host of public services, but over time it has actually made me more determined NOT to let these people get away with it and I WILL fight my case until someone listens and then I wish to make sure that everyone's voice is heard, because I believe that there are millions of people out there who are suffering in silence, perhaps because they are to scared to come forward or just don't know how. But it's time the community stands together and does something. Be strong and if I can help with anything even just as a sounding board, drop me a line. 
    Please do NOT signpost me to the general charities which include MIND or SAMARITANS etc for help because that is a trigger for my anxiety. I know you mean well, but everyone is different and it just does not work for me, I've tried. 
  • Sonny5000
    Sonny5000 Community member Posts: 31 Connected
    Yes thank you it’s actually much more shocking than that ! As you say if my demise god forbid happened first there would be a huge inquest and why was this poor woman ignored rejected to bring barley alive she has contacted the whole of the uk still has not got justice h h way of treatment compensation for four years of suffering all supported because again not using my code is called payment by day each day you have sufferedb all because of lack of knowledge which the sufferer has had to do I hope this makes it to the public because lord knows I deserve some good news and my rights all met.But it really is becoming impossible I seem to be the only one that has read the rules yes it’s a complicated issue but is supported for good reason as I definitely deserve justice while I’m alive as many have had to meet their unfortunate demise I’m waiting for that one person who knows the drill and the law bla bla and help me get well as doing it alone daily is beyond stressful iv worked on a very important issue that the uk are admonition but no one wants to help you challenge certain teams who need to hear about this it’s so crazy
  • Sonny5000
    Sonny5000 Community member Posts: 31 Connected
    Sorry a few flaws in that post I’m so tired of this I can’t even write properly now!
  • Sonny5000
    Sonny5000 Community member Posts: 31 Connected
    Hi all.I notice that my first post is now on Google which is great but even more frustrating as my justice is still not met.I appreciate Scope who have tried to complain but I did explain that the people they want to complain to about me have had my notes everything for two years.This is so crazy it just takes one person to help me see what I see and that in many ways I have been abandoned neglected have had recent health appointments all declining health from my weight being three stone under weight to my lungs have now become very strained and now a court case that’s been going on a year which I have managed to get three adjourned all because I need my car as it’s just me and my car without it would be impossible.I have a small charge where I cannot get a solicitor as they don’t under the severity of living with severe adult ADHD and the damage it causes when there is no support.I have a keyworker from another town who wants justice reward recognition for me but it’s my town that will not use the proper treatment criteria for my criteria all spelled out for you.The saddest issue is not being given the chance to change and help your community who desperately need it as my experience and knowledge is valuable iv tried to use it vocally as sharing it vocally cannot be ignored emails all over the uk posts from LinkedIn where I have some top connections who all agree with my posts but I’m still left stuck and my daily issues I cannot help as it’s been so long iv been ignored that it’s a sufferers path for there health and issues to get as bad as it gets.More beyond frustrating is now I’m seeing everything I have saying and challenging everywhere such as dual diagnosis mental health self medication and rural rejects such as me and millions of others are being recognised but challenging is still leaving me with no proper help I have needed.There is an event about improving West Sussex areas and experiences wanted.I really need to go I have a ticket but even trying to attend is so hard but I may have a Berger chance as lord have I got an experience to share along with extensive knowledge on why there are gaps and why we are ignored abandoned and neglected.Also I want to demand help before I leave because all the top titles that are attending must have my emails and my cries for help because absolutely everyone has been contacted.I just deserve relief reward recognition for my pain and suffering and finally getting justice compensation for every day I have had to suffer which again is law and is called payment by day if you have a code of ICD10 F9 it is a very powerful diagnosis but safe as like mine have never heard of it but again it’s supported and carries heavy penalties for those who should be made accountable for there lack of care and support.I had a long awaited social assessment last November where they say the neglect all red zone serious issues and admitted that they have not got the proper resources to help me but she did try and contact others to try and help me I received hope again from the head of social  services  who is big on Google he  even stated that he hears I am having much difficulty on trying to get the right support and te right hospital which is Craig castle as they speak my language and I know that if the place I need to be so after hope again me and my keyworker got him via a zoom appointment where I was challenging him about everything he said here’s nothing I can do! I said there is plenty you can do your community ha just has another suicide no 14 in a year along with myself trying to survive and him not caring or knowing all the appropriate guidelines omg this is what I have been up against via emails then we have mental health week where they are quotes of this treatment must stop now and to be more educated to help stop this suffering.What is so crazy is that the home office and stakeholders etc want you to help improve all this and my hand is still up why?? Maybe I know to much and no one wants to be accountable but they will have no choice as my lost four years will take just one person who will stick by me use the legalities I have where every thing is covered but no one seems to want to take the role which with help them move forward and make the change the uk are asking for I have the criteria the experience and knowledge I cannot understand why no one wants to help as making changes for human lives human value will be an amazing beneficial change that is being asked so this is where I am at guys.And the lovley volunteer who said she will email me can you please do it again as long as I don’t bounced around t contact everyone who has been contacted.I need someone to maybe reset my code and see what I see under my condition to completely get the picture I am experiencing as lack of knowledge is preventing this but it’s supported.So I leave it here I just pray that justice will be awarded and I can do on to feel worthy not worthless as I can help in so many ways with sufferers people need a voice and I have that but I need urgent assistance with all the above first.
  • Sonny5000
    Sonny5000 Community member Posts: 31 Connected
    Sorry some of the words came out wrong so let me state what they should have meant.when I mentioned about finding the right help
    i meant that even goggling my code and a mild research on my condition takes you to all this support and treatment that I have never received.As said I was sent to another town who have no mental health training so I’m constantly having to educate titles about the rules guidelines it’s that crazy.If I lived in the US lawyers would be queuing up as not using your code is huge out there but we are always behind but thankfully it does state that every county in the UK must log my code and use it as the severity of my diagnosis this has been the problem as no one has heard of it but as said in two seconds you can see the power this Carries but it gets abused not used over here in the uk.
  • Alex_Scope
    Alex_Scope Posts: 7,562 Scope online community team
    Hello again @Sonny5000 and thank you for reaching out on the community.

    While I am sorry to hear that your situation is still ongoing, it's good to hear your update. I hope you can get to the improving West Sussex event okay!

    If you feel we can help support you, then please reach out by email. As we have been in touch before, any helpful resources or offers of support in those emails will still be there for you, just like the community is here.
    Online Community Coordinator
    Scope

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  • Sonny5000
    Sonny5000 Community member Posts: 31 Connected
    Also Thankyou to Frank and everyone wi has empathy and understanding of my experience and thousands of others but when you have mental health issues many cannot research or challenge there rights but I have and there is a huge space for me out there as I know I can make a difference in getting to the root of the issues and why it’s a post code lottery toget certain help.I have 23 case numbers my post similar to the one on here is also or was on Google from the FOI two years ago even after the Sussex commissioners wrote underneath that they will help I still waiting! Thankfully I screenshot it as I have with everything my other hope is this court case and a judge who is more educated in adhd suffering mental health victims as it has been recognised in high courts and I know using research for courts my charge is all due to lack of education resulting in a charge which I’m going to have to challenge again solo but will take all the armour that is lawful and lord justice from a judge would be the answer I would cry for days !! This would be out of pure relief and finally justice being used but again being let down so many times has to go somewhere positive.
  • Sonny5000
    Sonny5000 Community member Posts: 31 Connected
    Here we go many emails from me ! Just want to add the recent post from Alex and I want to add that I totally appreciate your help and advice but as I explained my complicated but supported mental health issue is exactly how articles quote-And that is that adult adhd is a hidden but very serious condition that areas like mine don’t understand it or use all the necessary support you have the duties to do but every team from Healthwatch to the council have many complaints about me from other teams but they say they lack resources but when you research what your town should do they have the resources the in patient places that can take you out of your toxic environment and help you eat and get a normal routine as it’s so hard on my beautiful twins age 28 who have to see there mother lead this horrible desperate life of destruction that lord knows i have been begging for help since 2018 but people like Capita and Atos are the ones that should be contacted as they will act and use all the support and justice I deserve but I believe you said that you only complain to teams I have contacted.And my cries for help are on Google it like this experience will either be a huge relief for all especially helping others or my god forbid early demise will be alot more expensive because only then many have had to die first to get justice many stories I have read that an investigation takes pace and mine wow would be a case of why did  no one do anything!!This poor woman has her name everywhere for years all to get better so I really can’t contact anyone else I need to vocalise it but a PA would be nice as I need help with soaking sense and to let al these improvements events know that this is going on and also have had to research to try and save there life so Alex thank you unless someone can contact the highest titles where they quote never ever let a patient get a bad as me never ever is there name under Capita I think and yes iv contacted them as well but need a title to help me with getting my life back my keyworker is so busy with there town and ours because neglect sends you all to them again so unjust unfair and needs to be amended.Anyway I think iv said enough for now but trust me guys all I have said is all that is needed for improvements I just need that helping hand then the rest will follow.

Brightness

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